Ilene Ruhoy MD PhD

I’ve ordered it for a patient. I’ll let you know.

We should all be this angry.

The gaslighting by government officials elected to protect our democracy and our lives terrifies me. When will this lunacy end and at what cost?

www.mdpi.com/books/reprin...

ME/CFS, Long Covid, and Rapamycin YouTube video by Unraveled: Understanding Complex Illness

Just a reminder that our Unraveled episode discussing Rapamycin, Long Covid, ME/CFS is now online:

www.youtube.com/watch?v=W_aw...

@ruhoy.bsky.social just found you from the Bendy Bodies podcast! Wow, mind blown, I learned so much!! Thank you, ordering your book now!!

Misunderstood and Misdiagnosed: A New Look at ME/CFS YouTube video by National Headache Foundation

Talk with @ruhoy.bsky.social Do Not miss that!
Misunderstood and Misdiagnosed: A new Look at ME/CFS
#Septad #MCAS #Dysautonomia #POTS #OI #ConnectiveTissue #EDS #hEDS #CCI #SmallFiberNeuropathy #Autoimmunity #Infections #Sibo #LongCovid #LongLyme #LongSomething

youtu.be/kmrUpXZel9A?...

And a forever neurodegenerative problem

Maybe you could share this, I would appreciate it: #documentary #ChronicallyIgnored
@kaufmanmd.bsky.social @ruhoy.bsky.social @cortjohnson.bsky.social @davetuller1.bsky.social @owasow.bsky.social @ahandvanish.bsky.social @irishmecfsassoc.bsky.social @meactnet.bsky.social @remissionbiome.bsky.social

Ditto what David said!!

Post from Unraveled: Understanding Complex Illness - YouTube NEXT LIVE (Ask Us Anything) DATE: MAY 10th, 11 am PDT Link: https://us06web.zoom.us/j/88560709706?pwd=QPz5YjGQTHI9hXmyzmZ49rZjp9HlIG.1 Bring your questions, ...

youtube.com/post/UgkxSZf...

Our next Ask Us Anything! May 10th.
@kaufmanmd.bsky.social

New: A 64-page HHS restructuring proposal outlines sweeping cuts to US public health. Here it is, in its entirety.

Kiss research goodbye for CFS, Covid, other emerging infections and the rapidly expanding (and devastating) world of Infection Associated Fatiguing Illnesses.
More murder. RFK and Trump have blood on their hands, not that they give a shit.

insidemedicine.substack.com/p/new-a-64-p...

The Spike Protein, the Extracellular Matrix (ECM) and the Gut Barrier: Recruiting an Army of Pathogens The Spike/ECM interaction disrupts the intestinal barrier allowing in an army of pathogens: Further evidence that COVID may, ultimately, be a connective tissue disease.

Long Covid is a connective tissue disease.

open.substack.com/pub/wmcresea...

I have so much fun chatting with David about every topic under the sun related to complex disease. We laugh, we cry, we pontificate. Subscribe today!!

Post from Unraveled: Understanding Complex Illness - YouTube RESCHEDULED!!!!!! We are sorry about having to cancel the last LIVE. But we have rescheduled for Sunday, March 23rd at 11 am PACIFIC (PST). Here is the link:...

youtube.com/post/UgkxlGf...

@kaufmanmd.bsky.social

Post from Unraveled: Understanding Complex Illness - YouTube We've scheduled our next "Ask Us Anything" on March 15th for one hour at 11 am PST. We love to interact with subscribers and patients and loved ones of patie...

@kaufmanmd.bsky.social and I scheduled our next live Q&A session.

youtube.com/post/UgkxplE...

My patients have a far greater chance of central causes of their sleep apnea than obstructive airways.

Also transforming mast cell reactivity in those with MCAS. Not yet clear if it’s direct effect on mast cells or indirect from its effect on glucose regulation.

Had so much fun chatting with Dr. Bluestein on her podcast!! @hypermobilitymd @humancontentpods

drive.google.com/file/d/1nfGw...

Venous Congestion with EDS Webinar YouTube video by Venous Congestion Committee

#JugularVenousCongestion #Neurology #Neurosurgery #LeadingExperts #CTD #EDS #MCAS
I thank those who crowdsourced to make this happen. Thank you to these passionate souls for your research and dedication. #Neurologists needs to see this.
@ruhoy.bsky.social
@kaufmanmd.bsky.social
#Medical#Webinar

Still time to register.

Clinical Approach to Post-acute Sequelae After COVID-19 Infection and Vaccination The spike protein of SARS-CoV-2 has been found to exhibit pathogenic characteristics and be a possible cause of post-acute sequelae after SARS-CoV-2 infection or COVID-19 vaccination. COVID-19 vaccine...

Spike persistence

pmc.ncbi.nlm.nih.gov/articles/PMC...

“…spike protein is a highly persistent, potentially pathogenic substance that may incite inflammation and tissue damage in almost all organ systems…”

Air pollution and brain damage: what the science says Epidemiological studies have linked dirty air to dementia and other brain disorders. Now researchers are trying to determine how pollutants do their damage, and how much harm they cause.

www.nature.com/articles/d41...

Small Intestine Bacterial Overgrowth YouTube video by Unraveled: Understanding Complex Illness

Podcast we recorded on SIBO just posted. Subscribe today.
youtu.be/x12FV7DdR7w?...

Great episode. I love listening to @kaufmanmd.bsky.social & Dr Ruhoy, not always because they always have great info, but their style of communicating is so fun!

TICK BORNE DISEASE YouTube video by Unraveled: Understanding Complex Illness

New video on tick borne disease posted. Subscribe today to our YouTube channel #Unraveled www.youtube.com/@Unraveledpod. @kaufmanmd.bsky.social

youtu.be/kUdt4-jkBRM?...

Frontiers | Comorbidities and neurosurgical interventions in a cohort with connective tissue disorders

www.frontiersin.org/journals/neu...

Welcome! You are invited to join a webinar: Venous Congestion with EDS Webinar. After registering, you will receive a confirmation email about joining the webinar. Join us on February 2nd at 6 pm pm ET on Zoom for a webinar about venous congestion with a focus on EDS. This event will include a presentation from Dr. Ferdinand Hui, a panel discussion with some of ...

Venous congestion and #EDS webinar February 6th at 6 pm EST . Register here: bit.ly/vcweds

Great article. Need more research in to the causes and physiologic associations of chronic pain such as autonomic dysregulation which can lead to better understanding, insight, compassion, and treatment for patients.