“Long Covid patients are being forgotten”
Thank you Dr Susannah Thompson for your continued advocacy work 🙏
www.bbc.co.uk/news/article...
01.03.2026 15:30
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“Long Covid patients are being forgotten”
Thank you Dr Susannah Thompson for your continued advocacy work 🙏
www.bbc.co.uk/news/article...
Abstract submissions for poster presentations at the 2026 International Forum on COVID Rehabilitation Research is NOW OPEN! The deadline to submit is Friday January 30! Share your #COVIDRehab research! Review the guidelines for submission and submit here tinyurl.com/2s3ubuuf
A brilliant performance completes a 3-1 victory on the road! 🙌
Please see the attached images for a press release from @longcovidphysio.bsky.social urging immediate action on the U.K. Covid-19 Public Inquiry findings from Module 2.
Progress to see that early lived experience advice has now been adopted by the #NHS
It needs to go further to reduce risks to patients- avoid exercising for 12 weeks after any COVID infection.
www.nhs.uk/conditions/l...
Proud to contribute frontline testimony to tonight's enraging @itvx.com documentary "The Covid Contracts: Follow the Money".
Boris Johnson's govt squandered £8.7 billion on unusable PPE, while grifters like Michelle Mone made millions.
Tonight, 10.15pm, ITV1.
www.theguardian.com/tv-and-radio...
New publication: Experiences of pacing to reduce symptoms among adults living with Long COVID in Canada, Ireland, the United Kingdom and the United States
doi.org/10.1186/s129...
@longcovidsupport.bsky.social
@lcaireland.bsky.social
@patientled.bsky.social
@longcovidphysio.bsky.social
Published today 📣
Community Engagement in #LongCOVID Research: Process, Evaluation and Recommendations From the Long COVID and Episodic Disability Study onlinelibrary.wiley.com/doi/10.1111/...
Congratulations to our Chair Todd Davenport who has been awarded as a Catherine Worthingham Fellow of the American Physical Therapy Association
We are delighted that Todd’s outstanding work for ME/CFS and LC has been recognised
Thankyou for all that you are & do @sunsopeningband.bsky.social 🙏
This 👇
Again for those in the back:
👏🏼 PEM 👏🏼 is 👏🏼 NOT 👏🏼 deconditioning
Symptoms associated with effort expenditure in #LongCOVID, #MECFS and other energy limiting illnesses are physiological, not “preferential”
Thanks to @RobWust for this incredible work.
www.medrxiv.org/content/10.1...
“Skeletal muscle properties in #LongCOVID and #ME/CFS differ from those induced by bed rest”
Objective science debunking deconditioning theories! 💥 🎤
@patientled.bsky.social
www.medrxiv.org/content/10.1...
@longcovidphysio.bsky.social is pleased to support this essential campaign by @longcovidkids.bsky.social
Better assessment, care, funding and research are urgently needed for the millions of adults and children living with Long COVID and M.E.
#LCandME #FundOurFuture #FundThePlan
Image of letter. Please follow the link for accessible version - https://www.longcovidkids.org/post/open-letter-to-the-rt-hon-wes-streeting-and-ashley-dalton-mp-march-2025
As part of Long Covid Awareness Month, and to mark the fifth anniversary of the first UK lockdown, we have sent an open letter and petition to @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social
#LCandME #FundOurFuture #FundThePlan
www.longcovidkids.org/post/open-le...
Black and while line drawing of a woman lying prostrate on the ground with a pen in her hand who had been run over by a skip lorry with a Covid-19 numberplate and text Call 111. On top of her are piled the contents of the skip including random building rubble and a split bag of dru cement spilling into her mouth and lings, with a steel bar piercing her side and a rod through her leg, and a steel mallet has landed on her head, with start circling rouns. Workplace literature is scattered around, with a brain running away from it. On top of the rubble sits a laptop with text 'Employee performance review" on it. A cat sits next to the woman. On the right of the picture a cat sits next to the woman, observing the departing skip lorry. Black and while line drawing of a woman lying prostrate on the ground with a pen in her hand who had been run over by a skip lorry with a Covid-19 numberplate and text Call 111. On top of her are piled the contents of the skip including random building rubble and a split bag of dru cement spilling into her mouth and lings, with a rail piercing her side, a rod through her leg, and a steel mallet that has landed on her head, with start circling round. Workplace literature is scattered around, with a brain running away from it. On top of the rubble sits a laptop with text 'Employee performance review" on it. On the right of the picture a cat sits next to the woman, watching the skip lorry driving away.
5 years with #LongCovid. This was 2020.
Trying to work through it turned out to be bad idea, in hindsight @longcovidsos.bsky.social
#LongCovidAwarenessDay
Research, support & effective treatments are urgently needed.
Lives, health, careers, education, financial stability, homes & relationships are all being lost.
Anyone can develop #LongCovid
The only way to prevent it, is to stop the spread of #Covid
#LongCovidAwarenessDay
A heartbreaking insight into our reality.
So grateful to everyone involved with this project and in International Long Covid Awareness day
#LongCovidAwareness
bsky.app/profile/long...
We thank everyone who contributed their limited energy to this project & #LongCovidAwarenessDay
We also thank the charities, peer support groups, clinicians & researchers who are striving to help & support people living with this life changing condition
#LongCovidAwareness
Research, support & effective treatments are urgently needed.
Lives, health, careers, education, financial stability, homes & relationships are all being lost.
Anyone can develop #LongCovid
The only way to prevent it, is to stop the spread of #Covid
#LongCovidAwarenessDay
5 years have passed and millions are affected globally
All are still waiting for a cure
#LongCovidAwarenessDay
Scientists are investigating whether anti-viral drugs could provide an effective treatment for LongCovid
“It is vital research for the people who are living with LongCovid now but also the people who will go on to develop LC in the future” @profmarkfaghy.bsky.social
t.co/kfLzV0B0fy
The world has lost a wonderful human being. There are not adequate words to describe the loss & pain so many of us feel today. She did so much for the long covid community & was such an important friend & ally to so many of us. We send love to her family & all who will miss her.
Published today in @plosone.org
“Episodic disability framework in the context of #LongCOVID: Findings from a community-engaged international qualitative study”
@kellyobrien25.bsky.social @longcovidsupport.bsky.social @patientled.bsky.social
journals.plos.org/plosone/arti...
“Achieving return to work remains challenging without proper accommodations”
#LongCovid #EpisodicDisability #PESE #PEM
pubmed.ncbi.nlm.nih.gov/39846207/
Roses are red
Violets are blue
THE RAILWAY TRAIN
GOES ROLLING THROUGH!
#VaiCorinthians
#UpTheCasuals
Thread 🧵👇
Joining the appreciation for all that you are doing Rob Wust 🙏
Recommended read for all HCPs who prescribe exercise and may be seeing people who have #LongCovid, whether in a speciality LC clinic or MSK setting
Wonder how common it is to routinely ask for history of Covid-19 infections, screen for #PEM and ask about response to exercise
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