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Long Covid Support

@longcovidsupport

UK charity dedicated to supporting people with Long Covid • Support • Research • Advocacy • Education • www.longcovid.org https://linktr.ee/longcovidsupport 📧info@longcovid.org

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16.10.2023
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Latest posts by Long Covid Support @longcovidsupport

Behind him is the Long Covid Support Banner. A collective tapestry created last year for Long Covid Awareness Day, made up of contributions from people living with Long Covid and those who care for them.

07.03.2026 13:01 👍 18 🔁 3 💬 1 📌 0
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PART 2 - Prevalence of Long Covid

Professor Danny Altmann, Immunologist at Imperial College London and Trustee of Long Covid Support, explains why the number of Long Covid cases in the UK is increasing .

#LongCovid #LongCovidAwareness #ProfessorDannyAltmann #LongCovidSupport

07.03.2026 13:01 👍 27 🔁 18 💬 2 📌 1
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COVID-19 Day of Reflection Sunday 8 March 2026 is the Day of Reflection for the COVID-19 pandemic. People and communities are invited to mark the day in ways that feel meaningful to them.

This year's annual Covid-19 #DayOfReflection takes place on Sunday 8 March, remembering those who have lost their lives since the pandemic began 6 years ago.

Head to dayofreflection.campaign.gov.uk to find out about local events you can attend in your area.

#Covid19 #LongCovid #DayOfReflection

06.03.2026 09:00 👍 13 🔁 8 💬 0 📌 0

Behind him is the Long Covid Support Banner. A collective tapestry created last year for Long Covid Awareness Day, made up of contributions from people living with Long Covid and those who care for them.

05.03.2026 17:01 👍 6 🔁 2 💬 0 📌 0
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PART 1 - What is Long Covid?

Professor Danny Altmann, Immunologist at Imperial College London and Trustee of Long Covid Support, explains what Long Covid is.

#LongCovid #LongCovidAwareness #ProfessorDannyAltmann #LongCovidSupport

05.03.2026 17:01 👍 23 🔁 14 💬 2 📌 0
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⭐ Long Covid Awareness Day - Sunday 15 March 2026

How can you help? Donate, Learn and Share so we can continue our work in research, advocacy and support to help those living with Long Covid.

Donate using this link: www.justgiving.com/campaign/lon...

#LongCovid #LongCovidAwarenessDay

05.03.2026 11:01 👍 8 🔁 8 💬 0 📌 0
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March is International Long Covid Awareness Month - and the theme this year aims to highlight how Covid can affect heart health.

Experiencing symptoms and don't know where to start? Join our Facebook Support group to connect with others 🩵 🖤 💚

#LongCovidHeartbeats #LongCovidAwarenessMonth

04.03.2026 11:00 👍 15 🔁 14 💬 0 📌 0
Quote graphic on a light blue background with teal silhouette borders at top and bottom. Large text reads, “We are being left in some kind of void.” Attribution below: “Margaret O’Hara, Trustee, Long Covid Support.” Small line reads “BBC News | 1 March 2026” with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Large text reads, “We are being left in some kind of void.” Attribution below: “Margaret O’Hara, Trustee, Long Covid Support.” Small line reads “BBC News | 1 March 2026” with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, “I struggle to have a conversation. I’ve lost my thinking ability and short-term memory. I think that’s one of the hardest things.” Attribution: “Susannah Thompson, Former GP living with Long Covid.” Small line reads “BBC News | 1 March 2026” with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, “I struggle to have a conversation. I’ve lost my thinking ability and short-term memory. I think that’s one of the hardest things.” Attribution: “Susannah Thompson, Former GP living with Long Covid.” Small line reads “BBC News | 1 March 2026” with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, “Services that were there, instead of being enhanced, are being run down. I find that shocking and want to do as much as I can in parliament to raise the need for proper care.” Attribution: “Luke Akehurst, MP for North Durham.” Small line reads “BBC News | 1 March 2026” with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, “Services that were there, instead of being enhanced, are being run down. I find that shocking and want to do as much as I can in parliament to raise the need for proper care.” Attribution: “Luke Akehurst, MP for North Durham.” Small line reads “BBC News | 1 March 2026” with the Long Covid Support logo at the bottom.

“We are being left in some kind of void.” - Margaret O’Hara, Trustee, Long Covid Support

BBC News North East & Cumbria reports the region’s last dedicated Long Covid clinics are due to close this month.

Read: www.bbc.co.uk/news/article...

#LongCovid #LongCovidClinics

02.03.2026 15:55 👍 26 🔁 13 💬 0 📌 0
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In-Person Peer Support Group - Selly Oak, Birmingham, England Join us for the first session of the In-person peer support group, sharing experiences in a safe place & finding solidarity together.

Refreshments provided | Accessible venue | Online access available

Sign up at www.eventbrite.co.uk/e/in-person-...

#LongCovid #LongCovidSupport #PeerSupport

02.03.2026 11:42 👍 2 🔁 1 💬 0 📌 0
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Join us for our monthly In-Person Long Covid Support Group in Birmingham.

Free session for people with Long Covid to connect and support each other.

📅 Friday 20 March 2026
⏰️ 11am to 12pm
📍 Sense TouchBase, B29 6NA

Next session: Friday 24 April 2026

02.03.2026 11:42 👍 6 🔁 2 💬 1 📌 0
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Overlapping Illness Alliance Join the Overlapping Illness Alliance for effective advocacy and support for those with overlapping health conditions.

2/ By working together, we’re able to speak with a stronger, united voice on behalf of the communities we represent.

Learn more about the alliance here:
www.overlappingillnessalliance.org.uk
#LongCovid #MECFS #EDS #POTS #MCAS

23.02.2026 16:00 👍 3 🔁 1 💬 1 📌 0
Seven advocacy leaders pose together in a modern office atrium following a meeting. One woman sits in a wheelchair at the front, with six others standing behind her. The space features glass walls and hanging decorative lights.

Seven advocacy leaders pose together in a modern office atrium following a meeting. One woman sits in a wheelchair at the front, with six others standing behind her. The space features glass walls and hanging decorative lights.

1/ Our Chair, Nigel Rothband (centre), recently met with partners in the Overlapping Illness Alliance to move our shared advocacy work forward.

Together, we focused on how to improve recognition and strengthen support for people living with overlapping and under-recognised conditions.

23.02.2026 16:00 👍 7 🔁 4 💬 1 📌 0

Happening today at 6pm GMT

youtube.com/live/V8VWgLC...

11.02.2026 07:17 👍 8 🔁 2 💬 0 📌 0
Vitamin B12 — Could It Help Me? Dr Kane talks with Dr Andrew Klein
Vitamin B12 — Could It Help Me? Dr Kane talks with Dr Andrew Klein YouTube video by The Long Covid Clinic: What You CAN Do

Vitamin B12 deficiency is often overlooked, yet may contribute to symptoms in Long Covid and ME/CFS.

In this episode, Dr Binita Kane, Dr Andrew Klein and Helen Oakleigh discuss how B12 deficiency can be missed and what evidence-based treatment looks like.

🔗 www.youtube.com/watch?v=V8VW...

09.02.2026 15:01 👍 5 🔁 3 💬 0 📌 0
Vitamin B12 — Could It Help Me? Dr Kane talks with Dr Andrew Klein
Vitamin B12 — Could It Help Me? Dr Kane talks with Dr Andrew Klein YouTube video by The Long Covid Clinic: What You CAN Do

⭐ Episode 29: Vitamin B12 - Could it help me? ⭐
Long Covid Clinic: Fireside Chat Series

📍 YouTube live
📅 Wednesday 11 February
⏰ 18:00 GMT
🎥 This session will be recorded for those unable to attend live.

09.02.2026 15:01 👍 9 🔁 5 💬 1 📌 1

Great to see @laylamoran.bsky.social paying attention to the ongoing challenges faced by millions with #LongCovid. Let’s hope this leads to much needed action by the Health & Social Care Committee.
Thanks to @joplatt.bsky.social & @longcovidsupport.bsky.social Chair @nigelrothband.bsky.social!

28.01.2026 19:28 👍 7 🔁 3 💬 0 📌 0
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Really welcome seeing Long Covid Kids, @longcovidsupport.bsky.social & @longcovidsos.bsky.social all signposted to in this new community pharmacy resource on #LongCovid from the
@cppeengland.bsky.social (CPPE).

www.cppe.ac.uk/programmes/l...

#LongCovidKids #CPPE #PatientAdvocacy #Resources

02.02.2026 18:32 👍 10 🔁 5 💬 1 📌 0
A screenshot of a website. The txt says 'Long Covid Lives' - An image of a sad person looking down, they have blond hair. there are three graphic images (cartoon) showing three images from chapters of a graphic novel. One is a group of young people with a blue background, two is a young person resting on a sofa under a blanket with an image of a calendar in the background, three shows three young people talking outside in nature. There is a logo for 'positive negative'

A screenshot of a website. The txt says 'Long Covid Lives' - An image of a sad person looking down, they have blond hair. there are three graphic images (cartoon) showing three images from chapters of a graphic novel. One is a group of young people with a blue background, two is a young person resting on a sofa under a blanket with an image of a calendar in the background, three shows three young people talking outside in nature. There is a logo for 'positive negative'

Long Covid Lives has been produced from research undertaken by the Covid Made Long Project at the London School of Hygiene and Tropical Medicine in partnership with @imperialcollegeldn.bsky.social , @longcovidkids.bsky.social and @longcovidsupport.bsky.social

@posnegorg.bsky.social

04.02.2026 18:21 👍 6 🔁 2 💬 1 📌 0
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As we begin 2026, we wanted to pause and look back on 2025 and the work we’ve done alongside the Long Covid community. Our work spans Research, Influence and Support.

Thank you so much to everyone who supported us in 2025. We’re heading into 2026 with the same determination to drive change.

27.01.2026 18:20 👍 8 🔁 4 💬 0 📌 0

So encouraging to see in-person Long Covid support growing. If you’re nearby, the next group is on 5 February. Huge thanks to Fleur for leading.

26.01.2026 18:02 👍 4 🔁 3 💬 1 📌 0
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Attend In-Person Peer Support Group at Blacon, Chester Join us at the Long Covid In-person peer support group, sharing experiences in a safe place & finding solidarity together.

All the details for the next support group here:
www.eventbrite.co.uk/e/attend-in-...

#LongCovid #LongCovidSupport

26.01.2026 13:54 👍 5 🔁 2 💬 0 📌 0
Three people wearing face masks stand smiling in front of a colourful artwork, with “Long Covid Support” badges and clothing visible.

Three people wearing face masks stand smiling in front of a colourful artwork, with “Long Covid Support” badges and clothing visible.

A group of people sit around tables in a bright meeting room, listening to a speaker standing at the front during a support group session.

A group of people sit around tables in a bright meeting room, listening to a speaker standing at the front during a support group session.

We had such a lovely first in-person Long Covid support group in West Cheshire 💛 Thank you so much to everyone who came along.

Next group will be on 5th February (details via link below.

The sessions are led by Fleur Roberts, a former NHS Wellbeing Coordinator - we are so grateful for Fleur!

26.01.2026 13:54 👍 24 🔁 3 💬 4 📌 2

Reminder!
Happening today at 8pm GMT.

It will be recorded if you cannot join the live session.

@binitakane.bsky.social

21.01.2026 09:35 👍 8 🔁 6 💬 0 📌 0
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Navigating the Health Info Minefield THIRTY EIGHT: Welcome to Episode 28 of The Long COVID Clinic’s Fireside Chat Series with Dr Binita Kane, Helen Oakleigh and our guest Jessica Dove London - F...

2/ Dr Binita Kane and Helen Oakleigh are joined by Founder and CEO of Turnto (an AI health platform), Jessica Dove to discuss the challenges of navigating the health information minefield and how AI can help to cut through the noise.

19.01.2026 16:55 👍 6 🔁 3 💬 0 📌 0
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1/ Episode 28: Long COVID Clinic Fireside Chat Series

⭐ Navigating the health-info minefield

📅 Wed 21 Jan
⏰ 20:00 UK time
🎥 YouTube Live
🔗 youtube.com/live/W3fKUyl...

#LongCOVID #MECFS

19.01.2026 16:55 👍 12 🔁 5 💬 2 📌 2

Today we’re launching #ForThoseWhoCant, a new community fundraising campaign from Long Covid Support.
Many people living with Long Covid can’t fundraise themselves. This campaign is about making it easier for friends, families and allies to step in and show solidarity.

#ForThoseWhoCant #LongCovid

17.01.2026 16:49 👍 5 🔁 2 💬 0 📌 0
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Today we’re launching #ForThoseWhoCant, our new fundraising campaign.

It’s about making fundraising more accessible, with ideas and guidance for friends, family, and loved ones who want to support our work.

Email fundraise@longcovid.org or click here for more: www.longcovid.org/get-involved...

16.01.2026 11:01 👍 19 🔁 13 💬 0 📌 1
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The Long Covid groups are calling for:

1. Proper data on how Long Covid affects work and income
2. Economic and welfare policies that reflect the realities of Long Covid
3. Lived experience to be built into decision-making

12.01.2026 16:27 👍 19 🔁 5 💬 0 📌 1
Blue graphic with silhouettes of people along the top. Quoted text reads: “Many of those with Long Covid were left to bear the economic burden caused by the pandemic without support.” Long Covid Support logo at the bottom.

Blue graphic with silhouettes of people along the top. Quoted text reads: “Many of those with Long Covid were left to bear the economic burden caused by the pandemic without support.” Long Covid Support logo at the bottom.

“Many of those with Long Covid were left to bear the economic burden caused by the pandemic without support.”

12.01.2026 16:27 👍 12 🔁 4 💬 1 📌 3
Blue graphic with silhouettes of people along the top. Quoted text reads: “If you don’t measure it, you can’t manage it.” Long Covid Support logo at the bottom.

Blue graphic with silhouettes of people along the top. Quoted text reads: “If you don’t measure it, you can’t manage it.” Long Covid Support logo at the bottom.

“If you don’t measure it, you can’t manage it.”

12.01.2026 16:27 👍 4 🔁 3 💬 1 📌 0