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Youth Cancer Europe

@youthcancereurope

A European community led by young people living with and beyond cancer, working to improve the lives of those diagnosed πŸŽ—οΈ πŸ’» Check out our website for more patient advocacy content: https://www.youthcancereurope.org/

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10.04.2025
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Latest posts by Youth Cancer Europe @youthcancereurope

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Happy Holidays from all of us at Youth Cancer Europe!

We wish you a joyful holiday season, filled with peace, warmth, laughter, happiness and joyful moments with your loved ones! πŸŽβ„οΈπŸŽ„βœ¨

Thank you for being part of our journey!

#YouthChangingEurope #StrongerTogether

22.12.2025 10:12 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Today we kicked off the first in-person General Assembly of YARN in Bucharest, Romania, hosted by YCE, welcoming partners from πŸ‡ͺπŸ‡Ί 11 EU Member States + Ukraine for 2 days of focused discussions and collaborative planning.

#EUCancerPlan #EU4Health

12.12.2025 19:19 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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πŸ—£οΈ β€œWhen developing cancer care, equity should be taken into account from the start” said Nienke Alberts, Assistant Professor & Researcher at Cancer Radar during the Equity, Diversity & Inclusion in Cancer Care Stakeholder Forum, organised by Youth Cancer Europe.

26.11.2025 16:21 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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πŸ—£οΈ β€œIt’s important to educate professionals and cancer nurses on Equity, Diversity and Inclusion (EDI), because the education they receive, is what they implement” said Dimitrios Protogiros, Board Member at the European Oncology Nursing Society.
Read more about it here πŸ‘‰ youthcancereurope.bio.link

18.11.2025 17:06 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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β€œEquity, diversity and inclusion (EDI) in cancer care is extremely important because it ensures we are delivering healthcare for all, not just for some” said Alexandra Eni from @europeancancer.bsky.social during the EDI Stakeholder Forum organised by @youthcancereurope.bsky.social

12.11.2025 15:49 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Patient co-creation in STRONG-AYA: Perspectives from a patient advocate - Strong Aya TomaΕΎ DeΕΎelak, member of our Patient Advisory Board (PAB) and Youth Cancer Europe patient advocate, works with STRONG-AYA researchers on the development of

What does meaningful patient engagement look like?

TomaΕΎ DeΕΎelak, member of our Patient Advisory Board (PAB) and @youthcancereurope.bsky.social patient advocate, shares his experience with patient co-creation in the project.

πŸ‘‰ Read the article on our website: strongaya.eu/news/patient...

06.11.2025 11:16 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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YARN’s coordinator @youthcancereurope.bsky.social , together with partners SIOPE and CCI Europe participated in the @jane2project.bsky.social meeting, presenting our work, our patient communities, and the ongoing activities within YARN.

05.11.2025 13:25 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Throwback to June, when YCE organised the EDI in Cancer Care Stakeholder Forum and brought together representatives from 15 EU-funded projects, and experts from 26 European and international organisations to share their work πŸ‡ͺπŸ‡Ί

#EUCancerPlan #EU4Health #StrongerTogether

04.11.2025 15:58 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Happening today at #ESMO25 β€” our workshop β€œBuilding the Framework for Inclusion Practices in EU Healthcare Settings”, organised together with EONS and UBB!

@myesmo.bsky.social

#EU4Health #EUCancerPlan #YARN #StrongerTogether

20.10.2025 09:40 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Today, at #ESMO25, UrΕ‘ka KoΕ‘ir and Tanja Spanic spotlighted YCE’s ongoing collaboration with Europa Donna on oncofertility. A partnership that will keep propelling YARN project’s AYA advocacy work across Europe. πŸ‡ͺπŸ‡Ί

#EU4Health

19.10.2025 16:48 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Today YCE UrΕ‘ka KoΕ‘ir is presenting a session on Cancer and Fertility at @myesmo.bsky.social

#ESMO25

19.10.2025 11:40 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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YCE is super excited to be in Berlin for @myesmo.bsky.social 2025, representing the European Youth Cancer Network! ⚑️

Come say hi and check us out! πŸ‘‹

#ESMO25 #EU4Health #EUCancerPlan #YARN #StrongerTogether

18.10.2025 23:05 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Have you ever attended an event related to cancer?
Were they inclusive enough?

We’d love to learn from your experience!

πŸ“ŒFill in the survey now: docs.google.com/forms/d/e/1F...

15.10.2025 15:04 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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UrΕ‘ka, Nicola, Erik and TomaΕΎ brought YCE to Paris πŸ‡«πŸ‡· for the STRONG AYA General Assembly Meeting, bringing the lived experience perspective to the table and making sure that young people affected by cancer remain at the heart of every discussion and decision from day one.

13.10.2025 10:19 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Building the Framework forβ€―Inclusion Practices in EU Healthcare Settings Dear Participant, Thank you for your interest in the upcoming Building the Framework for Inclusion Practices in EU Healthcare Settings Workshop, which will take place at ESMO Congress 2025 in Berlin, ...

You can still sign up for our workshop β€œBuilding the Framework for Inclusion Practices in EU Healthcare Settings”, taking place during EONS18 at the ESMO 2025 Congress!

Secure your place before it’s too late!

πŸ”— Register now: docs.google.com/forms/d/e/1F...

@myesmo.bsky.social

09.10.2025 13:33 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Urska, Nikola, Erik, and Tomaz are representing YCE in Paris at the STRONG AYA General Assembly Meeting, bringing the lived experience perspective to the table, ensuring that young people affected by cancer remain at the heart of every discussion and decision. πŸ”₯

07.10.2025 09:51 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Getting excited and ready for #ESMO2025, where we’ll be representing the European Youth Cancer Network 🧢

@myesmo.bsky.social

07.10.2025 09:38 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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Minimum standards of specialist adolescent and young adult (AYA) cancer care units: recommendations and implementation roadmap In 2022, according to the Global Cancer Observatory, >115 000 adolescents and young adults (AYAs; aged 15-39 years) were diagnosed with cancer across …

The Minimum Standards for AYA Cancer Care Units has just been published in ScienceDirect πŸ‘‰
www.sciencedirect.com/science/arti...

This milestone sets the first pan-European benchmark for age-appropriate, high-quality cancer care for young people.

#EU4Health #EUCancerPlan

01.10.2025 14:57 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 2
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Music blasting 🎢 Lights flashing Singing at the top of our lungs. Rocking our beautiful blue and yellow flag with a whole lotta attitude and yes… the wildest dance moves you’ve ever seen. This is what being unstoppable looks like. πŸ’ƒπŸ•Ί

#UNTOLD2025 #StrongerTogether

05.09.2025 14:37 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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This year at UNTOLD, we brought YARN to life.✨

Dozens of messages β€” bursting with colour, woven 🧢 with emotion β€” filled our installation, each one carrying a voice, a story, a show of support for young people affected by cancer.

#EU4Health #StrongerTogether #EUCancerPlan #YARN

03.09.2025 09:53 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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INNA, DJ BLISS, Irina Rimes and TUJAMO β€” what a night! ​​πŸ’₯ INNA spent real time with us, DJ Bliss turned up the heat, Irina Rimes brought the words that hit straight to the heart, and Tujamo kept us moving with pure beat energy.

#UNTOLD2025

14.08.2025 15:38 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Designed by Atelier MASS, brought to life by YCE and Asociatia Little People, this installation marks the public debut of the YARN project β€” a bold, EU co-funded initiative weaving together the voices, experiences, and actions of young people affected by cancer.

08.08.2025 16:30 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Thank you to the brilliant Atelier MASS for designing our installation at UNTOLD β€” a space that stands for connection, visibility, and solidarity.

#StrongerTogether #YARNproject #YouthChangingEurope #EUCancerPlan #UNTOLD2025

07.08.2025 14:52 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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We are at UNTOLD with the amazing YCE team, repping the newly launched, EU co-funded YARN 🧢 project! πŸ‡ͺπŸ‡Ί

Right now? We’re somewhere between an IKEA manual and a minor engineering feat. πŸ”©All in the name of building something that turns heads and gets people talking.

#UNTOLD2025 #YouthChangingEurope

05.08.2025 17:16 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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The exciting #YARN 🧢 project has officially kicked off! πŸŽ‰

πŸ‡ͺπŸ‡ΊThe European Youth Cancer Network is the largest multi-stakeholder, lived experience driven effort of its kind in Europe to improve quality of life for , adolescents, and young adults affected by cancer.

#EUCancerPlan

31.07.2025 12:34 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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What happens when you take everything we’ve learned, built, and worked toward… and weave it 🧢 into something stronger?

Keep an eye πŸ‘€ on our socials for some exciting updates soon!

30.07.2025 09:33 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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We’ve had some electric days lately… ⚑

After INNA donated πŸ’―% of her Electric Castle merch to Youth Cancer Europe, Stil Diamonds stepped in and doubled the amount!

We’re so incredibly grateful! πŸ’•
Thank you for standing with us! Thank you for helping us #BreakTheSilence!

22.07.2025 13:24 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Merch with meaning!
Thank you INNA for donating 100% of your Electric Castle merch proceeds to Youth Cancer Europe, supporting the rights of young people with cancer across Europe.

Queen β˜”οΈπŸ’™πŸŽ—οΈ

#INNAforYCE #YouthCancerEurope #ElectricCastle

22.07.2025 13:23 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
FORTEe Newsletter - Summer 2025

πŸ†• Just out this week: the latest FORTEe #Newsletter!
πŸ”— mailchi.mp/f70e149b594e...

The highlights?
πŸ“£ #PEOCxFORTEe - Call for Abstracts open now!
πŸ“˜ New Exercise Training Booklet
🩡 Layman summary of the FORTEe project
πŸ“– Recent publications
πŸ€Έβ€β™‚οΈ Conference highlights

@youthcancereurope.bsky.social

09.07.2025 07:17 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

β€œMore specific data is needed to better understand barriers to cancer prevention and care for LGBTIQ communities in Europe to ensure equitable health access" Alexandra Eni, @europeancancer.bsky.social

#EUCancerPlan #CancerMission #EU4Health #HealthUnion

17.06.2025 14:41 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0