Thank you for sharing information about breast density! I don’t think any of us were even familiar with it until after diagnosis. I’ve heard many stories similar to mine and, unfortunately, it’s an area where many doctors could use better education as well.
Ew, I’m sorry to hear that. I was on Lupron and Tamoxifen for a while and absolutely hated the side effects so I understand that endocrine therapy is no fun either. Hopefully the targeted pill will be more effective than IV chemo at killing off those rogue cells.
Congratulations!!! IV chemo sucks so that’s wonderful news that you can stick with endocrine therapy. Hopefully the side effects aren’t too awful
I’m an alumni from LBBC’s Hear my Voice advocacy training. I’m also a Metavivor peer to peer leader in my local community, although that’s just getting started.
Thank you so much for sharing this!!! I’m not aware of any conferences besides SABCS and LBBC’s annual conference in the Spring
You’ve been added! Super happy to meet you. I won’t be at #SABCS this year but I’m really excited to see all the new research that’s talked about. Do you go every year with your nonprofit?
Omg no way 😮💨
It’s here!!! @ptarantinomd.bsky.social ‘s yearly abstracts to look out for list from #SABC24! Take note #bcsm Also time to follow this superstar (and super nice guy) if you aren’t already!!!
Sure I’ll add them. Their page looks pretty empty at the moment though, is that the right handle?
Thank you, Dennis! Nice to meet you as well :)
Yes, I have a local FB group and the peer to peer support group I mentioned. The FB group isn’t MBC specific but the peer group is
Thank you! I do have a local metavivor peer to peer support group in the works right now ☺️
Oh that is annoying. I’m sure you have a million pictures like me and sifting through them is such a chore!
Thank you so much for sharing this! Any other #mbc advocates on #cansky or #oncsky / #oncosky?
It took forever to find a good pic of her!
Oh wow, Kali looks exactly like my Chihiro!
Finally an easier-sounding way to get matched with clinical trials! Has anyone tried this yet?
Excited for the SNO Annual Conference this weekend where I will be discussing "Systemic Therapies for Breast Cancer LMD: A Paradigm for Multidisciplinary Coordination"
Intrathecal Chemo is OUT. Systemic Therapies with CNS Bioactivity Are In.
More to come Sunday! #oncsky #bcsm
A blood test that could scan for dozens of cancers at once is being eyed in Congress, as a way to detect cancers earlier, minimize the discomfort of cancer treatments and help patients live longer. #CanSky #OncoSky #lcsm wtop.com/health-fitne...
Ugh same haha
I’d love it if you’d like to share though! I do check from time to time
I’m in the US unfortunately. I do have some community on both apps, I just tend to struggle with my mental health on FB and Insta so I stay away
Awwww I’d love to see Kali! That’s my baby Beau in the pic. He’s 8 months old now. I have two other kitties as well.
Haha I do the same! I was obsessed with the breast oncology researchers when I was first diagnosed. It was the only thing that kept me sane for a while.
*haven’t rewatched it. Ugh the lack of editing sucks
Butler yet but it’s on my list. I also really enjoyed Is It Wrong to Pick up Girls in a Dungeon. Top for me would be HunterxHunter, Yu Yu Hakusho, and maybe Demon Slayer or Spy Family? I’m currently really loving Dan Da Dan. I had a good DnD group for a while but I haven’t played in a couple years
Sorry, I had to take a few days break but I’m back now. Inuyasha was my jam back in the OG Toonami days! I have rewatched it in a long time though so I’m not sure what I feel about it now. I also was obsessed with Pokemon and Sailor moon back in the late 90’s/early aughts. I haven’t seen Black
The reposting of scientific articles and talking about your journey is definitely advocacy! I love to follow any and all accounts that share scientific articles specific to breast cancer
I am on both. I typically don’t look at them often though because they aren’t my favorite platforms to use
Nice to meet you! And same!
