Amy M. Russell

Delighted to see WHO Director-General Dr Tedros join us on Bluesky @drtedros.who.int

Welcome Dr Tedros!

Launching today ‘Creating knowledge together’ – a collection of 13 essays on the power of community engaged research, published by British Science Association. Read our essay ‘How to ethically share power with public research partners: AKA keeping blobs blobby’ and explore the full collection here:

The figures haven't changed in the past few years

www.learningdisabilityengland.org.uk/no-research-...

Great summary of the day by @peterlangdon.bsky.social It felt like it was one of those talks that resonated with a lot of people. Lots of break time discussion about recruitment, ethics, gatekeepers and funding. So much energy and desire for improvement gives me a kick up the bum to keep going!

We’re back again this year showcasing excellent research involving people with intellectual disabilities and autistic people taking place across the Midlands! Thank you to our partners: NHS England, ADASS, NIHR RDN East and West Midlands, Reach-Out, University of Birmingham

Thank you! Angela Henderson and Debbie Cairns were co-applicants on our project so we learned a lot from the citizens jury. It was such a great piece of work you all did.

30 Charts That Show How Covid Changed Everything in March 2020 (Gift Article) It can be easy to forget, or look away from, the pain and disruption of the pandemic. The numbers will be there to remind us.

30 Charts That Show How Covid Changed Everything (US)

Say No to an Austerity Budget! 14 years of austerity have pushed the UK's public services well past their limits. Our communities are at breaking point. Every part of life has been damaged by it. Choosing to implement an austerity ...

actionnetwork.org/petitions/sa...

Donald Trump

How should you respond to a regime that has disregard for health and wellbeing, ignores the central role of inequalities in poor health outcomes, and believes science and scholarship to be enemies of progress?

@kamranabbasi.bsky.social in the latest Editor's Choice
www.bmj.com/content/388/...

Gary Boulet and I are the keynotes today for the Midlands Learning Disability and Autism Research event. Our talk is on the contribution people with learning disabilities make to research; as participants, advisors & as research leaders.

Exclusive: NIH appears to archive policy requiring female animals in studies Such a shift would “put us back in the dark ages in terms of our science,” says neuroscientist Anne Murphy, who helped to formulate the original policy.

Great write up at @thetransmitter.bsky.social on the seeming erasure of SABV in the new era of NIH. Gotta say The Transmitter is killing it the last few weeks, first to report on the Federal Register block and now this. Leading the charge! 💪 www.thetransmitter.org/policy/exclu...

Why is measles such a big deal? Here's why:

I am the ‘Michael Jordan of book banning’. This is why I do it Bruce Friedman has challenged 1,200 books since the pandemic, alarming free speech advocates — and librarians who face death threats

"Amanda Jones, a librarian in Louisiana, has received death threats since speaking out against book bans. She was labelled a paedophile and filmed by strangers in public. She fears going out alone. “I can name a librarian in every state this has happened to — and I fear it’s only going to get worse”

Done! Keep ‘em coming!

More to add to the trial methodology starter pack @amymrussell.bsky.social (and lots to follow here @trialforge.bsky.social @streweek.bsky.social) in not already!

One of our supporters shared this with us—people are getting creative tonight!

Exactly

Currently low response rates from CTU Directors (n=5), Programmers/Data Managers (n=0), & QA Managers (n=3) working in clinical trials. We need to know what these groups think the challenges are for greener trials.

forms.office.com/e/fkeLD8HbMA

Please complete &RT

@ukctunetwork.bsky.social

This is just so cruel. My wife works at a school attended by many kids with disabilities, and one of my daughters is neurodivergent. I am at a loss for words. This state just keeps disappointing me.

Procter & Gamble’s Menopause Test Kit Is A ‘Fraud,’ Lawsuit Claims A urine stick test isn’t the best way to determine a woman’s menopausal status.

"It’s particularly egregious as a women’s health product to be deceiving about what it can and can't do and could prevent women from getting proper treatment."

#FemTech #WomensHealth #COI #CDoH

www.forbes.com/sites/cyrusf...

@gemashwell.bsky.social this looks interesting.

Let deregulate children catching fire and botulism. It doesn’t sound like unnecessary red tape when you look at it that way…

On the 5 year anniversary of the shambles that half the country didn't want and now its hard to find anyone who still thinks it was a good idea I felt this was worth a repost #brexit

How can anyone in their right mind ignore this letter from Caroline Kennedy about her cousin, RFK Jr.?

I did not see this one coming

Really feeling for US colleagues and students and knowledge and society right now...

White House pauses all federal grants, sparking confusion The Trump administration has put a hold on all federal financial grants and loans, affecting tens of billions of dollars in payments.

I think some people hear “grants” and think that without them, scientists and government workers just have less stuff to play with at work. But grants fund salaries for students, academics, researchers, and people who work in all areas of public service.

“Pausing” grants means people don’t eat.

Trump Reinstated the Global Gag Rule. Here’s What’s at Stake. In his first term, Trump oversaw an unprecedented expansion of the gag rule. Its reinstatement could decimate global reproductive and sexual health.

Trump Reinstated the Global Gag Rule. Here’s What’s at Stake.

Trump signs order to reinstate ‘global gag rule’ on abortion aid Federal rule also known as ‘Mexico City policy’ halts US funds to overseas groups that provide abortion services

Of course we expected this, but it’s still not widely known about among non specialists. The damage done to women’s health by the global gag rule can’t be understated. The GOP/US government have been doing this for decades
www.theguardian.com/us-news/2025...