Retired journo and charity communications specialist. Proud dad and grandad. Very much an Oddfellow. Soft spots for the @MEAssociation.org.uk and all things @MillMedia.bsky.social Incidentally, I ❤️ #Tasmania.
Unbeliever (political & religious), Wales rugby, #c4news, porridge, tea, #MEcfs
'Obvious but wrong'
Also JTJ on the other place
https://johnthejack.com
The MRC WIMM is a research institute at the University of Oxford with 5 core research areas: rare diseases, haematology, immunology and infection, stem cells and developmental biology and cancer biology.
www.imm.ox.ac.uk
Researching “the greatest medical scandal of the 21st century”. Infection-Associated Chronic Illness, activism, stigma, medical humanities. Postdoctoral fellow in Sociology.
Providing support & holistic healthcare services to people of all ages affected by #MECFS. Charity number: 1036419 / SC040452
Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Ph.D. in physics, also interested in mathematics, science theory, and history. Follows research on ME/CFS.
Stockholm, Sweden
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak.
I care.
Ⓐ💚, (FR/DE/EN, but posts in english)
Clinging onto the ledge above the abyss.
Mild-mannered author | chronically hopeful | https://linktr.ee/henry.anderson
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 decodeme.ed.ac.uk
An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe
(charity nr. 1153730)
www.investinme.org
ME researcher at the University of Edinburgh.
Europhile 🏳️🌈, lived in 🇬🇧🇮🇹🇨🇼🇧🇪 🇧🇩. Dedicated follower of science. Former textile engineer, now a Mgmt consultant. I believe in believing people.
UK 42 year old mum of preteen, had ME since early 20’s and I am a Specialist ME Physiotherapist www.mephysio.org.uk
Precision medicine for complex diseases. Creating better, more personalized diagnostics & treatments for unmet medical needs.
Join us for world-leading AI-led science, healthcare, diagnostics, & drug development.
staff writer at The Atlantic, covering science. former microbiologist / forever cat enthusiast. (she/her) SIGNAL: @katherinejwu.12
Global Health Correspondent for The Independent 🌎
Before: The Bureau of Investigative Journalism, BBC News + World Service ✍️ 📻 📺
Get in touch: rachel [dot] schraer [at] independent.co.uk or on Signal @rachelschraer.01
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Health & disability. Science. Eco things.
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk
Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
Speaking up for everyone affected by severe/very severe ME.
#MEKills #MaeveInquest #LongCovidME
backstory https://x.com/swastrosarah?lang=en-GB #PlanForME #JusticeForME
ME is much more than chronic fatigue; it kills every year.
https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history.
Nature lover🐦, peace seeker, gentle soul. From engineer to psychology graduate. Now more husk than human🐌: Housebound Pw #MECFS #PoTS #CPTSD #Menieres
Climate scientist at the National Centre for Atmospheric Science, University of Reading | IPCC AR6 Lead Author | MBE | Views own | https://edhawkins.org
Warming Stripes: http://www.ShowYourStripes.info
I had a marvellous time ruining everything.
Scientist. Ex-President of @Humanists_UK Lecturer in Genetics @UCL
Genetics, race, eugenics, books, cricket, +–=÷×
@kbjmanagement
adamrutherford.com
Professor of Alcohol Policy in the Sheffield Addictions Research Group (@SARG-SCHARR), graph drawer, data botherer, cake eater, incompetent cyclist and intermittent birder.
Columnist and chief data reporter the Financial Times | Stories, stats & scatterplots | john.burn-murdoch@ft.com
📝 ft.com/jbm
FT columnist, BBC journalist, author, host of Cautionary Tales, professional nerd.
"Far too nice to be a journalist," per Terry Pratchett. Lead writer on Semafor's Flagship newsletter. DMs open; chiversthomas(a)gmail.
Latest book, Everything is Predictable: geni.us/EIPBook
Podcast, The Studies Show: https://www.thestudiesshowpod.com
Epidemiologist. Research Fellow. Doctor of Spreadsheets. Writer (Slate, TIME, Guardian, etc). PhD, MPH. Host of senscipod Email gidmk.healthnerd@gmail.com he/him. Find my writing on Substack and Medium.
— Founder of Our World in Data
— Professor at the University of Oxford
Data to understand global problems and research to make progress against them.
ME patient advocate, architect by training
Increasingly grumpy `healthy control’ research participant.
Working to develop a way to involve patients and the public in designing health research (e.g. trials) from the earliest stage.
Increase relevance, reduce bias, (and my grumpiness)
Academic background: Comparative Literature (European 19th c)
Bluesky focus: LC/ME, Russian invasion into Ukraine, Arts/Culture
Founder & CBIO @precisionlife.bsky.social, NED @dhcwales.bsky.social & STFC Innovations Limited. Former Juror for Cartier Women's Initiative.
Interests #bio #diversity #ai #techbio #climate #precisionmedicine #digitalhealth personal account
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change.
RPs do not necessarily mean endorsement.
https://linktr.ee/meassociation
Occasional drag queen in verse. Writer, performer, educator, activist Adam Lowe (he/his) as possessed by Beyonce Holes (she/her).
Professor of Immunology, Imperial College London. Editor of OUP Oxford Open Immunology. Co-author - Penguin Long Covid Handbook. Discusses: Covid-19, Long Covid, T cells, immunogenetics and HLA, respiratory infection, science policy, arboviruses, C19th lit
We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
Occasional science reporter at The Washington Post and elsewhere. Disabled by complex chronic post-viral illness. Living on #Kauai #Hawaii. Sometimes […]
🌉 bridged from https://sciencemastodon.com/@brianvastag on the fediverse by https://fed.brid.gy/
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise physiology/ME/Longcovid/EDI/all views my own
she/her
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
Patient-Led Research for #LongCovid! http://patientledresearch.com
Researching the cell biology of ME/CFS since 2016, now also Long COVID and PD. Papers: https://scholars.latrobe.edu.au/d2missailidi/publications
Science, Molecular Biology, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us.
This account is maintained on a part-time basis by patients.
2001 PVFS 'Recovered' to 90% by 2006. Sepsis 2013 resulted in M.E. / relapse. Brain/fitness not 'what it used to be'. Beloved Lisnakill Myles-Happy Hound himself 🌈
Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
Mum to 24yo daughter with #ME #PoTS #MCAS | Wife to husband with #LongCovid | Usually found on a soapbox trying to right wrongs | #MillionsMissing | #DecodeME
US ME patient advocate. Mother of a son and his wife who have ME and Long COVID. My other focus is on US politics and what's coming
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
#Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research
NB: Posts are not advice
RCN 20100254
CHY 22039
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
NYT columnist. Signal: carlzimmer.51
Newsletter: https://buttondown.com/carlzimmer/
Web: http://carlzimmer.com
[This account includes a tweet archive]
News, interesting information and commentary on ME/CFS.
Physicist, education researcher, gardener, bird watcher/photographer, chronic illness/ME
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him
📷 Canon R6mkii + RF 800mm
Edyong.me
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
Animagus. Hearty but not hale. Celebrant of beautiful action. Likes bicycles. Note: The only time I post with my real name is in scientific journals. Kaurna Country. She/Her.
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 31 years.
@IrishMECFSAssoc trustee 28 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app
