BBC Politics North: Long Covid patients ‘being forgotten’
YouTube video by Broken Battery
Full video (8 mins)
BBC Politics North - Long Covid patients being forgotten as the last NHS clinic is set to close in the North East and Cumbria. Features former GP Susannah Thompson, Dr Margaret O’Hara, Dr Rae Duncan, alongside a number of MPs.
youtu.be/ay_2M9fI3z8?...
02.03.2026 07:57
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New School Guidance announces:
Full bathroom ban.
Full PE ban.
Full school trip accommodation ban.
Trans kids will not go to the bathroom, do PE or go on any school trips. 1/
12.02.2026 17:48
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Bluesky Blowup
How the ME/CFS patient community is reading Invisible Illness
1/ In response to Emily Mendenhall’s recent Substack on critiques of her book Invisible Illness by the community & Wessely's legal threats.
Anthropology is often open to dialogue & critique, so let’s situate this moment historically & structurally. 🧵
open.substack.com/pub/emilymen...
19.01.2026 00:51
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Long COVID: a long road ahead
Abstract. The SARS-CoV-2 pandemic caused an estimated 400 million people worldwide to experience Long COVID and post-COVID complications leading to signifi
University at Buffalo neurologists report at least 400 million people worldwide may have Long COVID, with half meeting criteria for ME/CFS.
Most therapies remain only partially effective, leaving many patients disabled and without relief.
academic.oup.com/ooim/article...
23.12.2025 16:11
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(1/5) Long Covid: Latest Evidence-based Pathophysiology Clues Infographic 🧩
On this day, exactly 5 years ago I tested positive for a Covid infection that triggered the onset of my Long Covid and its devastating symptoms, which still debilitate me to this day.
10.12.2025 21:40
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Who decides (professionals or individuals) if fear of X is unreasonable/unfounded and therefore a person is anxious?
Gold standard anxiety treatment is CBT graded exposure. Will more of X make a person feel better?
Or is it a stress reaction or a trauma response?
Treatments vary a lot.
10.10.2025 07:48
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Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
08.10.2025 06:08
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🔬Interesting new brainstem and cerebellum study in Long COVID - new imaging findings
A new brain imaging study of Long COVID patients reveals major damage in key parts of the brain responsible for movement, balance, and automatic body functions like heart rate and sleep
Let’s break it down🧵
19.08.2025 16:12
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Incredibly powerful watch about the government plan on ME from @binitakane.bsky.social and Sarah, whose daughter Maeve died from ME.
NHS urgently needs to commission specialist services for the 100,000s people living with this debilitating condition.
watch here
youtu.be/GZbSrdtiA9k?...
22.07.2025 11:08
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A slide showing boxes with multiple symptoms and traits commonly seen in post-viral conditions eg allergies, ADHD, sleep problems.
I did my safeguarding level 3 mandatory training this week on FII (Fabricated or induced illness - seen as a form of child abuse) and PP (perplexing presentations) i.e. symptoms that don’t make sense to paediatricians.
Look at the symptoms that these ‘abusive’ parents may report.
15.07.2025 08:12
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A black and white image features Dr. Francis Ryan, a journalist, seated and looking forward with a somber expression. She has long, light-colored hair and is wearing a dark, off-the-shoulder top.
Below her image, a quote is displayed in white text against a dark purple background: "When we are healthy, we tend to believe doctors fix you... Within a few months of getting sick, I knew this was a lie. It wasn't simply that medics didn't know how to treat me, it was how they treated me."
In the bottom left corner, there's a logo for "LONG COVID ADVOCACY" with a hand icon. In the bottom right corner, it says "- DR FRANCIS RYAN, JOURNALIST". Two large, pink quotation marks are in the top left corner of the image.
📚💙 This quote will resonate & reach out to so many women with chronic illness. We know the system is broken but it impacts our lives in profound & traumatic ways.
It's from the Healthcare chpt in 'Who Wants Normal?' by @francesryan.bsky.social
Powerful & validating.
#pedanticzebra
12.07.2025 11:05
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Patients with severe ME/CFS need hope in the form of evidence-based interventions, not opinions.
Our evidence-based rebuttal to *that* BMJ opinion piece published last week.
This has been authored by a coalition of 19 doctors, scientists and patient advocates from around the world, with now 80+ signatures of support from the scientific community.
www.bmj.com/content/389/...
21.05.2025 13:14
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An illustration to help differentiate inequality, equality, equity and justice. It is justice we are ultimately striving to achieve and it’s important to remember that.
#autism #autistic #neurodivergent #neurodiversity #neurodivergence #AutisticExperience #inequality #equality #equity #justice
07.04.2025 05:55
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Thanks Sadžida.
19.01.2025 19:17
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Thanks Pippa
18.01.2025 21:43
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Hello #edpsychs! I wondered whether I could ask for some advice.
Excitingly, I’ve been invited to interview for a DEdPsych course. I have long covid though, and I’m worried whether I could do it. Does anyone have any advice for how to manage this work/training/interview with a long-term condition?
18.01.2025 16:41
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Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane.
1/
20.11.2024 11:27
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I have been running a non-fiction book club in our bookshop since 2017.
Here are 10 books that we’ve read that have inspired the best and most memorable discussions and left the most lasting impact.
Some are stone cold classics, and some are more recent less well-known offerings 👇
17.11.2024 08:20
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11.11.2024 08:45
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