Covid Longhaulers Podcast

The Sick Times "We need more at-home clinical trials for Long COVID. Here’s how we designed the largest one yet." Article about the fully remote clinical research study (US residents only) for Long Covid patients. The study will analyze whether the drug tirzepatide can help reduce symptoms. Article | Register for trial

The Sick Times @thesicktimes.org : "we need more at-home clinical trials for Long COVID. Here’s how we designed the largest one yet"

thesicktimes.org/2025/10/30/w...

Register for trial
longcovid.scripps.edu/locitt-t/

Screenshot from latest Science for ME weekly update

#LongCovid #PASC

Teen saved family members with Covid-19 from early-morning fire Bianca Rivera, 19, quickly evacuated her family, who didn't realize the house was on fire after losing their sense of smell due to Covid-19.

🚨 Reminder to Americans as we "fall back": check your smoke alarm batteries if you lost / have a diminished sense of smell due to covid.
1-22-21 ⬇️
"Bianca Rivera, 19, quickly evacuated her family, who didn't realize the house was on fire after losing their sense of smell due to Covid-19."
#longcovid

To My Unmasked Friend in the Fifth Year of COVID I’m going to be honest with you, because I love you, and you deserve nothing but honesty. I’m going to try really hard not to be angry…

1/
"The reality is that we have been living in this deeply flawed landscape of 'personal choice', & you’ve made yours":

annabookwriter.medium.com/to-my-unmask...

🚨 Attention🚨

Research shows that poor ventilation and elevated CO₂ can slow decision‑making, reduce focus and even decrease output.

👉 Want to dig deeper? shh-uk.org/high-co2-... or link in bio.

#WorkplaceWellbeing #SafeAir4All #Longcovidawareness #longcovid

Bright orange background with ghost and bat illustrations over a haunted village skyline. Tilted white text reads “The management meds that were supposed to help tanked their baseline.”

The management meds that were supposed to help tanked their baseline.

#CovidIsntOver #CovidLongHauler #CovidisNotOver #MECFS

Clinical Care Guide on a tablet screen, highlighting Chapter 7 on managing orthostatic intolerance in ME/CFS and Long COVID.

October is POTS Awareness Month, a time to spotlight BHC resources. Our Clinical Care Guide includes a full chapter on orthostatic intolerance (OI) & dysautonomia, core features of #POTS.
Download ➡️ https://batemanhornecenter.org/clinical-care-guide/ (navigate to chapter 7 for info on POTS & OI)

Orange background with playful Halloween doodles and white sparkles. Handwritten, bold black text reads “His workplace told him to come in anyway after testing positive for COVID.”

His workplace told him to come in anyway after testing positive for COVID.

#CovidIsntOver #CovidLongHauler #CovidisNotOver #MECFS

Purple background featuring a glowing green cauldron with a jack-o’-lantern face. The text above is bright green and reads “The doctor explained that her test results were normal.”

The doctor explained that her test results were normal.

#onesentencehorror #LongCovid #MECFS #ChronicIllness #CovidIsntOver

A photo of a person dressed as a ghost wearing black sunglasses, standing against a muted gray-blue background. Large white “BOO!” text and “Migraine Aura”.

Migraine Aura.

That's it, that's the sentence.

#onesentencehorror #LongCovid #CovidIsntOver #MECFS

Beige background with spider webs, bats, and a spooky village silhouette. Orange text reads “Their family refuses to take a COVID test.”

Their family refuses to take a COVID test.

#onesentencehorror #LongCovid #CovidIsntOver #MECFS

The Long COVID Treatment Trial – Tirzepatide (LoCITT-T) is now open for enrollment for people with Long COVID in all states but Hawaii (due to concerns about maintaining temperature control in shipping), DC, and PR:
longcovid.scripps.edu/locitt-t/?ut...

SARS-CoV-2 spike triggers TLR7-dependent endolysosome dysfunction and senescence in human astrocytes - Journal of Neuroinflammation SARS-CoV-2 infection is associated with long-lasting neuropsychiatric and cognitive symptoms, collectively referred to as neuro-PASC. Emerging studies indicates that accelerate brain aging and cellula...

University of North Dakota researchers found that the SARS-CoV-2 spike protein drives brain cell aging by triggering TLR7 in human astrocytes.

This could explain lingering neurological symptoms in long COVID.

jneuroinflammation.biomedcentral.com/articles/10....

They ran out of electrolytes.

#onesentencehorror #LongCovid #CovidIsntOver #MECFS

Beige background with spider webs and bats in the corners. Centered brown-orange text reads, “Her smartwatch gave her a high heart rate notification while sitting.”

Her smartwatch gave her a high heart rate notification while sitting.

#onesentencehorror #LongCovid #CovidIsntOver #MECFS

White background with ghost illustrations. Playful but anxious text in black cursive says “The CO₂ levels in the windowless room were over 1600 ppm.” The ghosts’ expressions amplify the eerie tone.

The CO₂ levels in the windowless room were over 1600 ppm.

#onesentencehorror #LongCovid #CovidIsntOver #MECFS

A Halloween-themed graphic with a beige background, spiders, ghosts, and a witch silhouette. In the center, bold orange text reads “The nurse washed her hands in front of him, but didn’t wear a mask.”

The nurse washed her hands in front of him, but didn’t wear a mask.

#onesentencehorror #LongCovid #CovidIsntOver #MECFS

Purple haunted-house scene under a full moon with bats flying. Yellow text overlaid in a playful handwritten font reads: “She talked on the phone with her bestie, forgetting about the inevitable PEM crash that would follow.”

She talked on the phone with her bestie, forgetting about the inevitable PEM crash that would follow.

#onesentencehorror #LongCovid #MECFS #CovidIsntOver

Blue and white banner with "Emerge Australia" logo on the left. Text reads "From stigma to science: educating for change. ME/CFS and long COVID Action Forum.

Welcome to Emerge Australia’s #mecfs and #longCOVID Action Forum event in Parliament House, Canberra, today. Our event, “From stigma to science: educating for change” is live streamed. You can register here: us02web.zoom.us/meeting/regi...

We will be live posting on this thread. 🧵

Episode 14 - Twists, Turns, and Crashes (Part 2)

🚨 New episode just dropped: Twist, Turns, & Crashes: Part 2. 🚨
Noah returns for a discussion on the grief of losing athletic dreams.

Spotify: open.spotify.com/episode/0mIj...

Apple: podcasts.apple.com/us/podcast/c...

Transcript: covidlonghaulerspodcast.substack.com/p/transcript...

#LongCovid

Experiences with Doctors - ME & Long Covid Thank you for taking the time to share your experience. I am writing a novel about ME & Long Covid, and I would like to include real voices from the community to make sure the story reflects lived…

💙 Call for contributions 💙

For the book about #ME & #LongCovid we'd love to include real voices from the community about experiences with Drs

The form is short & anon

Every story matters 💙

forms.gle/jSCvZN39xAum...

A long-term ketogenic diet causes hyperlipidemia, liver dysfunction, and glucose intolerance from impaired insulin secretion in mice Although a keto diet limits weight gain and evokes weight loss in obese mice, it impairs metabolic health in males and females.

A warning for those pursuing a ketogenic diet for their Long C-19

👇🏻👇🏻👇🏻👇🏻

www.science.org/doi/10.1126/...

Cambridge hospital’s mask upgrade appears to eliminate Covid risk to staff Hospital infection study shows use of FFP3 respirators at Addenbrooke’s ‘may have cut ward-based infection to zero’

We have been living with unnecessary infections in hospitals for years. Ffp3 respirators work. They do outside too! No need to keep catching covid and risking #Longcovid. www.theguardian.com/world/2021/j...

Long-term influence of pediatric long COVID syndrome on the visual perception and neuropsychiatric symptoms Long COVID presents with a wide range of persistent symptoms and durations following COVID-19 infection. However, data on children and adolescents remain limited. This study aims to explore visual per...

Neuropsychiatric symptoms, impaired visual perception, and gray matter volume differences are evident in pediatric long COVID cases. The severity of neuropsychiatric symptoms during the acute phase may predict the degree of chronic-phase brain volume alterations.

www.pedneur.com/article/S088...

✨ Did you know Long COVID can impact every part of the body?

The Lancet documented 203 symptoms across 10 body systems, and the average patient reported 56 different symptoms across 9 systems.

Long COVID: Diabetes drug metformin may reduce risk by 64% Starting the diabetes drug metformin within 90 days of SARS-CoV-2 infection decreased the risk for developing long COVID by 64%, according to a new study.

If you can’t take Paxlovid, Metformin is another great alternative to help prevent Long Covid. www.medicalnewstoday.com/articles/com...

Studies show SARS-CoV-2 lingers in the gut of Long COVID patients for months, even over a year.

Their gut microbiome also differs significantly from those who fully recovered.

Cognition and Memory after Covid-19 in a Large Community Sample | NEJM Cognitive symptoms after coronavirus disease 2019 (Covid-19), the disease caused by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), are well-recognized. Whether objectively measurable...

Catching SARS-Cov-2 reduces IQ.

The IQ drop is measurable even in asymptomatic covid infections where the person doesn't identify as having long covid (in other words they do have long covid but don't realise it)

Study: www.nejm.org/doi/full/10....

World map background with text: "INTERNATIONAL COLLABORATION ME/CFS & Long COVID Education." Logos of Bateman Horne Center and Emerge Australia. Text: "Collaborating to improve global support for individuals with ME/CFS, Long COVID & IACCs."

Back in May, we partnered with @emergeaustralia.bsky.social  🌍
Now we’re highlighting the powerful tools that came from it.

These free education modules help you:
✔️ Understand PEM
✔️ Recognize orthostatic intolerance
✔️ Build a pacing plan

Explore them now: https://emerge.org.au/lea-ea-bhc/

Caregiver Support Call | Me Actions For caregivers of people with myalgic encephalomyelitis (ME), Long COVID, and associated conditions. 1:30pm ET — 3:30pm ET https://us06web.zoom.us/j/85408999115?pwd=TejiJCpLPv0tNIKECl1na4G25bPfT8.1

MEAction welcomes caregivers of people with chronic diseases such as ME, Long COVID, MCAS, etc. to an international support group on Sat 20 Sep, 8.30 pm GMT [held 3rd Sat each month]
tinyurl.com/2np2tw2x

A circular diagram listing PEM symptoms

A diagram of the human body listing symptoms of Me

We’re particularly proud of the diagrams featured in this paper, which include a review of common symptoms of #MECFS and of PEM, its pathognomonic symptom. (4/)