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Christine Bienvenu

@suissepatient

Swiss🇨🇭Montrealer🇨🇦 #ePatient #ASD/Aspie #ADHD Mom💙 #PatientPartner Université Patients @USorbonne graduate #BCSM #cancerdusein #TheWalkingGallery jacket313 #impliquonslespatients! #letpatientshelp! #PatientsUseAI enseignement recherche🔬 #PPI #PPIR 🧩 @HE_Arc

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29.10.2023
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Latest posts by Christine Bienvenu @suissepatient

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Comparative inpatient care of cancer vs. non-cancer patients in Switzerland during the national COVID-19 lockdown: a nationwide interrupted time series analysis - BMC Cancer Background The COVID-19 pandemic exerted unprecedented pressure on healthcare systems worldwide, leading governments and hospitals to postpone elective procedures to prioritize care for COVID-19 patie...

Proud to have been part of this project #patientpartner #PPI and to share our publication.

"Comparative inpatient care of #cancer vs. non-cancer #patients in #Switzerland during the #COVID_19 lockdown: a nationwide interrupted time series analysis."

bmccancer.biomedcentral.com/articles/10....

27.03.2025 17:39 👍 3 🔁 0 💬 0 📌 0
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Trump halts medical research funding in apparent violation of judge’s order Health department orders NIH to hold Federal Register submissions – critical step in process for funding studies

Trump officials are trying to sneak around federal judges’ orders.

They could be held in civil contempt of court, which can include jail time and can’t be undone with a presidential pardon, according to @sbagen.bsky.social .

My latest for @theguardian.com

www.theguardian.com/us-news/2025...

23.02.2025 17:17 👍 430 🔁 193 💬 15 📌 19

In 2025... what a dark new world we're in. 😔

21.02.2025 21:57 👍 1 🔁 0 💬 0 📌 0

Ugh, this sucks+++! I can't even believe this is happening in 2025! The damage they're doing will have repercussions for decades, and patients will pay with their lives.

I understand you don't want the pity party, but I do hope you find the will and resilience to keep going up this uphill battle.

21.02.2025 21:56 👍 0 🔁 0 💬 0 📌 0
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#PatientsUseAI: We seek collaboration, not control AI’s potential to revolutionize healthcare dominates headlines and academic journals. But one critical voice is underrepresented: patients. By Gilles Frydman, pioneer (since the 1990s) of patient comm...

#We seek #collaboration, not control!"

Great article by @epatientdave.bsky.social with helpful tips to create #partnership with #patients. #PatientsUseAI. So #HCPs, come join us! #patientpartners #collaboration #coproduction #LetPatientsHelp!
patientsuseai.substack.com/p/patientsus...

13.01.2025 21:29 👍 1 🔁 0 💬 0 📌 0

Que 2️⃣0️⃣2️⃣5️⃣ vous apporte le meilleur: santé, bonheur, amour, moments partagés, sérénité, rêves, accomplissements, joie de vivre, paix, légèreté, couleurs, magie, surprises, musique, projets, mystères, amitiés, ...

🌺🏵🌸🌼🎋🌻🪻⚘️
B✨️O🥂N🍾N🥳E❤️🍀A🐖N🎩N💟É🎊E🌝🍸2🎆0🎉2🌞5🕺💃B🌿I☮️S💜E😘S🌹🪻🌷💐🌻🌿🌼🌺

01.01.2025 09:16 👍 0 🔁 0 💬 0 📌 0

just blurted out in class "yes, you have to cite where you got your info. in a world in which lying loudly is the only thing that seems to get rewarded, citing your sources is an act of resistance" and folks, I really believe that.

19.12.2024 15:35 👍 14996 🔁 2443 💬 207 📌 130

Shame must change sides.
-Gisèle Pelicot

#PersonOfTheYear
#Survivor

19.12.2024 19:05 👍 22 🔁 2 💬 0 📌 0
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19.12.2024 18:30 👍 148 🔁 11 💬 1 📌 1
Cover of Thursday’s issue which I wrote the cover story for about Gisèle Pelicot as person of the year 2024

Cover of Thursday’s issue which I wrote the cover story for about Gisèle Pelicot as person of the year 2024

On Thursday the 2024 issue of @theneweuropean.bsky.social comes out and they have given me the platform to explain why Gisèle Pelicot is my hero and how she radically changed the conversation about shame and sexual assault
It is my proudest writing.
app.theneweuropean.co.uk/2024/10/26/v...

10.12.2024 22:43 👍 1486 🔁 535 💬 64 📌 91
Gisèle Pelicot in front of a bank of microphones talks to the press

Gisèle Pelicot in front of a bank of microphones talks to the press

“We share the same fight.”

Gisèle Pelicot pays tribute to other victims of sexual abuse after her husband & 50 other men were jailed for her rape.

Impossible to find the words to adequately describe this lady’s courage.

Unquestionably, irrefutably 2024’s Person of the Year.

Merci Madame.

19.12.2024 13:06 👍 547 🔁 145 💬 9 📌 11

Tagging for 🧪 🩺💻 #MLSky

19.12.2024 16:14 👍 7 🔁 1 💬 2 📌 0
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a yellow smiley face wearing a party hat and confetti . ALT: a yellow smiley face wearing a party hat and confetti .

9months after stopping my #Herceptin & #Perjeta infusions (147 - 9yrs!) I got my #PET-SCAN & #ctDNA results back: ALL IS GOOD! 🥳

After being told, at age 35, that I had 32% chance of celebrating my 40th bday, Tuesday I will be celebrating my 50th!

Take that #TNBC #HER2+ #breastcancer #fuckcancer!

19.12.2024 17:53 👍 2 🔁 0 💬 1 📌 0

Key @hsruk.bsky.social recommendation for #HealthResearch:

7. Emphasise Diversity & #PublicInvolvement

✅ Develop inclusive strategies to engage underrepresented communities in research & service design
✅ Co-create research & services to enhance trust, improve outcomes & reduce inequalities

19.12.2024 10:50 👍 1 🔁 1 💬 0 📌 0

Luckily, I have dual citizenship (Swiss & Canadian). I will literally give up my 🍁 one if this happens - without hesitation.

Do any Canadians feel icky after this comment, like we've been groped by the orange creep? *shudder*

19.12.2024 06:09 👍 0 🔁 0 💬 0 📌 0
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Experiences and Needs of Swiss Cancer Survivors in the Domains of Health-Related Information and the Healthcare System Background/Objectives: In recent years, the number of cancer survivors has rapidly increased in Switzerland, as well as worldwide. As cancer increasingly becomes a chronic condition, numerous bio-psyc...

Article about #SCAPE Swiss Cancer Patient Experience study, where I was a #patientpartner in the steering committee. This was my first #PPI #PPIR experience w/ @chantalarditi.bsky.social

Training #patients & #researchers to work together creates meaningful research.

www.mdpi.com/2072-6694/16...

19.12.2024 05:43 👍 3 🔁 0 💬 0 📌 0
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ADHD drugs reduce symptoms in adults but don't improve quality of life, study finds A major review of evidence on ADHD treatment in adults has found stimulant drugs and one type of non-stimulant are the only effective treatments for reducing core symptoms in the short term.

💭ADHD medications effective at reducing symptoms in adults but not improving quality of life, study finds

www.abc.net.au/news/health/...

#PatientExperience #LivedExperience #PatientEngagement
#CommunityEngagement #Health #RuralHealth #RegionalHealth #Research #ClinicalTrials #Codesign

18.12.2024 05:00 👍 3 🔁 2 💬 0 📌 0

Could you please be more specific as to which time you're speaking about?

06.12.2024 12:45 👍 3 🔁 0 💬 0 📌 0

Why orange guy? He's not President yet. What a stain on that day...

I bet he will push himself to the front row to make himself the center of attention.

06.12.2024 12:41 👍 7 🔁 0 💬 0 📌 0

Good morning, Blue Sky.

Being resilient is easier when you're surrounded by the right people.

Build communities that make you smarter and tougher for the battles ahead.

Never give up hope. Never stop fighting for what is right. And just.

Whatever comes our way, we will face it together.

25.11.2024 13:44 👍 38146 🔁 5662 💬 1192 📌 259
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24.11.2024 15:08 👍 64386 🔁 11718 💬 1180 📌 662

Thank you to everyone who's booked so far - we should have some interesting discussions!
#PPI people: It's filling up fast if you haven't booked already.

25.11.2024 08:24 👍 5 🔁 7 💬 0 📌 1
Post: 

Freddy Mercury died of AIDS 33 years ago today. With modern medical technology, he likely would have lived. Never forget how much progress against major infectious disease has been made in a short time. We are at risk now of rolling back much of that progress.

Post: Freddy Mercury died of AIDS 33 years ago today. With modern medical technology, he likely would have lived. Never forget how much progress against major infectious disease has been made in a short time. We are at risk now of rolling back much of that progress.

We’re not going back.

24.11.2024 22:07 👍 67839 🔁 9852 💬 1269 📌 305
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‘A place of joy’: why scientists are joining the rush to Bluesky Researchers say the social-media platform — an alternative to X — offers more control over the content they see and the people they engage with.

‘A place of joy’: why scientists are joining the rush to Bluesky

www.nature.com/articles/d41...

22.11.2024 04:36 👍 196 🔁 46 💬 3 📌 4
A man holds a sign in the street saying « stop asking for slides a week in advance of a talk »

A man holds a sign in the street saying « stop asking for slides a week in advance of a talk »

I will not hide my inner convictions anymore. Be the change you want to see in the world !

#AcademicSky 🧪

20.11.2024 11:04 👍 594 🔁 106 💬 19 📌 14

Another step towards AcademicSky

Science magazine is here:
@science.org

22.11.2024 21:18 👍 14 🔁 1 💬 0 📌 0

Welcome newcomers to the friendly skies of @bsky.app, emerging as the science sharing platform for the future!

22.11.2024 18:41 👍 934 🔁 88 💬 32 📌 7

Hi! Thank you for this starter pack! I would love to join! 😊

I'm a #patientpartner, specialized in #PPI. I teach to applied science students in Western French-speaking Switzerland.

As a #patient I use #AI ( #patientsuseAI ) and as a teacher we train students to use AI with their future #patients.

21.11.2024 16:36 👍 2 🔁 0 💬 0 📌 0