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ICanCME Canadian Research Network

@icancmeresearch

Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019). #MECFS #PwME #LongCovid (Account managed by Sabrina.)

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Latest posts by ICanCME Canadian Research Network @icancmeresearch

02 Chamber survey | Physiosforme

New Survey now out: experiences of people with ME and Long Covid with hyperbaric oxygen / oxygen therapy.

Please share widely.

For all the info and survey link, head on over to

www.physiosforme.com/o2survey

05.02.2026 18:39 πŸ‘ 37 πŸ” 30 πŸ’¬ 1 πŸ“Œ 4

We would love your support in helping us to increase our reach.

Please like, share, and subscribe to the videos on YouTube and on here. πŸ’™

05.02.2026 18:35 πŸ‘ 7 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0

Hey there. Have you watched yet?

What are you waiting for? It’s great content, driven by #PwME!

#ICanCME2025

30.01.2026 05:33 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Preview
Welcome! You are invited to join a webinar: SMART Grants - English Webinar. After registering, you will receive a confirmation email about joining the webinar. Please join us for more information on the SMART grants. This webinar will be in English.

For those with questions, we will be hosting SMART Webinars - Thursday, February 5th.

3 pm EST-In English

us06web.zoom.us/webinar/regi...

4 pm EST-In French

us06web.zoom.us/webinar/regi...

You must register to attend, but these are not mandatory webinars required to apply.

29.01.2026 19:42 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Programme de subventions SMART - ICanCME

For those wishing to apply in French, please view this link to see the French application:

icancme.ca/fr/recherche...

29.01.2026 19:04 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
SMART Grant Program - ICanCME

Our SMART grants are open for researchers interested in studying Myalgic Encephalomyelitis!

Please check out the criteria and deadlines in the application.

icancme.ca/research/sma...

29.01.2026 19:03 πŸ‘ 4 πŸ” 3 πŸ’¬ 1 πŸ“Œ 0

@physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @fisiocamera.bsky.social @uoftmedicine.bsky.social

29.01.2026 19:02 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

A big thank you to all those who helped to make this event a reality!

It took over a year and a half of planning and work to pull it off and we want it to continue to have a positive impact.

So please help us get the word out and share broadly. πŸ’™πŸ’™πŸ’™

20.01.2026 23:04 πŸ‘ 4 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Our AMAZING speakers included leaders and groups such as…

@sunsopeningband.bsky.social @virusesimmunity.bsky.social
@polybiorf.bsky.social @daniellebeckman.bsky.social @exceedhergrasp1.bsky.social

And so many more that I cannot seem to find/tag on here. Check it out.

20.01.2026 22:59 πŸ‘ 7 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
Preview
ICanCME Research Network

Hey everyone. Our #ICanCME2025 #conference videos are up on YouTube. πŸ’™

The theme of our #Canadian conference was β€œNothing About Us Without Us”.

Please #subscribe to our channel to help us drive engagement and watch and like our videos too.

youtube.com/@icancmerese...

20.01.2026 22:55 πŸ‘ 16 πŸ” 10 πŸ’¬ 1 πŸ“Œ 2

@physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @fisiocamera.bsky.social @sunsopeningband.bsky.social @uoftmedicine.bsky.social @breathewellphysio.bsky.social

20.01.2026 20:58 πŸ‘ 3 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

@kellyobrien25.bsky.social @drjillcameron.bsky.social @physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @uoftmedicine.bsky.social @apresj20.bsky.social @breathewellphysio.bsky.social

06.01.2026 19:26 πŸ‘ 4 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

Thank you for the great work!

07.11.2025 00:22 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Day 3 of the @icancmeresearch.bsky.social conference is up as a live thread and now a brief writeup.

simonspichak.beehiiv.com/p/day-3-of-t...

07.11.2025 01:31 πŸ‘ 8 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0

Thank you for supporting us! πŸ’™

07.11.2025 00:20 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

If you didn’t watch the third and last day of the #ICanCME2025 Conference for ME/CFS, here’s the live tweeting stream by @spichaksimon.bsky.social. Thanks, Simon, and thanks to @icancmeresearch.bsky.social for such a brilliant conference.

06.11.2025 22:24 πŸ‘ 24 πŸ” 11 πŸ’¬ 2 πŸ“Œ 0

#ICanCME2025

06.11.2025 19:48 πŸ‘ 5 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Thread for Day 3 of the @icancmeresearch.bsky.social conference. My attempt at simultaneously sharing on X and Bsky.

06.11.2025 17:48 πŸ‘ 24 πŸ” 10 πŸ’¬ 3 πŸ“Œ 4
Menu for Day # 3 #ICANCME Conference

Menu for Day # 3 #ICANCME Conference

@icancmeresearch.bsky.social

#ICANCME2025 Wow what an agenda for Day # 3

06.11.2025 18:24 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
Post image

It is a privilege to represent the paediatric community, amplify young voices & share insights from families with lived experience.
Looking back at @ LCK's early work I will always be grateful to our #volunteers - inc @drsuepeters.bsky.social
πŸ‘‰#Blog
bit.ly/3LwLXCp
@icancmeresearch.bsky.social

06.11.2025 18:29 πŸ‘ 3 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Are you registered?

If so, please join us for our last day together! πŸ’™

06.11.2025 13:06 πŸ‘ 7 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Post image

We were delighted to be invited to join the @icancmeresearch.bsky.social conference for day 2 to represent CYP with overlapping illnesses - LC and ME.
Sharing CYP artwork, quotes, poems from, insights on language CYP use, caregiving and support needs.

#ICanCME2025 #Paediatric #Children

05.11.2025 21:49 πŸ‘ 18 πŸ” 7 πŸ’¬ 2 πŸ“Œ 1

@icancmeresearch.bsky.social thank you so deeply for bringing together the most dedicated and brilliant minds to share their care which we so deeply lack. Thank you Sabrina for your advocacy that I continually feel is a calling. πŸ©΅πŸ’™πŸ©΅

05.11.2025 22:52 πŸ‘ 3 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

I'll be back live tweeting/skeeting the @icancmeresearch.bsky.social conference tomorrow. Will try to get it going on BlueSky AND X simultaneously.

#ICanCME

06.11.2025 01:18 πŸ‘ 6 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
Video thumbnail

We are excited and ready for day 2 of @icancmeresearch.bsky.social!

#MEAction’s Scientific Director, Jaime Seltzer @exceedhergrasp1.bsky.social, is speaking soon!

#ICanCME2025 #pwME #MECFS

05.11.2025 17:58 πŸ‘ 31 πŸ” 9 πŸ’¬ 4 πŸ“Œ 2

Excited for day two of the excellent @icancmeresearch.bsky.social conference!
Starting now! #ICanCME2025

05.11.2025 18:00 πŸ‘ 9 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0

It was so lovely having you there Nandini! Thank you for your kind words and the support.

05.11.2025 02:22 πŸ‘ 3 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

This is not just a conference. It's a meeting of scientific minds who are genuinely bridging the gap between lived experience & scientific inquiry.
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social

05.11.2025 01:57 πŸ‘ 10 πŸ” 6 πŸ’¬ 2 πŸ“Œ 1
Preview
Day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis A brief summary of the presentations.

And coverage for Day 1 of the #ICanCMEConference by the
@icancmeresearch.bsky.social. Features a link to my live tweets.

simonspichak.beehiiv.com/p/icancme-da...

05.11.2025 02:00 πŸ‘ 23 πŸ” 13 πŸ’¬ 4 πŸ“Œ 4

Joining day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis (ME).

Huge shout-out for the respect for lived experience! Wonderful start!

#ICanCME2025

#NothingAboutUsWithoutUs

@icancmeresearch.bsky.social, applause to planning team!

04.11.2025 18:17 πŸ‘ 27 πŸ” 7 πŸ’¬ 0 πŸ“Œ 0