@mecfssd
ME/CFS San Diego, a 501c3 public charity, is working locally to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to help educate healthcare workers and researchers, to increase access and support for ME/CFS patients.
The study shows that being in all four groups is the standard, not the exception! The four distinct clusters (Brain, Vegetative, Gut, Immune), have a "bridging phenomena" where symptoms like GI issues or breathing difficulties link the groups together.
Four ME/CFS clusters PREPRINT: www.researchsquare.com/article/rs-8... found that ME/CFS symptoms naturally group into four distinct clusters: Brain (cognitive, sleep, and sensory symptoms), Gut (digestive issues), Immune (infection‑related symptoms), and Vegetative (autonomic/dysautonomia symptoms).
www.nature.com/articles/s41... 7T MRS study identified distinct neurochemical signatures in ME/CFS and LC. ME/CFS patients showed elevated brain lactate, while LC patients showed reduced choline highlighting the variability of brain chemistry & the need to study these conditions as separate groups.
www.acpjournals.org/doi/10.7326/... A LC trial found 2 weeks of Metformin or Ursodeoxycholic acid did not increase recovery at 8 weeks, suggesting short immune-modulating treatments may not rapidly reverse ME/CFS though this does not rule out different approaches being tested in ongoing rials.
New DfE draft guidelines: Families of children with ME/CFS, POTS, MCAS, and PANS/PANDAS are encouraged to provide feedback. Survey: consult.education.gov.uk/medical-cond...
Upcoming Solve ME/CFS webinar Apr 28, 2026, 6 PM ET: The Discovery of Target Antigens for Dysfunctional T Cells in ME/CFS and Long COVID. Researchers are studying microbial and human protein fragments that may trigger dysfunctional T cell responses.
us02web.zoom.us/webinar/regi...
Mass ME/CFS and FM March newsletter:
massme.monkeypod.io/mailcoach/we...
Emerge Australia directory of practitioners and services that may help with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID. Listings may be based on training, recommendations, self-listing, or related care.
directory.emerge.org.au
Medscape: ME/CFS patients show abnormal biological responses to exercise, including disruptions in immune, metabolic, and neuromuscular protein pathways that correlate with symptom worsening such as post-exertional malaise.
www.medscape.com/viewarticle/...
Solve M.E. webinar: Andrew Kantor explained legal and insurance strategies for caregivers of people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), including long-term disability insurance and care planning. Recording:
www.youtube.com/watch?v=uNCd...
Health Rising: New findings from the NIAID-funded IMPACC study suggest Long COVID may involve damage to tiny blood vessels that limits oxygen delivery to tissues. Patterns overlap with ME/CFS and may help explain post-exertional malaise.
www.healthrising.org/blog/2026/03...
I am sorry you are going through this. I do think we are at a more hopeful time then we have ever been with more governments, clinicians, and researchers aware and learning about ME/CFS. But we are still fighting inertia, misconceptions and scams. directory.emerge.org.au might help?
The One Big Beautiful Bill Act will make ACA coverage harder for people with chronic illness, including ME/CFS. More paperwork, lost provisional eligibility, shorter enrollment, higher premiums, and Medicaid work requirements increase gaps and financial risk. www.ama-assn.org/health-care-...
Cost of Indifference: quillette.com/2026/02/22/t... This Quillette article reviews ME/CFS history, neglect, underfunding, and growing biological evidence that it is a serious multi-system disease.
Action for ME Pediatric Zoom Event: Registration (international welcome) is open for Action for ME’s Breaking Isolation workshop for children aged 8–13 on Thursday 19 March 2026, 4–5:30 pm UK time.
www.eventbrite.com/e/breaking-i...
Australia’s RACGP ME/CFS Guideline Criticism: The RACGP HANDI guideline recommending incremental exercise for ME/CFS relies on flawed evidence, including the controversial PACE trial, and ignores the defining feature, PESE/PEM, raising concerns about potential harm.
www1.racgp.org.au/ajgp/2026/ma...
Norway’s BPS Guideline: Norway’s draft guideline merges long-term fatigue with ME/CFS within a biopsychosocial framework, which critics say conflates a symptom with a distinct disease and risks misdiagnosis and poor treatment.
virology.ws/2026/03/02/t...
A German cohort study of 221 hospital employees who had COVID-19 found ~3.2% developed ME/CFS one year later. Because some symptomatic participants dropped out or weren’t evaluated, the true rate may be higher.
www.mdpi.com/1648-9144/62...
Long Covid Advocacy & Action for ME advocated against Dr Alastair Miller running a BPS-based GP course on ME/CFS Diagnosis & Management for Pulse Today. Dr. Miller’s talk is currently removed from the Pulse Today website and event agenda.
Announcement poster featuring headshots of the 2025-2026 ME/CFS San Diego UCSD Student Essay Contest winners: Ariana Lyman (First Place), Nicholas Lam (Second Place), and Vivian Tran (Third Place), alongside an informational about ME/CFS and a 1st place pen awarded along with the cash prizes.
UC San Diego students have been recognized, by ME/CFS San Diego, for their innovative essays advancing awareness and care for ME/CFS.
First Place: Ariana Lyman
Second Place: Nicholas Lam
Third Place: Vivian Tran
Read the winning essays and learn more: www.mecfssandiego.com/MECFSSD-UCSD...
Antibody-Driven PEM Study
This study shows specific IgG antibodies in ME/CFS, including post-COVID cases, can damage endothelial cells and affect cellular health: www.sciencedirect.com/science/arti...
PEM Study Leonard Jason Lab
Katherine Tuzzolino found nearly 80% of ME/CFS patients experience both physical and mental post-exertional malaise, with modest subgroup differences: journals.sagepub.com/doi/10.1177/...
Find U.S. clinicians who treat ME/CFS patients, with ratings and reviews, at the AMMES Physician & Clinic Database: ammes.org/physician-an...
The Kelsey is creating affordable, disability-focused housing, starting with 115 units in San Jose. Designed for independence, social connection, and accessibility, the program is expanding nationally: www.nytimes.com/2026/02/20/r...
Join @openmedf.bsky.social Journal Club March 11 at 11am ET to review the Long COVID immune activation study by Dr. Jonas Bergquist et al. Zoom registration: us02web.zoom.us/webinar/regi...
Submit questions: docs.google.com/forms/d/e/1F...
@openmedf.bsky.social Research New research shows persistent immune activation in Long COVID nearly 3 years after mild infection but no spike protein, with patterns similar to ME/CFS symptoms like fatigue and post‑exertional malaise. www.frontiersin.org/journals/imm...
California ME/CFS Resolution
Correction: California did pass a resolution recognizing ME/CFS May Awareness Month/Day in 2017. Mark Camenzind worked with legislators: leginfo.legislature.ca.gov/faces/billTe...
Infographic illustrating various items like a wheelchair, hearing aid, social media logos, smartphone, glasses, packaged vegetables, headphones, subtitled TV, AI chip, and various app icons, all captioned as accessibility aids.
Many people think of AI and social media as lazy distractions or shortcuts. For many disabled people, they’re powerful accessibility tools, helping us communicate, organize, and connect in ways that wouldn’t be possible otherwise.
Before new Medicaid work requirements, states must spend millions on upgrades. Guidance on who qualifies as medically frail is expected June 1, 2026. apnews.com/article/medi...
Starting March 7, SSA will implement updates to improve efficiency and access. www.silive.com/news/2026/02...