PaPaCarl

Glorious! 💖

Donate to Help Save Paxton's Life: A Rare Genetic Battle, organized by Paul Purdy Paxton's Story: A Rare Genetic Battle Our son Paxton, recently diagnosed… Paul Purdy needs your support for Help Save Paxton's Life: A Rare Genetic Battle

www.gofundme.com/f/donate-to-...

Cure CLCN6 Learn about the impact of the CLCN6 gene mutations as a cause of a rare disease and the potential of gene therapy in treating them.

Non-profit my son-in-law and I established to save my grandson.

cureclcn6.org

Can’t cure stupid. He can kiss his Medicaid goodbye!

This is my grandson Paxton’s special ed class. This is the sublime work done by special ed teachers paid for by the federal funding the Trump Administration is cutting. Please watch.

Remember when America was sane? I miss those days!

Donate to Help Save Paxton's Life: A Rare Genetic Battle, organized by Paul Purdy Paxton's Story: A Rare Genetic Battle Our son Paxton, recently diagnosed… Paul Purdy needs your support for Help Save Paxton's Life: A Rare Genetic Battle

gofund.me/2c2386cd0

Family raises money for son's gene therapy and clinical trial to treat rare genetic mutation Paxton Purdy's parents said he has an ultra-rare neurodegenerative genetic mutation. They hope they can raise enough money to cure it and help children in similar situations.

Story about my autistic grandson, Paxton Purdy, who has a terminal genetic mutation called CLCN6. Now he’s at real risk of losing grants for his life saving gene therapy and for what? So billionaires can have more yachts! I just want to hang my head and cry!

www.cbsnews.com/losangeles/n...

Thank you so much for your caring words! He’s the most loving, sweet, innocent little guy and being so helpless to do anything is Kafkaesque! I just wish I could wave a magic wand and snap the country out of the republican manufactured idiocracy it is!

Family raises money for son's gene therapy and clinical trial to treat rare genetic mutation Paxton Purdy's parents said he has an ultra-rare neurodegenerative genetic mutation. They hope they can raise enough money to cure it and help children in similar situations.

Story about my autistic grandson, Paxton Purdy, who has a terminal genetic mutation called CLCN6. Now he’s at real risk of losing grants for his life saving gene therapy and for what? So billionaires can have more yachts! I just want to hang my head and cry!

www.cbsnews.com/losangeles/n...

Watching my grandson, Paxton, win his race in the Special Olympics helps too!

Love this.

Dropkick Murphys

Warped Tour Long Beach

Exactly!

What if MAGA types weren’t allowed to vote unless they passed a civics test similar to one immigrants have to pass to become citizens. We’d have a healthcare system that could save my beautiful grandson!

Hugs from Paxton’s little friends at a CureCLCN6.org fundraiser.

Child’s Rare Neurodegenerative Disease Fuels Therapy Innovation: Paxton’s Story The Purdy family shares their insights on navigating their child’s rare neurodegenerative disease and their direct involvement in therapy research.

Great story about my grandson Paxton on a very prominent neuroscience website! Please read and share! Thanks!

www.neurologyadvisor.com/features/rar...

Thank you so much!