Stacey Tinianov, MPH's Avatar

Stacey Tinianov, MPH

@coffeemommy

Strategic Advocacy Partnerships & Patient Engagement. Co-Creation & Community Building. ๐Ÿ’— Coffee drinker. Gardener. Wife. Mom. Breast Cancer. ๐Ÿ™ƒ Advocates for Collaborative Education (@advocatecollab.bsky.social) #MakeCancerLessShitty #PublicHealth

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17.10.2023
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Latest posts by Stacey Tinianov, MPH @coffeemommy

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I am not ignoring this reality.
I am simply choosing to save all my shouts of "WTAF" for when I head to the ocean for a cleansing breath.
Here's the moment, sans audio

07.03.2026 00:15 ๐Ÿ‘ 6 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

Sending you much love and good energy ๐Ÿ’—

22.02.2026 02:13 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Embracing the energizing and restorative powers of nature this evening

11.01.2026 02:10 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Taking a deep breath, maybe two, before we turn the page on 2025

30.12.2025 16:21 ๐Ÿ‘ 2 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

"Down by 400, 500, even 600 percent." I didn't watch but from what I've read it feels like I'm not going to be getting the prescription "rebate" I was hoping for back in August ๐Ÿ™ƒ

18.12.2025 15:00 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Mid-week into hot-off-the-press research results at the annual @sabcs.bsky.social

Grateful to be sharing space and hugs with fellow advocates and colleagues ๐Ÿ’—
#SABCS25

11.12.2025 03:13 ๐Ÿ‘ 3 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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Thrilled to be part of this #SABCS25 Special Session looking at lifestyle factors including alcohol consumption & obesity along w/ genetic factors to provide more insight & guidance on relevance to cancer risk & outcomes
Join us tomorrow, 12/9 at 11amCT to discuss!

@drkristyabrown.bsky.social

08.12.2025 14:02 ๐Ÿ‘ 4 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 1
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๐Ÿ’—
Winter sunsets are phenomenal

04.12.2025 05:28 ๐Ÿ‘ 348 ๐Ÿ” 26 ๐Ÿ’ฌ 4 ๐Ÿ“Œ 1

The words I needed to hear this week ๐Ÿ’—

19.10.2025 21:10 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

Oh Aoife, I feel this.
My first go round with menopause-like symptoms (medically induced for cancer treatment) felt so much easier than this official ridiculousness.
Sleep is elusive, if at all
Frozen shoulder (x2)
Random pains and itchiness
Cholesterol & inflammation markers raging...

Gah ๐Ÿ˜‘

30.09.2025 23:31 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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We specialize in bringing patient voices to research; we're awesome at connecting dots btwn research & clinical care; we excel at amplifying voices & pushing for equitable access to quality care; we're all about quality-of-life.
And yes, we suck at selfies!
๐Ÿ’— @jillfeldman4.bsky.social #ASTRO25

30.09.2025 02:08 ๐Ÿ‘ 10 ๐Ÿ” 1 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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Many butts in seats for "When the Physician Becomes the Patient" by Dr. Bobby Mukkamala, AMA president who was diagnosed with a large temporal lobe tumor in 2024. #ASTRO25

29.09.2025 16:27 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

pharmacologic, non-pharmacologic, and behavioral interventions for physical or mental disease or disorder, prophylaxis, diagnosis, therapy or treatment, drug and pharmaceutical development and testing."

Essentially most of the things that study health & wellness for individuals & public health ๐Ÿ˜‘

29.09.2025 14:53 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

epidemiological and medical behavioral studies, outcomes research (interventions, treatment, or therapies), health services research, 2/3

29.09.2025 14:51 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0

Indeed but the "narrow window" is, in large part, a minor issue compared to what is now ineligble for NSF grant funding:

"Ineligible areas of graduate study include public health, global health, clinical practice, clinical psychology, counseling, social work, patient-oriented research, 1/?

29.09.2025 14:50 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0

Adore you, friend ๐Ÿ’— Thank you for sneaking some coffee time with me at #ASTRO25

29.09.2025 06:15 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

Well, literally just passed Spiderman walking down 3rd Street toward Howard so, yep, everyone should get some SF flavor! #ASTRO25

28.09.2025 22:39 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Interesting to see audience answers to "What's the biggest barrier you face in addressing health disparities at work?"
#ASTRO25 #CanSky
Curious what others, not in the room, believe are the barriers

28.09.2025 22:07 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0

In #ASTRO25 session, hearing the phrase, "we need to navigate people" in a session. Finding this phrasing paternalistic. Many individuals want the tools (info & access) to navigate their own experience. Dont tell us what to do, give us our options and risk/benefit profile.

#CanSky

28.09.2025 21:51 ๐Ÿ‘ 3 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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Particularly interesting point in light of the profound SE/challenges many individuals face with endocrine therapy. Discussant cautions, "more long term follow-up needed"
#ASTRO25 #CanSky #OncoSky #breastcancer

28.09.2025 15:26 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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Kicking off Day 2 (or official Day 1) of #ASTRO25 w/ "Breast Science" session. AKA a session highlighting significant breast-related presentations that will be shared at the @astro-org.bsky.social meeting
Theme seems to be "right-sizing" treatments (although presenter still using term de-escalation)

28.09.2025 15:20 ๐Ÿ‘ 2 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0

Is he presenting? Happy to be a hype machine for his research! #ASTRO25

28.09.2025 01:42 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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Forgot to take pics during the economics preso and now learning about Extranodal Marginal Zone Lymphoma and associated conditions
Again, learning all kinds of new things here that I did NOT expect to learn at a Radiation Oncology meeting! #ASTRO25

27.09.2025 23:11 ๐Ÿ‘ 2 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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And, while I didn't expect a liquid biopsy presentation in a radiology meeting, I'm totally here for it! #ASTRO25

27.09.2025 20:13 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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First up on Day 1
Randomized control trial (RCT) for prophylactic rads for ASYMPTOMATIC bone mets showed some interesting results. Will now be moving to Phase 3 study and power for OS benefit analysis
#ASTRO25

27.09.2025 18:27 ๐Ÿ‘ 2 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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Looking forward to learning "all the things" at my first @astro-org.bsky.social annual meeting. Started off on the right note when the woman at registration said, "Thank you for your advocacy. Go patient advocates!" and literally punched the air! ๐Ÿฅน #ASTRO25

27.09.2025 17:34 ๐Ÿ‘ 34 ๐Ÿ” 1 ๐Ÿ’ฌ 3 ๐Ÿ“Œ 1

Never selfish to need a hug ๐Ÿ’— You deserve hugs

10.09.2025 22:16 ๐Ÿ‘ 2 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

{hugs} my friend ๐Ÿ’—

10.09.2025 19:53 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

Looking forward to this conversation on Thursday.
Ultimately, we want to strengthen the role of advocates in the oncology space โ€” ensuring that individuals' lived experiences and professional expertise can help shape the future of research and healthcare. #CanSky #OncSky

08.09.2025 17:01 ๐Ÿ‘ 8 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 1

For those individuals who somehow remain confused or offended by the term "white privilege" - THIS โฌ‡๏ธ

If someone "looks Latino" the government can detain them.
White people don't have to worry about that and THAT lack of concern is a "privilege" in this country today.

08.09.2025 16:48 ๐Ÿ‘ 2 ๐Ÿ” 1 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0