www.theguardian.com/lifeandstyle...
19.05.2025 13:23
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I’m currently isolating due to COVID, positive for 6 days … only my 2nd infection & not as bad as the 1st 20/12 ago (13 days positive with high temperatures the first week) but probably because 7/12 post vaccination rather than 12/12. Nonetheless debilitating - going to pay for 6/12 vaccinations!
"It no longer exists"
The Covid Inquiry heard evidence this week that the testing infrastructure built up in 2020 has been completely dismantled.
Prof. Alan McNally: "If Sars 3 happens in December, we will be exactly where we were in January 2020"
An insult to those we lost.
We're delighted to launch the new @griefcentrebris.bsky.social today! The Bristol Centre for Grief Research and Engagement will unite our research, education, and policy and public engagement on the topics of grief, death and loss.
www.bristol.ac.uk/news/2025/ap...
@leseldawson.bsky.social
This is a terrible terrible destructive decision.
These sorts of long running research programmes take decades to build and their insights accumulate over decades too - the longer they run, the more valuable they become.
This is knowledge vandalism. Nothing new and shiny can replace it.
The RI Christmas lectures are awesome. I had the amazing privilege to do one in 2021 on respiratory disease transmission and it was one of the best experiences I’ve ever had. If you have memories of Christmas lectures please share at the link 👇
Would you like to take part in a photo shoot celebrating people living in larger bodies? We are looking to do a photoshoot in Leeds to produce more positive images of people in larger bodies. Wednesday 30th April, You'll be paid for your time. You will receive a copy of the photos taken. The images be used by organisations looking for positive images of people living in larger bodies. contact a.luke@leedsbeckett.ac.uk
Calling all people living in larger bodies! Leeds Beckett and West Yorkshire Health and Care Partnership are hosting a powerful and positive photoshoot in Leeds to celebrate and represent body diversity.
🗓️ Wednesday, April 30th
📍 Leeds
📧 Interested? Contact a.lake@leedsbeckett.ac.uk
#BodyPositivity
Wow. This sounds really excellent. Do go along if you can.
Hospice UK's Clinical Quality Lead, Anita Hayes has joined an expert panel for the Health and Social Care Committee’s review of palliative care in England.
With 25 years of nursing experience, she will help shape a future where everyone gets the care they need.
www.nursingtimes.net/end-of-life-...
Grateful to be interviewed for this deep dive by the BBC's Nick Triggle into the threadbare state of NHS palliative care services.
4 in 10 hospitals don't even have a 7-day palliative care service.
This is a travesty, @rthonwesstreeting.bsky.social. (1/2)
www.bbc.co.uk/news/article...
“ Health Secretary Robert F. Kennedy Jr.'s focus on vitamin A use to combat a growing measles outbreak in Texas is raising concerns among public health experts, who fear he is sending the wrong message about preventing the highly contagious disease.”
www.bostonglobe.com/...
Powerful & heartbreaking from @lukeharding1968.bsky.social on Trump’s attempts at extortion of Ukraine’s wealth. Essential reading.
www.theguardian.com/world/2025/f...
The NHS elective recovery plan recognises that there is scope for digital technologies to improve patient care.
Pritesh Mistry looks at how embracing technology will improve patient experience, streamline processes & boost efficiency.
https://buff.ly/42W9fIL
Julie Hesmondhalgh presents a truly special episode of #POTW which looks at legacy, language and legendary audio. Sunday 1815 on R4 including @mhairiblack.bsky.social @davidadger.bsky.social @michaelrosenyes.bsky.social @laurenlaverne.bsky.social #radio #podcasts
www.bbc.co.uk/programmes/m...
My letter in today’s Guardian on last weeks oral evidence sessions for the assisted dying bill - and how they left us with more questions than answers (including a big one)…
🚨 Autumn Covid Boosters🚨
We've received responses from the JCVI & DHSC about millions set to be denied vaccines this autumn.
"The Government has received advice from the [JCVI] [...]. It is now considering the advice [...] carefully and will respond in due course."
1/🧵
I've just been told by a friend that she is no longer allowed to use any air purifiers anywhere in the hospital where her husband is receiving chemo from unmasked nurses.
As Editor-in-Chief of Evidence Based Nursing and someone in the clinically extremely vulnerable group I find this unbelievable.
An international panel of medical experts have thrust Lucy Letby's case back into the spotlight by casting doubt on the medical evidence, but what to the statistics say?
A 🧵
1/28
NHS to offer 'groundbreaking' sickle cell gene therapy
…About 50 people a year with the inherited blood disorder are likely to receive it, experts say.
www.bbc.com/news/article...
I was proud to have Claire present while I led a debate calling for changing the law to remove the family courts’ presumption in favour of contact.
I look forward to working with the government and survivors like Claire to prevent tragedies like this ever happening again.
bbc.com/news/article...
"There was “open warfare” between UK government departments during the pandemic, the former vaccines tsar has said, adding the failure to prioritise the needs of clinically vulnerable, immunocompromised individuals was ethically and morally wrong"
I think we all knew this.
I am incredibly proud to be part of the recently announced Parliamentary Palliative & End of Life Care Commission. To ensure your voice is heard, contribute to evidence using the link:
palliativecarecommission.uk/submit-writt...
Top job here for someone London based, assisting Layla who is our local MP and fighter for various important causes. ⬇️
💥Clinically Vulnerable Families 💥
Yesterday, @larawong.bsky.social took the stand as founder and leader of CVF.
**Sorry for the delay!**
- New risks posed by Covid-19
- We need to be recognised as an equality group.
1/ FOLLOW THIS THREAD
“I lost a part of me, I lost a part of my identity.”
Such as powerful interview by Angelique Chrisafis with Caroline Darian, daughter of Gisèle Pelicot, in today's Guardian
www.theguardian.com/society/2025...
"What was once an extraordinary escalation measure is now commonplace across our NHS. There is no scenario in which it constitutes good or safe care" - @rcn.org.uk chief Nicola Ranger
Just out - call for evidence for committee stage of Terminally Ill Adults (End of Life) Bill. Submissions requested “as soon as possible”.
Assisted dying / assisted suicide
www.parliament.uk/business/new...
"The number of patients in hospital with flu has quadrupled in the last month, heaping further pressure on the NHS.
Flu cases have continued to soar, with more than 5,000 patients in hospital with the virus on Sunday 29 December, up from 4,102 on Christmas Day."
I wrote a quick post about the latest UKHSA data on the current flu wave.
christinapagel.substack.com/p/its-defini...
TLDR: we are in a very big flu wave, but Covid levels are low & RSV decreasing. But we should consider extending eligibilty for annual flu (and RSV, Covid) vaccines.
