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09.03.2026 15:48
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Our online community, ME Connected, has over 1,400 members supporting each other and discussing topics ranging from tips and tricks on managing ME/CFS, to our popular book club!
Join today: https://meassociation.org.uk/discord
#pwME #MECFS #LongCovid #PostCovidSyndrome #Discord #OnlineCommunity
We fully support this decision and we’re a writing group.
Please note that some international time zones have changed for Summertime this week and some haven’t.
We run meetings in both PST and GMT, please doublecheck your local time for the next few weeks.
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Can anyone point me to a resource on how sign "Long COVID" in American Sign Language? I've seen various ways from spelling it out, to using the sign for "Coronavirus" or "COVID-19" followed by "Long" or "Stay". I'm curious if there is any official guidance/recommendations. Many thanks 🙏
Well, no, It was Dave Lammy.
Yesterday’s Early Pillows was like taking a virtual walk in a forest. Some extraordinary writing using roots and trees as a metaphor.
You should come and listen. Being in the company of other sufferers is cathartic.
IMAGE DESCRIPTION: An image of a healthcare professional with a device looking up information with the cover of the Spring Edition of ME Medical. The MEA logo (bottom right)
1/3 ME Medical - Spring 2026 Edition has been sent out to healthcare professionals & GP surgeries on our current mailing list
If you'd like to nominate your GP to be added to the mailing list to receive the ME Association's ME Medical magazine, please complete the form via the link (see 2/3)
Whoops, I’ve got until two to write to the prompt.
Thursday 5th March Early Pillows Optional prompt: Roots & Leaves. 2:00 pm GMT.
Thursday 5th March Standard Pillows for all forms of writing 11:00am PST.
pillowwriters.wordpress.com
Are you aware of Professor Chris Ponting at Edinburgh Uni and the PRIME initiative?
Like @meresearchuk.bsky.social ?
Free Zoom meetings for ME/CFS sufferers.
Thursday 5th March Early Pillows Optional prompt: Roots & Leaves. 2:00 pm GMT.
Thursday 5th March Standard Pillows for all forms of writing 11:00am PST.
Friday 6th March Pillow Crafters for people who like to create arts and crafts 11:00am PST.
What do you mean by research foundations?
Iconically Ill presents We Talk ME/CFS and Live Performing with Dan Fishback
Graphic promoting a “Parliamentary Friends of ME/CFS Meeting” with hashtag #FairGoForME. Three speech bubbles clipped to a clothesline read “We”, “need”, “you” in blue, red and green. A banner says “Parliamentary Friends of ME/CFS Meeting – Email your MP”. Logos along the bottom include Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia.
📢 #MECFS needs political attention - and MPs need to hear from us. Email your MP (2 mins!) and urge them to attend the Parliamentary Friends of ME/CFS meeting on 10 March.
Take action 👉 zurl.co/DG4nc
Let’s fill the room. 💙
#FairGoForME #MECFSAllianceAustralia
Can you spare one minute to support children with Long Covid today?
Use our template to write to your MP.
longcovidkids.eaction.org.uk/awarenessday
#LongCovidAwareness #ChildrensRights
@lcawarenessint.bsky.social @longcovidsupport.bsky.social @longcovidphysio.bsky.social @longcovidsos.bsky.social
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Thursday, our favourite day.
Free zoom writing groups for all ME/CFS, Long Covid sufferers. Two different time zones. Join us.
Thursday 26 February
Early Pillows Optional Prompt: Feeling/Meaning.
2:00pm GMT.
Standard Pillows for all forms of writing.
11:00am PST.
pillowwriters.wordpress.com
Do you get red kites?
If you come to an Early Pillows Zoom meeting (Thursdays 2:00 GMT) with your camera and microphone off nobody will bother you.
All meetings are free.
We all have ME/CFS or Long Covid and zero expectations of one another. Most of us are in bed.
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pillowwriters.wordpress.com
1/2: Along with some colleagues, Dr Charles Shepherd, MEA Hon Medical Adviser, will be at a meeting today with the DHSC and NHS England to discuss progress on the preparation of a clinical care pathway for people with mild and moderate ME/CFS.
https://meassociation.org.uk/1w9z
#MECFS #SevereME
Graphic saying 'Helpline Awareness Day. 23 February'
1/3: Today is #HelplinesAwarenessDay2026, a national day dedicated to recognising and celebrating the incredible work of helplines across the UK.
We’re proud to to be members of the Helplines Partnership and stand with them in highlighting the vital support helplines provide every single day.
Free International Writing Groups over Zoom for ME/CFS sufferersz
N.B. Tuesday 24 February Pillow Writers en Español has been cancelled.
Thursday 26 February Early Pillows Optional Prompt: Feeling/Meaning. 2:00pm GMT.
Thursday 26 February Standard Pillows for all forms of writing 11:00am PST.
If you’re looking for writing inspiration, Early Pillows keeps a record of all of its past prompts.
earlypillowwriters.wordpress.com/2025/11/27/p...
Pillow Crafters.
pillowwriters.wordpress.com/2024/11/24/p...
Free Zoom meetings for those with ME/CFS.
Bring an art or craft project you’d like to work on and join us as we get creative, chat and spend time together. No specific art/craft knowledge is needed, no level of proficiency required.
Thursday 19th February Early Pillows Optional Prompt: I wrote a note for you. 2:00pm GMT.
Thursday 19th February Standard Pillows for all forms of writing 11:00am PST.
Friday 20th February Pillow Crafters for people who like to create arts and crafts 11:00am PST.
Welcome to Pillow Writers! A virtual ME/CFS and Long Covid writing community.
Check out the link pinned on our page for more information! #me/cfs#longcovid#writing#myalgicencephalomyelitis#chronicillness
ID: A flier for the event reads, "The Sick Times: Free Webinar, The Long COVID Op-Ed. Help Break the Stigma. February 19th, 7-8:15pm ET. Learn how to pitch and share your story with tips from expert guests. Hosted by Miles Griffis and Betsy Ladyzhets. Below are the headshots of three guests, Torie Bosch, First Opinion Editor, STAT. Madeline Miller, Best-selling author. Funmi Okunola, MD, Co-founder Long COVID the Answers. A button at the bottom reads, "Comment "RSVP" for a registration link!"
Join us for a free webinar! The Sick Times editors @mileswgriffis.bsky.social and @betsyladyzhets.bsky.social — plus special guest speakers — will demystify the process of writing and pitching op-eds and essays on Long COVID. Register now: us06web.zoom.us/meeting/regi...
