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Alisa

@ibc-advocate

Inflammatory breast cancer #IBC survivor and patient advocate. #thinkibc Loves: science | running | cats | books | chocolate

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17.11.2024
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Latest posts by Alisa @ibc-advocate

Thank you for doing this life-saving research.

17.02.2026 19:17 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Blood biomarker points to increased risk of brain metastasis in patients with inflammatory breast cancer Researchers at The University of Texas MD Anderson Cancer Center have identified a targetable driver of brain metastases in patients with aggressive inflammatory breast cancer.

Elevated blood levels of soluble E-cadherin are linked to increased risk of brain metastasis in inflammatory breast cancer, highlighting a potential target for therapy and risk assessment.

29.01.2026 13:46 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

This.

23.01.2026 18:07 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Hone your #advocacy skills and learn the important basics of #breastcancer science, research methodology, and trial design. Apply to attend NBCC’s 2026 Project LEAD Institute today! For more information, visit: https://nbcc.info/ProjectLEADInstitute

28.12.2025 17:00 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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When Vaccine Research Raises the Wrong Questions How the CDC quietly announced funding a study for global vaccine research that has questionable ethical considerations

More insights on this unethical vaccine study - which is paid for by the CDC and involves experimenting on a vulnerable infant population.

19.12.2025 01:45 πŸ‘ 207 πŸ” 81 πŸ’¬ 9 πŸ“Œ 5

From in silico prediction to experimental validation: Identification of drugs and novel synergistic combinations that inhibit growth of inflammatory breast cancer cells https://www.biorxiv.org/content/10.64898/2025.12.10.693562v1

13.12.2025 21:47 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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UNITE to help end breast cancer at the #NBCCSummit! Join tireless and talented breast cancer advocates who will help NBCC achieve our mission to end breast cancer for everyone. Nbcc.info/26Summit

14.12.2025 17:00 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

All of this. Especially for MBC but for all patients. #cansky

13.12.2025 23:45 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Unraveling the Complexity of Cancer-Related Cognitive Impairment in Breast Cancer Cancer-related cognitive impairment (CRCI) is an important clinical problem that affects many patients with cancer and includes difficulties in memory, attention, processing speed, and executive funct...

Chemo = brain fog. Chemo + hormone suppression = more brain fog. You don’t say. Seriously, though, I am glad to see it’s getting studied. jamanetwork.com/journals/jam...

13.12.2025 23:42 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Sick in a Hospital Town: As Phoebe Memorial Grew, the Health of Albany, Georgia, Declined The five-part series, β€œSick in a Hospital Town,” pursues one question: Why are people in Albany so sick when its most powerful institution is a hospital?

When ProPublica’s @gingerthompson.bsky.social began talking to people in Albany, GA, she didn’t expect that they would be so fearful to criticize the town’s sole hospital on the record β€” or how powerless they were to hold that hospital to account.

Read our 5-part "Sick in a Hospital Town" series:

13.12.2025 21:00 πŸ‘ 231 πŸ” 67 πŸ’¬ 5 πŸ“Œ 4
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GLP-1s May Throw Off Some Medical Scans The latest quirk linked to GLP-1 receptor agonists is of more concern to doctors than patients

"New research finds the latest quirk of #GLP-1 receptor agonists is that they may influence the interpretation of oncological #FDG PET/CT scans. 'We noticed unusual uptake in 1 of our pts on a GLP-1 agonist, which prompted a wider review.' The team conducted a retrospective case ..." 1/3 #CanSky

13.12.2025 18:53 πŸ‘ 0 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
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Impact of Postpartum Diagnosis on Survival of Women with Inflammatory Breast Cancer - PubMed Unlike in noninflammatory invasive breast cancer, postpartum diagnosis did not negatively affect prognosis in IBC. These findings highlight the continuing need to identify unique drivers of aggressive biology in IBC.

Inflammatory breast cancer is very aggressive.
The aggressive biology of IBC may override any additional risks imposed by a postpartum diagnosis.

pubmed.ncbi.nlm.nih.gov/40938309/

08.12.2025 16:53 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Trastuzumab Deruxtecan in Residual HER2-Positive Early Breast Cancer | NEJM Patients with human epidermal growth factor receptor 2 (HER2)–positive early breast cancer and residual disease after neoadjuvant therapy are at high risk for recurrence. In a phase 3, open-label, ...

πŸ“’ Hot from the Press: Now published in #NEJM!

We are excited to share that the pivotal DESTINY-Breast05 data β€žTrastuzumab Deruxtecan in Residual HER2-Positive Early Breast Cancerβ€œ presented by Sibylle Loibl at #SABCS2025, is now available.
πŸ”— Read the full NEJM article:
www.nejm.org/doi/full/10....

10.12.2025 22:14 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

MRIs are still the gold standard for inflammatory breast cancer.

12.12.2025 03:44 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

So interesting listening to @tmprowell.bsky.social and other FDA oncologists on an Alamo Advocate panel. Thank you so much for being there and answering patient advocate questions. #sabcs2025

11.12.2025 18:28 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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Partners in Progress: This #SABCS25 Plenary Lecture will showcase how patients and advocates have expanded their roles in every stage of breast cancer researchβ€”including clinical trial design. Learn more in SABCS Meeting News:
buff.ly/yKwCDRx

21.11.2025 17:00 πŸ‘ 3 πŸ” 3 πŸ’¬ 0 πŸ“Œ 1
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Presenters share the latest cutting-edge researchβ€”including data from the ALTERNATE, I-SPY, and MARRES trialsβ€”during a Rapid Fire session at #SABCS25.

10.12.2025 03:31 πŸ‘ 3 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Excellent talk this afternoon on dormant cell research and ways of targeting those cells to prevent recurrence. Important for all breast cancer survivors, but especially IBC patients. #sabcs2025 #inflammatorybreastcancer

09.12.2025 23:06 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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San Antonio Breast Cancer Symposium 2025 Top 10 Abstracts Suggested by Paolo Tarantino - OncoDaily San Antonio Breast Cancer Symposium 2025 Top 10 Abstracts Suggested by Paolo Tarantino / Breast Cancer, cancer, Headlines, OncoDaily, Oncology, Paolo

San Antonio Breast Cancer Symposium 2025 Top 10 Abstracts Suggested by Paolo Tarantino

@ptarantinomd.bsky.social
@sabcs.bsky.social

oncodaily.com/voices/breas...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #SABCS #SABCS2025

08.12.2025 21:59 πŸ‘ 4 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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AACR Announces 2025 Breast Cancer Research Award Recipients Ahead of SABCS 2025 - OncoDaily AACR Announces 2025 Breast Cancer Research Award Recipients Ahead of SABCS 2025 / AACR, Breast Cancer, OncoDaily, onoclogy, SABCS 2025

AACR Announces 2025 Breast Cancer Research Award Recipients Ahead of SABCS 2025

@theaacr.bsky.social
@sabcs.bsky.social
@stolaney1.bsky.social

oncodaily.com/industry/aac...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #AACR #BreastCancer #SABCS #SABCS2025

06.12.2025 17:30 πŸ‘ 5 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0

Excited to be at SABCS, the largest breast cancer symposium in the world #alamoadvocateprogram #sabcs2025 #thinkibc

08.12.2025 23:16 πŸ‘ 4 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
30.11.2025 20:55 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Guideline concordant care rates in IBC dropping over time

Guideline concordant care rates in IBC dropping over time

Conference attendees at IBCCC

Conference attendees at IBCCC

Such wonderful networking and brainstorming today at the IBC Connect and Community - we will create an email distribution to connect clinician and community teams, interested in projects and ideas to improve adherence to guidelines for IBC- Please DM if you would like to join the list! #cansky

14.11.2025 15:48 πŸ‘ 9 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

β€œIf your doctor first treats the symptoms as an infection and they don’t improve within a week, ask for more tests, such as imaging or a biopsy, to find the cause. If redness or swelling continues, especially if you’re not breastfeeding, ask for a follow-up visit right away.”

18.11.2025 10:12 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

I wish your friend well. Obamacare saved my life. I lost my health insurance in Aug of 2016. Found a lump Oct 2016. Signed up for ACA insurance Jan 2017 and started treatment for my Stage III TN IBC(Triple Negative Inflammatory Breast Cancer) which is also a death sentence without treatment.

12.11.2025 11:54 πŸ‘ 9 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

Honored to be a presenter at IBC Community Connect Conference - it’s wonderful to be in the presence of so many brilliant, dedicated people. #IBCCC2025 Thank you @ibcradiation.bsky.social for bringing everyone together.

14.11.2025 17:30 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
A flow chart comparing illness script-based vs pathophysiological approach to patient diagnosis. It starts with symptoms & lab values, diverges into two approaches, and then converges on potential diagnoses and treatments.

A flow chart comparing illness script-based vs pathophysiological approach to patient diagnosis. It starts with symptoms & lab values, diverges into two approaches, and then converges on potential diagnoses and treatments.

πŸ’¬ Viewpoint: Medical education should shift from pattern recognition to critical thinking and pathophysiological reasoning to reduce diagnostic errors and adapt to #AI advancements. #MedEd

ja.ma/46VhjuI

25.09.2025 16:15 πŸ‘ 2 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0

Looking forward to reading this one.

25.09.2025 18:13 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Important, evidence-based information about birth control pills.

22.09.2025 21:10 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Epigenetic Modifiers in Cancer Therapy: Unlocking New Treatment Pathways - OncoDaily Epigenetic Modifiers are Drugs that alter gene expression by modifying DNA or histones without changing the sequence and reprogramming cancer

Epigenetic Modifiers in Cancer Therapy: Unlocking New Treatment Pathways

oncodaily.com/oncolibrary/...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #EpigeneticModifiers #CancerTherapy

22.09.2025 19:48 πŸ‘ 4 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0