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COVID-19 Long-Haulers Discussion Group

@covidlonghaulers

Raising awareness #COVID19 and #LongCovid Supporting fellow long-haulers. Join our group for support! (Human curated) Media: covidlonghaulers@gmail.com #MedSky facebook.com/groups/COVIDLongHaulers YouTube.com/@covidlonghaulers Patreon.com/BrookeLine

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Latest posts by COVID-19 Long-Haulers Discussion Group @covidlonghaulers

Preview
PHAN & ASP Present: Living with Long COVID YouTube video by Public Health Action Network

Many thanks to @publichealthaction.bsky.social & @airsupportproject.bsky.social for hosting today's Zoom on living with long COVID with @ancirabecky.bsky.social and me. It's been a long six years, but I'm grateful you've been by my side, Becky.

Watch here:

www.youtube.com/live/NK3-hQN...

06.03.2026 04:20 πŸ‘ 10 πŸ” 7 πŸ’¬ 1 πŸ“Œ 0

Join us! Becky and I will be talking about living with long COVID, what we're doing about it, what keeps us going.

You'll need to have a registered (but free!) Zoom account.

26.02.2026 10:41 πŸ‘ 8 πŸ” 6 πŸ’¬ 0 πŸ“Œ 0

Join us! We'll be talking about how long COVID has affected us, what we've done about it, and what keeps us going.

27.02.2026 03:20 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

I could have told you that. Everyone could have.

27.02.2026 05:32 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

We interrupt this otherwise long COVID-devoted feed for a moment of joy.

22.10.2024 23:44 πŸ‘ 6 πŸ” 2 πŸ’¬ 1 πŸ“Œ 0

Join us! We'll be talking about how long COVID has affected us, what we've done about it, and what keeps us going.

27.02.2026 03:20 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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If you’re wondering why the Trump Administration is cutting off health care for people across our state - look no further than the President’s own words:

β€œretribution is coming”

26.02.2026 18:29 πŸ‘ 4252 πŸ” 1547 πŸ’¬ 288 πŸ“Œ 92

Join us! Becky and I will be talking about living with long COVID, what we're doing about it, what keeps us going.

You'll need to have a registered (but free!) Zoom account.

26.02.2026 10:41 πŸ‘ 8 πŸ” 6 πŸ’¬ 0 πŸ“Œ 0

Really looking forward to this, @chimsween20.bsky.social!

Y'all, go sign up for this!

02.02.2026 16:49 πŸ‘ 14 πŸ” 6 πŸ’¬ 1 πŸ“Œ 0
Preview
Firing of neuroscience institute chief adds to NIH’s leadership vacuum Trump administration declines to renew appointment of Walter Koroshetz, against NIH director’s wishes

Firing of #neuroscience institute chief adds to NIH’s leadership vacuum. Trump administration declines to renew appointment of Walter #Koroshetz, against #NIH director’s wishes. www.science.org/content/arti...

07.01.2026 16:01 πŸ‘ 4 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

@mollyboom.bsky.social it's hard to believe we're starting a new year without you, Molly. You are loved and missed. That fierce rainbow sunshine.

31.12.2025 22:50 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 1
Pulmonary Town Hall: Panagis Galiatsatos, MD MHS, Johns Hopkins; Amanda Finley, COVID-19 LongHaulers
Pulmonary Town Hall: Panagis Galiatsatos, MD MHS, Johns Hopkins; Amanda Finley, COVID-19 LongHaulers YouTube video by COVID Long Haulers

Thank you, @panagis.bsky.social, for speaking with us! As always, we're appreciate you.

Pulmonary town hall, long COVID.

youtu.be/1OnfLSXZsEE?...

22.09.2025 12:55 πŸ‘ 5 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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New Long Covid policy paper from Norway outlines knowledge gaps and lessons learnt for developing preparedness for future pandemics.

Section 5 (pictured below) outlines their recommendations. Led by Sara Illman, PhD and colleagues.

www.nordforsk.org/2025/knowled...

03.02.2025 16:35 πŸ‘ 95 πŸ” 30 πŸ’¬ 0 πŸ“Œ 2

You can. It doing mmmmmmΓ± nm.

17.09.2025 03:07 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Preview
a man in a suit and tie says that 's the life in front of a window ALT: a man in a suit and tie says that 's the life in front of a window
17.09.2025 03:00 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

One of my favorites. We moved from the Ozarks Ashland, Kansas my freshman year of high school. I'll keep my eyeballs out for you.

16.09.2025 09:23 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
White background with dark blue print and lungs composed of flowers. COVID-19 Long-Haulers. Pulmonary Town Hall with Panagis Galiatsatos MD Mhs, Johns Hopkins. Friday September 19 at 3 pm EDT 2025. Facebook dot com slash COVID 19 long haulers, replay at YouTube dot com slash at sign COVID long haulers. Please submit all questions to COVID Long haulers at Gmail dot com

White background with dark blue print and lungs composed of flowers. COVID-19 Long-Haulers. Pulmonary Town Hall with Panagis Galiatsatos MD Mhs, Johns Hopkins. Friday September 19 at 3 pm EDT 2025. Facebook dot com slash COVID 19 long haulers, replay at YouTube dot com slash at sign COVID long haulers. Please submit all questions to COVID Long haulers at Gmail dot com

Looking forward to it, @panagis.bsky.social!

28.08.2025 03:20 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

There's a level of COVID denial that led to 400 million people and over 7 million dead. I won't say I told you so when it happens to you -- I'm not cruel like that.

Good luck.

07.09.2025 02:25 πŸ‘ 10 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

Conflating COVID activists with anti-vaxxers is ableist garbage. Long COVID has upended ~25 million American lives. Anti-vaxxers fuel outbreaks that cause preventable child deaths.

Hope this helps

06.09.2025 04:45 πŸ‘ 156 πŸ” 20 πŸ’¬ 7 πŸ“Œ 0
Long Covid plagues 400 million worldwide, requiring response systems through international cooperation: US expert

기자λͺ… Koh Jung Min   Published 2025.09.05 11:14

Long Covid plagues 400 million worldwide, requiring response systems through international cooperation: US expert 기자λͺ… Koh Jung Min Published 2025.09.05 11:14

Long Covid plagues 400 million worldwide.

COVID has had more dangerous and widespread effects than flu: Long COVID damages lungs, heart, metabolism, gut, kidneys, brain, and mental health. An estimated 400 million people affected globally, costing $1 trillion, 1% of global GDP.

archive.md/eZezE

06.09.2025 02:44 πŸ‘ 168 πŸ” 73 πŸ’¬ 1 πŸ“Œ 2
Inside a Long COVID Clinic: Town Hall with Julie Sullivan, Brigham and Womens COVID Recovery Center
Inside a Long COVID Clinic: Town Hall with Julie Sullivan, Brigham and Womens COVID Recovery Center YouTube video by COVID Long Haulers

Town Hall: Inside a Long COVID Clinic, with Julie Sullivan, program manager at the Brigham and Womens COVID Recovery Center, Boston.

youtu.be/1iskw3zBLpA?...

04.09.2025 22:43 πŸ‘ 6 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
White background with blue text and anatomic heart with flowers. Text reads COVID-19 long haulers. Inside a long COVID clinic. Town Hall. With Julie Sullivan program manager COVID recovery center Brigham and Womens. Thursday September 4 at 2:30 pm EDT. Facebook dot com slash COVID 19 long haulers. Replay at YouTube dot com slash at COVID long haulers. Please submit all questions to COVID Long haulers at Gmail dot com

White background with blue text and anatomic heart with flowers. Text reads COVID-19 long haulers. Inside a long COVID clinic. Town Hall. With Julie Sullivan program manager COVID recovery center Brigham and Womens. Thursday September 4 at 2:30 pm EDT. Facebook dot com slash COVID 19 long haulers. Replay at YouTube dot com slash at COVID long haulers. Please submit all questions to COVID Long haulers at Gmail dot com

28.08.2025 22:43 πŸ‘ 4 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
White background with dark blue print and lungs composed of flowers. COVID-19 Long-Haulers. Pulmonary Town Hall with Panagis Galiatsatos MD Mhs, Johns Hopkins. Friday September 19 at 3 pm EDT 2025. Facebook dot com slash COVID 19 long haulers, replay at YouTube dot com slash at sign COVID long haulers. Please submit all questions to COVID Long haulers at Gmail dot com

White background with dark blue print and lungs composed of flowers. COVID-19 Long-Haulers. Pulmonary Town Hall with Panagis Galiatsatos MD Mhs, Johns Hopkins. Friday September 19 at 3 pm EDT 2025. Facebook dot com slash COVID 19 long haulers, replay at YouTube dot com slash at sign COVID long haulers. Please submit all questions to COVID Long haulers at Gmail dot com

Looking forward to it, @panagis.bsky.social!

28.08.2025 03:20 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Green background with green Lily pads and pink lotus flower blooming.

Green background with green Lily pads and pink lotus flower blooming.

Join us on Fri, Sept 19 at 3 pm EDT for a town hall on pulmonary issues in #longCOVID with @panagis.bsky.social. We won't be able to take your questions live. Please submit in advance to covidlonghaulers@gmail.com. Live stream on FB. Later: YouTube.com/@covidlonghaul…

08.08.2025 11:54 πŸ‘ 4 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0

🚨🚨 Help Needed! 🚨🚨

Christine + family are living in a broken tent. The pole can't be fixed. They have a sturdier tent on their wish list, if anyone is looking for an opportunity to do a good deed today. Thanks!

14.08.2025 17:24 πŸ‘ 1 πŸ” 4 πŸ’¬ 1 πŸ“Œ 0
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BREAKING: Homelessness Minister Rushanara Ali has resigned after she was found to have evicted tenants and hiked rent to Β£4000 per month

More to follow

07.08.2025 19:25 πŸ‘ 57 πŸ” 31 πŸ’¬ 8 πŸ“Œ 7
Green background with green Lily pads and pink lotus flower blooming.

Green background with green Lily pads and pink lotus flower blooming.

Join us on Fri, Sept 19 at 3 pm EDT for a town hall on pulmonary issues in #longCOVID with @panagis.bsky.social. We won't be able to take your questions live. Please submit in advance to covidlonghaulers@gmail.com. Live stream on FB. Later: YouTube.com/@covidlonghaul…

08.08.2025 11:54 πŸ‘ 4 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
Green background with green Lily pads and pink lotus flower blooming.

Green background with green Lily pads and pink lotus flower blooming.

Join us on Fri, Sept 19 at 3 pm EDT for a town hall on pulmonary issues in #longCOVID with @panagis.bsky.social We won't be able to take your questions live. Please submit in advance to covidlonghaulers@gmail.com. Live stream on FB. Later: YouTube.com/@covidlonghaulers

08.08.2025 11:52 πŸ‘ 7 πŸ” 6 πŸ’¬ 0 πŸ“Œ 0
Preview
Covid-19 VA Disability Claims: What You Should Know Veterans and military members with long covid or post-Covid conditions may qualify for VA disability benefits. Here's what you need to know.

"...you don’t need to provide the VA with any additional documentation to prove service connection. If you meet these criteria and are still experiencing long-term symptoms, you may be eligible to file a VA disability claim."

@fpwellman.bsky.social

themilitarywallet.com/covid-19-va-...

04.08.2025 02:15 πŸ‘ 4 πŸ” 5 πŸ’¬ 0 πŸ“Œ 0
Guerilla Advocacy: No Camps
Guerilla Advocacy: No Camps YouTube video by COVID Long Haulers

Guerilla Advocacy: No Camps

Virtual rally July 19.

youtu.be/Z6X_mqmSdgs?...

22.07.2025 11:54 πŸ‘ 5 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0