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HIV Outcomes - Beyond Viral Suppression

@hivoutcomes

We are a pan-European multi-stakeholder initiative focusing on the health-related quality of life of people living with HIV ๐Ÿ”— hivoutcomes.eu

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24.03.2025
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Latest posts by HIV Outcomes - Beyond Viral Suppression @hivoutcomes

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4๏ธโƒฃ new good practices!

Special Support Staff for Young People Living with HIV ๐Ÿ‘‰ shorturl.at/RIrxB

The Fifty over 50 Project ๐Ÿ‘‰ shorturl.at/LW0HU

Access to cardiovascular prevention strategies ๐Ÿ‘‰ shorturl.at/PlHm4

MIMO, a community-based and digital psychosocial support platform ๐Ÿ‘‰ shorturl.at/RHBnW

10.02.2026 11:37 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

@marcangel-mep.bsky.social @mariawalshmep.bsky.social @krzysztofsmiszek.bsky.social @ec.europa.eu @epha-eu.bsky.social

27.01.2026 15:46 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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NGOs are vital to the HIV response - ensuring testing, prevention, treatment, counselling, and peer support.

But their grants have been cut by the EU Commission.

Our MEP Champion, Mr Andriukaitis, asks the question: how do we cover this gap and avoid falling back on the progress we have achieved?

27.01.2026 15:44 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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HIV Outcomes welcomes the new Global AIDS Strategy. As a part of the stakeholders consulted, we appreciate its alignment with our asks: ๐Ÿฅ person-centred care, ๐Ÿ“Š better data & community monitoring, ๐Ÿ‘ฅ strong community leadership with funding, ๐Ÿงฉ social support in HIV care.

๐Ÿ”— shorturl.at/l0gat

22.01.2026 14:42 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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๐Ÿ‘‹ Big welcome to the Cypriot Presidency @cy2026eu.bsky.social

Recently Cyprus has made good progress on HIV prevention & care. Long term care is among its priorities.

HIV policies must include comorbidity prevention, long-term care and combatting stigma.

Read our policy asks: shorturl.at/z6XEZ

16.01.2026 10:16 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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As 2025 comes to a close, thank you to all our partners and colleagues for your collaboration and commitment to improving quality of care and health outcomes.

Wishing you a peaceful holiday season and a great start to the new year.

Weโ€™ll be back soon for our 10-year anniversary.

19.12.2025 14:45 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

@marcangel-mep.bsky.social @rasmusnordqvist.bsky.social @mariawalshmep.bsky.social @vonderleyen.ec.europa.eu @ec.europa.eu @europarl.europa.eu @euractiv.com @politico.eu

09.12.2025 11:06 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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MEPs call for an EU Action Plan on HIV

For the sake of public health, human rights, equality, justice and fair and long term treatment for all, the EU must deliver on its commitment to ending the HIV epidemic by 2030.

Read our press release and see the video: www.hivoutcomes.eu/news/meps-ca...

08.12.2025 15:09 ๐Ÿ‘ 2 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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Last WAD spotlight, less than one week to go! MEP Rasmus Nordqvist (Greens/EFA, DK), passionate activist and human rights supporter and MFF shadow rapporteur, will be offering the closing remarks.

@rasmusnordqvist.bsky.social

๐Ÿ—“๏ธ 10.12.25
๐Ÿ“ European Parliament InfoHub
๐Ÿ”— Register: shorturl.at/J1o0Z

05.12.2025 10:54 ๐Ÿ‘ 2 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Weโ€™re honoured to have Christine Stegling, UNAIDS Deputy Executive Director, delivering the keynote at our World AIDS Day event. She will share UNAIDSโ€™ vision for the future ahead of the upcoming 2026โ€“2031 Global AIDS Strategy.

๐Ÿ—“๏ธ 10.12.25
๐Ÿ“ European Parliament InfoHub
๐Ÿ”— Register: shorturl.at/J1o0Z

03.12.2025 15:04 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Community-led HIV responses save lives.

Magdalena Ankiersztejn-Bartczak has spent 20+ years advancing person-centred care and support for people living with HIV in Poland.

Come hear her insights at our World AIDS Day event.

๐Ÿ—“๏ธ 10.12.25
๐Ÿ“ EP InfoHub
๐Ÿ”— Register: shorturl.at/J1o0Z

28.11.2025 13:20 ๐Ÿ‘ 2 ๐Ÿ” 1 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Meet MEP Krzysztof ลšmiszek (S&D, Poland), a champion for social justice, equal rights, and health access.

Member of the MEP WG on HIV, he will discuss how equitable policies are key to delivering person-centred care for people living with HIV.

๐Ÿ—“๏ธ 10.12.25
๐Ÿ“ EP InfoHub
๐Ÿ”— Register: shorturl.at/J1o0Z

25.11.2025 16:30 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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For the first time, we have a generation ageing with HIV.

Mario has shaped policy and empowered people to improve their quality of life. As our Co-Chair, he inspires us every day.

Donโ€™t miss him at our World AIDS Day event!

๐Ÿ—“๏ธ 10.12.25
๐Ÿ“ European Parliament InfoHub
๐Ÿ”— Register now shorturl.at/J1o0Z

21.11.2025 15:55 ๐Ÿ‘ 2 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Emma (UK) & Bogdan (RO) grew up with HIV, navigating stigma + gaps in lifelong care

HIV/AIDS isnโ€™t history. It affects 40M people worldwide

How the EU helps Emma & Bogdan can shape the future of generations living with HIV

๐Ÿ—“๏ธ 10.12.25
๐Ÿ“ European Parliament InfoHub
๐Ÿ”— Register here shorturl.at/J1o0Z

20.11.2025 15:26 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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๐Ÿ‘Introducing our host: the Vice-President of the European Palriament, MEP Victor Negrescu

A longstanding voice for health and children's rights, MEP Negrescu's keynote speech will reflect the need for an inclusive HIV response.

๐Ÿ—“๏ธ 10.12.25
๐Ÿ“ EP InfoHub
๐Ÿ”— shorturl.at/J1o0Z

@eatgroup.bsky.social

18.11.2025 13:16 ๐Ÿ‘ 2 ๐Ÿ” 1 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Europe can learn from Romania's prioritisation of long-term care for people living with HIV

In its response, few people have been as pioneering as ๐—ฃ๐—ฟ๐—ผ๐—ณ. ๐—”๐—ฑ๐—ฟ๐—ถ๐—ฎ๐—ป ๐—ฆ๐˜๐—ฟ๐—ฒ๐—ถ๐—ป๐˜‚-๐—–๐—ฒ๐—ฟ๐—ฐ๐—ฒ๐—น, President of the Romanian Senate Healthcare Committee ๐Ÿ‡ท๐Ÿ‡ด

๐Ÿ“10 Dec, 10:00-12:00, Brussels
๐Ÿ”— Register here: shorturl.at/J1o0Z

13.11.2025 12:06 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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From family planning to menopause, living with HIV as a woman comes with significant yet overlooked challenges. Come hear from Nicoletta Policek, a leading voice for women living with HIV.

๐Ÿ—“๏ธ 10 Dec. 2025
๐Ÿ“ European Parliament InfoHub, Brussels
๐Ÿ”— Register here: shorturl.at/J1o0Z

13.11.2025 12:05 ๐Ÿ‘ 1 ๐Ÿ” 1 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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An academic leader in HIV, comorbidities, NCDs and healthy ageing, our esteemed co-chair Prof. Caroline Sabin (@ucl.ac.uk) will speak to the need for integrated, evidence-based care models at our World AIDS Day event.

๐Ÿ“10 Dec, 10:00-12:00, Brussels
๐Ÿ”— Register here: shorturl.at/J1o0Z

30.10.2025 14:56 ๐Ÿ‘ 2 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Bringing a blend of scientific knowledge, community advocacy and policy action, Amanita Calderon-Cifuentes from @tgeuorg.bsky.social will be joining us as moderator for our upcoming World AIDS Day event๐Ÿ‘‹

๐Ÿ—“๏ธ 10 December 2025
๐Ÿ“ European Parliament InfoHub, Brussels
๐Ÿ”— Register here: shorturl.at/J1o0Z

23.10.2025 15:31 ๐Ÿ‘ 4 ๐Ÿ” 1 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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HIV Outcomesโ€™ in-country initiatives in ๐Ÿ‡ฎ๐Ÿ‡น, ๐Ÿ‡ท๐Ÿ‡ด, and ๐Ÿ‡ฌ๐Ÿ‡ง continue to champion recognition of the third sector as an essential part of the HIV response.

Want to learn more & share your experiences? Join us for the HIV Outcomes Flash Talks!
๐Ÿ“Community Corner, #EACS2025
๐Ÿ—“ 17 Oct, 12:05โ€“12:30

16.10.2025 14:45 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
Compendium of Good Practices This is the Compendium of Good Practices landing page. Please do not remove it.

๐Ÿง  Today, for #WorldMentalHealthDay, we sound the alarm that the mental health of people living with HIV is heavily affected by stigma, often leading to discrimination, abuse, avoidance of healthcare services, and poorer HRQoL.

Action is needed; read more in our Good Practices: tinyurl.com/yj9nt383

10.10.2025 15:12 ๐Ÿ‘ 2 ๐Ÿ” 1 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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๐Ÿ”œ๐—ช๐—ผ๐—ฟ๐—น๐—ฑ ๐—”๐—œ๐——๐—ฆ ๐——๐—ฎ๐˜† ๐—ฐ๐—ผ๐—ป๐—ณ๐—ฒ๐—ฟ๐—ฒ๐—ป๐—ฐ๐—ฒ ๐—ถ๐—ป ๐˜๐—ต๐—ฒ ๐—˜๐˜‚๐—ฟ๐—ผ๐—ฝ๐—ฒ๐—ฎ๐—ป ๐—ฃ๐—ฎ๐—ฟ๐—น๐—ถ๐—ฎ๐—บ๐—ฒ๐—ป๐˜

The EU is at a crossroads. It is a time for ๐—ฎ ๐—ป๐—ฒ๐˜„ ๐—›๐—œ๐—ฉ ๐—ฟ๐—ฒ๐˜€๐—ฝ๐—ผ๐—ป๐˜€๐—ฒ, promoting ๐—ฒ๐—พ๐˜‚๐—ถ๐˜๐˜† ๐—ฏ๐—ฒ๐˜๐˜„๐—ฒ๐—ฒ๐—ป ๐—ด๐—ฒ๐—ป๐—ฑ๐—ฒ๐—ฟ๐˜€ and across the ๐—น๐—ถ๐—ณ๐—ฒ๐˜€๐—ฝ๐—ฎ๐—ป.

๐Ÿ“… Wednesday 10 December 2025
๐Ÿ•™ 10:00 โ€“12:00 CET
๐Ÿ“ European Parliament InfoHub, Brussels
๐Ÿ”— Register here: shorturl.at/J1o0Z

02.10.2025 14:37 ๐Ÿ‘ 1 ๐Ÿ” 1 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

The #UNAIDS #UNGA side-event on people-centred primary care reminded us that vertical care models are not enough: integration is necessary for dignified, accessible, sustainable care. For people living and ageing with HIV, the inclusion of NCDs & MH in their care is crucial.

29.09.2025 16:27 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

Proposals to phase out #UNAIDS by 2026 are threatening decades of progress. With 40 million people living with HIV globally and funding certainty eroding, UNAIDS leadership is vital. There is no time for complacency โ€“ the EU must step up to ensure a strong HIV/AIDS response and meet the 2030 goal.

25.09.2025 09:56 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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People living with HIV are 2x more likely to develop CVDs and have a 50% higher risk of heart attack. ๐Ÿซ€

The upcoming #EUCardiovascularPlan must recognise and address HIV as a risk factor โ€“ read more in our response to the call for evidence: shorturl.at/ERHFV.

@ec.europa.eu

18.09.2025 12:31 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Our response to the @ec.europa.euโ€™s consultation on the European Pillar of Social Rights Action Plan calls for action in 6 key areas important for people living with HIV: ๐Ÿฉบ healthcare, ๐Ÿ•ฐ๏ธ long-term care, ๐Ÿฅ access to services, ๐Ÿง‘โ€๐Ÿง’ social protection, โ™€gender equality, and ๐Ÿ’ผ work conditions.

15.09.2025 13:36 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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โ˜€๏ธ Summer is over โ€“ what have we got in store?

We're prepping for #EACS2025, to host a HRQoL meeting, and to mark #WorldAIDSDay with a @europarl.europa.eu discussion on gender-informed realities of living w/ HIV across the lifespan.

And don't forget to submit your good practices! shorturl.at/rHyNo

12.09.2025 09:23 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
What is the impact of H.I.V. stigma?

What is the impact of H.I.V. stigma?

For some people living with HIV, stigma can negatively impact:

๐Ÿฅ๐Ÿ’Šseeking treatment & attending health appointments
๐Ÿ’•relationships
๐Ÿง mental health & seeking support for it

This doesn't need to happen. Learn more about what we do to tackle this:

nat.org.uk/what-we-d...

01.09.2025 07:00 ๐Ÿ‘ 8 ๐Ÿ” 6 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

BBC News featured HIV Outcomes UK report, โ€˜HIV Services at the Crossroads.โ€™

Cutting funding for voluntary services impedes our efforts to end the HIV epidemic by 2030. We cannot allow this trend to continue.

Full BBC article and clip ๐Ÿ‘‰ shorturl.at/1ysSM
Full report ๐Ÿ‘‰ shorturl.at/P85EK

@nat.org.uk

14.08.2025 14:30 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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๐Ÿ“ฃ Call for Good Practices in HIV Care!

Since 2018, our virtual Compendium has showcased practices that make a difference in the lives of people with HIV.

Got a standout initiative? Share it & inspire others!

๐Ÿ“ Submit it by 17 September: forms.gle/rbboxnNSQaBd...

More info: shorturl.at/7OdKD

31.07.2025 12:37 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0