I missed that. There was *a lot* happening.
That's awesome.
I missed that. There was *a lot* happening.
That's awesome.
The American disability studies field either failed to read or failed to understand the UPIAS Fundamental Principles document (archived at Leeds' Disability Archive UK) and have been misleading students about the social model for decades.
Very few 504 "experts" remember Frank Bowe. &c
Frustrating.
Few do.
And much of what we are told is wrong.
In Judy Heumann's 2nd memoir she suggests EAHCA was in effect when she was in elementary school.
I've sat through multiple trainings in which I was told Lois Curtis was a white woman in a wheelchair in a nursing home.
Salem, O -> OmelaS.
That show made me feel like when Warren "Wawa" Snipe performed.
p.s. Thank you.
... prison and other instutution workers' unions. The jobs involved in controlling people on institutional campuses pay better than community-based roles, so the institutionalization of large numbers of our neighbors is something other neighbors fight to preserve. 2/2
My understanding is that Omelas is pretty specifically a commentary on the state hospital in Salem, Oregon (read it backwards), where decent lives for workers were provided at the expense of those warehoused there.
The IMD exclusion changed the politics but you see the same pattern with 1/?
It's a team sport. It has to be a team sport to work.
I regret that we don't have more players on the field, not that the players we have aren't zipping around doing everything.
And yes, this reflection is brought to you in part by my own present inability to play my position.
Those versions of reality will be tied to the perspectives of those who helped popularize them, and because we are so diverse, most of us will be left out of those versions.
I've watched that happen for decades. It has not served us well.
If you covered everything there would be no spaces for other people to fill.
If we don't make room for rising leaders, we will stifle their growth. If we don't make room for multiple approaches to the work (yours, mine, &c.), we will get locked into a few versions of reality.
I spent too many years on the idea that it's not okay to put disabled newborns on shelves until they die and then tell the parents they couldn't be saved, among others, to want to lose what little progress we have made on the "People we look down on should die" front.
A kind reminder that a "politics of you deserved this" (cancer, vaccine-preventable disease, natural disaster, etc) has no place in public health. We can hold bad actors to account without punching down on the groups most harmed by their actions and/or resorting to shame, blame, and stigma.
It doesn't matter if they are ever coming for you.
It was always ever already too much that they were coming for anyone.
What I am here for is to speak directly to those of you who see the bullshit, who smell the sulfur in the air, who feel the psychic tremor of something sick pulsing beneath the surfaceβand are asking: What the hell can we do?
Hereβs my answer:
Donβt. Fucking. Comply. 10/23
Lurie Children's cancelled trans-affirming surgeries.
People rescheduled at Northwestern Memorial. Northwestern, which claims it is illegal to restrict doctors' actions in any way (including asking them not to commit violent felonies at work) cancelled them.
This is on-brand for the neighbourhood.
I feel like the literature on the Sorites Paradox may offer insight.
I'm also not suggesting you read it all.
My Congressional rep sent me an email.
She promises to fight Trump in the courts.
She does not promise to fight him in Congress.
This feels both significant and business-as-usual to me.
Given the fragility of life, I'd say we should at least check in on our values and limitations (innate or imposed) pretty often, because there are only 168 hours in the week and we need to spend some of that in REM sleep.
Also tell our doctors, so they don't refer us to psych for living our values.
In other news, yesterday afternoon my 8-year-old deaf dog looked out the window at the wrong time and discovered lightning.
Then he had to go out, and he discovered hail.
He does not consider the sky to be his friend.
Let's do a thread for Palestinians who need support. If you are Palestinian, please drop your fundraiser links below!
Followers, please share, and if you have a little extra, please consider donating!
They are legally innocent.
They are sometimes also factually innocent.
They are often charged with misdemeanors.
What happens if all of a sudden you don't show up to your job, or for your kids, for a couple months?
The consequences of being charged with a crime can be huge.
They are now listed as out of stock from the publisher.
Which I see as a communications achievement.
Also, sometimes when something doesn't make sense to you, it's because you don't understand it yet.
Sometimes it's because it's not true.
And also, having certain kinds of information and even knowledge are often more markers of *privilege* than intelligence.
I want to hear from people about tariffs impact people's ability to get their meds + medical devices for @motherjones.com. My signal is @juliametraux.49 and my email is jmetraux@motherjones.com. I am Mother Jones' disability reporter.
I am sleep deprived enough that time resembles Silly Putty so in the interest of not telling you happy birthday in October, I will be early.
Happy birthday! And I hope the cake is delicious.
I am glad you exist.
I think in the current environment I might have edited this to specify that I wanted bullet *points* instead of bullets for much the same reason that I have always been trained that when trying to get a distressed person to put down a weapon I should not point at it and say "Give it to me."
I have watched both Reoublicans and Democrats build toward this moment since the 1980's. And I have understood that I was seeing it that whole time.
I understand that James Carville is a brilliant strategist but if the car has been motionless for decades maybe hitting the brakes is not the top job.
And blocked.