Member of European Parliament @groenlinks-pvda.bsky.social @greens-efa.eu • Asylum, migration, rule of law, human rights, rapporteur Hungary • professor Citizenship and Migration Law
Member of the European Parliament
@groenlinks-pvda.bsky.social
@greens-efa.eu
Lid Europees Parlement GL-PvdA | voorzitter Taal aan Zee | was directeur ActionAid, lid Tweede Kamer, diplomaat
🌹Europarlementariër @Groenlinks-PvdA / Vice-president @TheProgressives | European Green Deal en Gezondheid 🍀 | 📍Helmond & Brussel | Vader van 2 👨👩👦👦
Co-President @greens-efa.eu
Member of the European Parliament @groenlinks-pvda.bsky.social
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us.
This account is maintained on a part-time basis by patients.
I run marathons around Europe raising funds for Invest In ME's biomedical research projects to cure ME.
34 countries so far. £52k raised.
Next race: #39 Sarajevo, Bosnia (26.04.26)
www.mikeseumarathons.eu
www.justgiving.com/mikeseumarathons
Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
Animagus. Hearty but not hale. Celebrant of beautiful action. Likes bicycles. Note: The only time I post with my real name is in scientific journals. Kaurna Country. She/Her.
ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein.
mecfs.de
Advocate for #MyalgicEncephalomyelitis using ME-ICC.
Contracted ME in 1989
Substack: https://colleensteckelmeiccinfo.substack.com/
Volunteer at www.MEadvocacy.org
Aspiring writer of paranormal fiction
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Ph.D. in physics, also interested in mathematics, science theory, and history. Follows research on ME/CFS.
Stockholm, Sweden
#Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
Immunologist and ME/CFS researcher @Charité
https://cfc.charite.de/
Medizin-Redakteurin beim SPIEGEL, Biochemikerin, Buchautorin.
https://www.spiegel.de/impressum/autor-de0618d4-0001-0003-0000-000000015007
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
Asso de patient·e·s. Pour la prise en charge de l'encéphalomyélite myalgique #EM en France et le développement de la recherche.
Entraide & soutien 🤝 www.millionsmissing.fr
🔴 Membre de World ME Alliance.
investigativjournalist | www.martin-ruecker.com | Threema: TUFVC84Z
Actiegroep #MillionsMissing Holland wil betere zorg & sociale gelijkheid voor ME-patienten.
Facharzt für Neurologie
ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
Prof Psych • Writer • Galway • he/him
New book 'Psychology's Quiet Conservatism': https://link.springer.com/book/9783032077233
Blog: https://thesciencebit.net/
Bio: https://brianmhughes.com/
📷 https://www.photoblogism.net
Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.
Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019).
#MECFS #PwME #LongCovid
(Account managed by Sabrina.)
I occasionally try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
Severe M.E. patient, person-centred counsellor (currently not practicing), recovering poet (Rack & Waterloo Press)
Parent, spouse, Australian, Professor of Machine Learning in Oxford. Long Covid, trans rights, music, reggae, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb
Norges ME-forening (Norwegian Myalgic Encephalopathy Association) jobber for å bedre situasjonen for landets ME-syke. Facebook: https://www.facebook.com/MEforeningen/
ME patient advocate, architect by training
Ehemann, Jurist. #MECFS.
Team #SIGNforMECFS. Team #GOfundMECFS.
One of the #MillionsMissing.
zo nodig dwars |verzekeringsarts | jurist | phd | docent | schrijven | lezen | zingen | radio dj | kunst & kunde | semper fi | www.jimfaas.nl
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
Patient-Led Research for #LongCovid! http://patientledresearch.com
We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
Ex-filmmaker, chronic illness awareness advocate, home & bedbound due to #ComplexChronicIllnesses II https://sibylledahrendorf.jimdofree.com II https://linktr.ee/sibylledahrendorf II
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
documentalist | one of #millionsmissing | team #GOfundMECFS & #SIGNforMECFS | suffering from #myalgicencephalomyelitis 08 | 1. FC Union Berlin
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
Scientific Director, #MEAction
Stanford Med
Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
physician-scientist, author, editor
https://www.scripps.edu/faculty/topol/
Ground Truths https://erictopol.substack.com
SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him
📷 Canon R6mkii + RF 800mm
Edyong.me
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
Mitglied d. Europäischen Parlament | MEP | Greens/EFA Stellv. Vorsitzende d. Sozialausschuss (EMPL) Mitglied im Gleichstellungs+Binnenausschuss (FEMM+ IMCO) ♿️(she/her)
https://www.katrin-langensiepen.eu
MdEP, #ScienceGoesPolitics
Kämpfe für Artenvielfalt, Klimaschutz, schadstofffreie Umwelt
https://www.jutta-paulus.de/
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research
NB: Posts are not advice
RCN 20100254
CHY 22039
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
PD Dr. (religion, empirical education research)
mother of Mila who suffers from very severe ME/CFS (Bell 0)
https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf
Vienna, Austria
#CleanAir
💛 Österreichische Ges. für #MECFS
⚡ NEWS zu #MECFS #pwME #myalgicE
👇 Informationen, Spenden, Kontakt
http://linktr.ee/oeg_mecfs
https://mecfs.at/
In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
News, interesting information and commentary on ME/CFS.
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 31 years.
@IrishMECFSAssoc trustee 28 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
