Julie Sullivan

It is being recorded and will be available!

I’m on the webinar “Exploring Long COVID Treatments, Promising and Experimental
Featured speakers: Dr. Stuart Malcolm from RTHM, Dr. David Putrino from Mt. Sinai and Leo Galland Integrated Medicine

SO GOOD

It will take a month to analyze the results, they should have results by late April.
This is such important work to better understand viral persistence and pathways to clear residual spike protein.
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Want to hear something exciting?

The antigen assay developed by David Walt’s lab at BWH that can detect residual spike protein is analyzing the bio samples from RECOVER VITAL. They’ve run 4266 samples as of last week and are currently running the remaining samples.
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We also had the fabulous Hadas Golan SLP from Boston Medical Center. Hadas specializes in breathing and breathing dysfunction. In LC this presents as hyperventilation, diaphragm dysfunction and chaotic breathing pattern at rest and during exercise. Notes and her slides are available!
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They provide patient-centered rehabilitation to address fatigue and post exertional malaise. I cannot sing their praises enough, they GET it. Summary notes are in our google drive
drive.google.com/drive/folder...
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3/12 Day 3 of Long COVID Awareness Week. Featured speakers: Long COVID rehab from BIDMC- Kara McSheehy OTR occupational therapist, Becca Moore DPT physical therapist and John Scherry PT physical therapist
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XOXO

Public Awareness: Tomorrow 3/12 we will have Channel 5 WCVB news attending our presentations for a feature and I will be talking to Dan Rea on WBZ at 9:00pm!

Ellen Alden, mind/body coach helping others to regulate their nervous systems through meditation, vagal stimulation exercises, visualization and brain retraining. She also runs a free Long COVID community support group.
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Michael Doyle, the program manager for Long COVID research at BIDMC. He discussed clinical trials that are underway, including RECOVER SLEEP and ENERGIZE
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Tuesday 3/11 Featured speakers: Dr. Alexander Kim, anesthesiologist at BWH where conducts research and treats Long COVID symptoms with stellate ganglion nerve blocks
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Vasu Prudhivi is certified classical Hatha Yoga Instructor working at BIDMC's Sadhguru Center where they integrate research with mindful and holistic healing practices
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Dr. Ai-Ris Yonekura Collier is a physician-scientist at BIDMC. She discussed her clinical trial using JAK 1 inhibitor Abrocitinib to treat moderate-severe fatigue in Long COVID
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Monday 3/10 Featured speakers: Dr. Edmarie Guzman-Velez is a neuropsychologist and researcher at MGH. She discussed her research that used blood biomarkers to examine brain functioning by measuring neural injury and inflammation in the brain
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Long COVID Awareness Week is here! We are offering daily events and activities for the Long COVID community to learn about specific research and treatments. You can find the agendas and links here: drive.google.com/drive/folder...

You and others who are walking this path are my #1 priority always. :) I'm so grateful that we have the resources to do this!

We used feedback from our patients to create programming that will offer options for everyone to participate as they are able.
It feels more urgent than ever to drive awareness of Long COVID and support for those of you living with it. We will never stop working on your behalf. 💙
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On Saturday March 15, we are hosting both an outdoor meetup and a virtual gathering for people living with Long COVID.
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Each weekday will feature a theme and mindfulness prompt, presentations from Long COVID providers and researchers, a community action/advocacy opportunity and links to live and on-demand webinars
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We are thrilled to share our calendar of events leading up to #LongCOVIDAwarenessDay. This is a collaboration between Brigham and Women's COVID Recovery Center and Beth Israel Deaconess Medical Center's Covid & Critical Illness Recovery Program.
Folder of events:
drive.google.com/drive/folder...
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I will get contact information this week for anyone interested. This study will yield so much great information, I'm excited for it!

Study Visit #2 will consist of a bronchoscopy with endobronchial OCT imaging, bronchoalveolar lavage and endobronchial brushings.
- After 6 mos the subjects return for a rescreening visit and repeat bronchoscopy with OCT imaging, bronchoalveolar lavage and endobronchial brushings
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What to expect:
- A pre-screening eligibility questionnaire screening via visit or phone call.
- After informed consent is obtained, subjects will have safety labs drawn, undergo pulmonary function testing, cardiopulmonary exercise testing, and high resolution CT. Additionally, will perform an EKG

Inclusion criteria:
- Patient meets criteria for the diagnosis of PASC based on persistent symptoms of dyspnea, cough, and/or exercise intolerance and had a positive Sars-CoV-2 PCR test.
- FEV1/FVC ≥ 0.7
- DLCO > 30% predicted
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Specifically, they aim to determine whether the microscopic images provided by OCT can detect subtle disease features not detectable by Pulmonary Function Tests (PFTs) and High-Resolution Computed Tomography (HRCT).
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Mass General Hospital in Boston MA has a cool new new translational study about to start recruiting. The study is to determine if endobronchial optical coherence tomography (OCT) can serve as a low-risk, minimally-invasive method for the assessment of pulmonary disease in patients with Long COVID
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Also, One of the PIs from the BIDMC/Pfizer Abrocitinib trial is speaking to our group this week and answering questions.
Send me your questions! 💙

clinicaltrials.gov/study/NCT065...

I have a meeting this week with the PI here in Anesthesiology about the research they are doing here at Brigham on Long COVID and stellate ganglion blocks.
I would love to include questions from you!

RECOVER VITAL is close to completing treatment protocol for all enrolled participants.
They expect to post preliminary results within 2-3 months of completion!