Our new #preprint on @researchsquare: A nonrandomised feasibility evaluation of a home‑based intervention for parents of adolescents with learning disabilities, with or without autism www.researchsquare.com/article/rs-8...
@kingslsm.bsky.social
Our new #preprint on @researchsquare: A nonrandomised feasibility evaluation of a home‑based intervention for parents of adolescents with learning disabilities, with or without autism www.researchsquare.com/article/rs-8...
@kingslsm.bsky.social
Let’s make care better for gender diverse young people – your voice matters.
🔗Take the survey: buff.ly/Or9cup9
📣Please help us get as many voices heard as possible and share this post.
The other aspect of this story is, academics and NHS staff could and would have done this better and essentially for free if they were given the same data access as Faculty, but they are not allowed it. Government policy is deliberately to frustrate pro bono / non-profit health data research.
Please share the Youth Gender Diversity PSP survey with your colleagues, patients, and their carers so their questions about gender dysphoria/incongruence are heard and represented in the future. Survey now open: buff.ly/CRZUinI
Amid fierce criticism, I spoke to critics & triallists about the puberty blocker trial, putting methodological & ethical concerns to researchers & Hilary Cass for @bmj.com. They describe clinical context, challenge criticism & say studies are necessary. (open access)
www.bmj.com/content/391/...
🎤NEW✍🏽 James Lind Alliance Survey
Help pick top 10 research questions for children & young people (upto 25 years old) with gender incongruence/dysphoria
2 versions:
Young People/parents app.onlinesurveys.jisc.ac.uk/s/jla/youth-...
Public & Professionals
app.onlinesurveys.jisc.ac.uk/s/jla/youth-...
A special collection of 6 papers on cohort studies in China is just out in @bmj.com www.bmj.com/collections/...
with an editorial on the collection and the current publication climate www.bmj.com/collections/...
@rcpch.bsky.social @nihr.bsky.social @nhsengland.bsky.social
No one understands the issues related to gender diversity better than those with lived experience, their parents/carers and the professionals who work with them.
Share your views to help ensure that research focuses on what matters most: buff.ly/lGw3Zp8
Please RT/ share..
the core purpose of our PSP is better care for children and young adults with gender dysphoria/incongruence and we want to hear from people with a range of experiences/ views.
Please RT/ share..
the core purpose of our PSP is better care for children and young adults with gender dysphoria/incongruence and we want to hear from people with a range of experiences/ views.
@nihr.bsky.social , @nhsengland.bsky.social
🎤NEW✍🏽 James Lind Alliance Survey
Help pick top 10 research questions for children & young people (upto 25 years old) with gender incongruence/dysphoria
2 versions:
Young People/parents app.onlinesurveys.jisc.ac.uk/s/jla/youth-...
Public & Professionals
app.onlinesurveys.jisc.ac.uk/s/jla/youth-...
thanks for helping researchers speak up for science and evidence
Dr Michael Absoud, @kingslsm.bsky.social, tells Wired avoiding paracetamol could have adverse consequences for pregnant women: www.wired.com/story/trumps...
Opinion: The more 'expert' you become, the more you think you ought to know, and the more you fear your credibility will suffer if you ever admit otherwise. on.ft.com/4mh4ujK
Socio-Demographic and Health Data of Adolescents Identifying as Transgender or Gender Diverse in the Born in Bradford’s Age of Wonder Cohort., wellcomeopenresearch.org/articles/10-...
Closing on 14th September: parent / carer voice member of the CYP Gender Research Oversight Board
www.england.nhs.uk/get-involved...
Gathering autistic adults’ visual experiences to inform adaptations: a qualitative interview study www.tandfonline.com/doi/full/10....
rebuilding trust in science
I thought this was a great article outlining the changes to the Covid-19 vaccination program in the USA
Bringing it more in line with current practice elsewhere in the world
www.nejm.org/doi/full/10....
Great new study by on behavioural aspects of ventilation in hospitality venues. Many monitored venues had poor ventilation, but hosts list many barriers to improve - tho some venues attempt to improve following info campaign.
let's see why it's not always simple to ⬆️ ventilation:
or a new study shows that either, or a combination of:
▪️reduced viral emission (bcos air cleaner added several days later from initial readings)
▪️changes to window ventilation
▪️presence of an air cleaner
see below for fag packet calc to show it can't all be due to air cleaner...
www.jla.nihr.ac.uk/priority-set...
Indeed increased awareness & improved detection.. there is a debate to be had re resourcing long waiting lists for broader neurodivergence assessments vs identifying needs for early intervention/support.
Ultimately children's services are always the cinderella of services, particular after pandemic
I do think the majority of public can see through fake causes and fake cures, if enough scientists/ clinicians call it out...
Problem is how can the most vulnerable families and children be safe guarded?
