Palliative Medicine Journal

NEW PAPER: Our decision-modelling study showed specialist palliative care in England (home and hospital) saved £817M, freed 1.5M hospital bed days, helped 20,000+ people die outside hospital and improved quality of life. #palliativecare #palliativemedicine

Read now in @palliativemedj.bsky.social
With thanks to the team led by Dr Peter May, with Dr Elham Nikram, @gemma-clarke.bsky.social , Dr Sarah Mitchell, Prof Irene Higginson and @katherinesleeman.bsky.social , @flissmurtagh.bsky.social

Sage Journals: Discover world-class research Subscription and open access journals from Sage, the world's leading independent academic publisher.

New paper, out today in @palliativemedj.bsky.social

Specialist palliative care improves patient experience, reduces bed days and saves money: An economic modelling study of home- and hospital-based care

journals.sagepub.com/doi/10.1177/...

🚨 Our first issue of 2026 is out! Content includes a peek into how we manage your manuscripts, and papers on psychedelics, pressure ulcers, caregiving, professional identity and more. Check out the table of contents: journals.sagepub.com/toc/PMJ/curr... #hpm #hapc #palliative

NEW PAPER People from minority ethnic groups face inequities in palliative and end-of-life care, yet research methods often fail to capture them. We worked with patients, carers, clinicians, and researchers to develop 13 principles for better research on ethnicity in palliative care. #palliativecare

Sage Journals: Discover world-class research Subscription and open access journals from Sage, the world's leading independent academic publisher.

Just out in @palliativemedj.bsky.social:

Our practice review brings together the latest evidence on managing gastric outflow obstruction in palliative care

Available open access here: journals.sagepub.com/doi/full/10....

Want to find grey literature? See our latest methods and methodology paper presenting a 12-element framework to support flexible yet systematic searching of grey literature in #palliative care research journals.sagepub.com/doi/full/10.... #hpm #hapc

Mapping the science of palliative care – name the bias, then bridge it There has been an increasing amount of palliative care research over the past few decades and the evidence base has been growing fast. For Palliative Medicine Editor’s Choice for October 2025, Fabr…

‘Research output still clusters in high income countries.’ Read this week’s #EAPCblog looking at the 100 most cited research papers bit.ly/42D8raJ @palliativemedj.bsky.social

Different advance care planning intervention types impact patient outcomes to varying degrees. #hpm #hapc #acp journals.sagepub.com/doi/full/10....

Improving holistic palliative care support: perspectives from five countries on hospital end of life care volunteer services The iLIVE Volunteer Study supported the development and implementation of hospital end of life care volunteer services in five hospitals in five countries. For July’s Palliative Medicine editor’s c…

‘With more people dying in hospitals, the need for volunteer support in this setting will increase’ Find out more in this week’s #EAPCblog bit.ly/4pdKSyP @livuni-ilcams.bsky.social @livunihls.bsky.social @careforthedying.bsky.social @palliativemedj.bsky.social

Improving holistic palliative care support: perspectives from five countries on hospital end of life care volunteer services The iLIVE Volunteer Study supported the development and implementation of hospital end of life care volunteer services in five hospitals in five countries. For July’s Palliative Medicine editor’s c…

This week’s #EAPCblog ‘We found that volunteers brought meaningful company, comfort and human connection to seriously ill and dying patients in hospitals.’ bit.ly/4pdKSyP @palliativemedj.bsky.social ‪ @careforthedying.bsky.social @livunihls.bsky.social @livuni-ilcams.bsky.social
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September issue online today! Assisted dying, advance care planning, sedation, bereavement and more. Check it out at journals.sagepub.com/toc/PMJ/curr... #hpm #hapc.

Palliative care and assisted dying: uneasy bedfellows. Read the latest editorial from James Downar and Nancy Preston. journals.sagepub.com/doi/full/10.... #hpm #hapc

Palliative care and assisted dying: uneasy bedfellows. Read the latest editorial from James Downar and Nancy Preston. journals.sagepub.com/doi/full/10.... #hpm #hapc

September issue online today! Assisted dying, advance care planning, sedation, bereavement and more. Check it out at journals.sagepub.com/toc/PMJ/curr... #hpm #hapc.

Enhancing the wellbeing of refugees living with advanced life-limiting illness in high-income resettlement countries: A systematic review Sage Palliative Medicine & Chronic Care · Episode

Please LISTEN to Heidi Merrington and Angela Dawson describe their research: #PalliativeCare needs of people seeking refuge @palliativemedj.bsky.social #podcast

Podcast
open.spotify.com/episode/3pWp...

Paper
journals.sagepub.com/doi/full/10....

#hapc
#hpm
#medsky
@lancasteruni.bsky.social

Mapping the Science of palliative care: A bibliometric analysis of the top 100 cited articles - Jacopo D’Andria Ursoleo, Alice Bottussi, Sandy Christiansen, Donald R Sullivan, Kelly C Vranas, William ... Background: The palliative care evidence base has grown substantially in recent years with the benefits, barriers, and facilitators of care delivery well establ...

A bibliometric analysis of the top 100 cited articles of the top palliative care articles Jacopo D'Andria Ursoleo et al. @billyrosaphd.bsky.social @palliativemedj.bsky.social

journals.sagepub.com/doi/10.1177/...

A call for improved support for parent-carers of children with a life limiting condition: fathers’ health and perspectives of caregiving With more children living with life limiting conditions, an increasing number of parents are providing extensive care for their child at home. The voices of fathers remain largely unheard in resear…

‘I feel like I need time to heal. But the situation we're in and the demands that we have with our child makes that impossible’. Read this week’s #EAPCblog bit.ly/47k8L1j @palliativemedj.bsky.social

Models, components and outcomes of palliative and end-of-life care provided to adults living at home: A systematic umbrella review of reviews - Sophie Pask, Chukwuebuka Okwuosa, Ahmed Mohamed, Rebecca... Background: There is growing demand for home-based palliative care because of patient preference, and increased number of deaths. Optimal models for community-b...

Latest paper from the @mariecurieeolc.bsky.social Better End of Life programme.

Meta-level evidence supporting provision of in-home palliative care, specialist palliative care and integration of primary pall care w specialist support.
journals.sagepub.com/doi/10.1177/...
@palliativemedj.bsky.social

Page not found | EAPC Blog The blog of the European Association for Palliative Care

‘Given the serious impact constipation can have on an individual’s comfort, dignity and wellbeing, and the associated health costs, we would be wise to reconsider our strategies’. Read @palliativemedj.bsky.social’s Editor’s Choice #EAPCblog by Amy Taylor bit.ly/3HeG3UA

Page not found | EAPC Blog The blog of the European Association for Palliative Care

‘Given the serious impact constipation can have on an individual’s comfort, dignity and wellbeing, and the associated health costs, we would be wise to reconsider our strategies’. Read @palliativemedj.bsky.social’s Editor’s Choice #EAPCblog by Amy Taylor bit.ly/3HeG3UA

Validating the socio-spiritual items of the Utrecht Symptom Diary—4 Dimensional: Content and construct validity - Tom Lormans, Everlien de Graaf, Frederieke van der Baan, Carlo Leget, Saskia Teunissen... Background: The Utrecht Symptom Diary—4 Dimensional (USD-4D) is a multidimensional Patient-Reported Outcome Measure to monitor symptoms and needs and increase p...

Healthcare providers need to consider how the USD-4D needs to be properly embedded in clinical care for patients to optimally benefit from using it. #hpm #hapc journals.sagepub.com/doi/full/10....

Multimodal interventions with a focus on symptom control, quality of life, peer support and with psychosocial input appear to be crucial to integrated, effective and patient led supportive care #hpm #hapc #palliativecare #ILD journals.sagepub.com/doi/full/10....

Resilience in both wife caregivers and husband caregivers increased over time but husbands had higher levels of resilience than wives. #hpm #hapc #palliativecare journals.sagepub.com/doi/full/10....

As the use of technology to sustain life increases, we need to question how much we expect of family members in providing care for those with complex interventions, such as ventilation, at home. #hpm #hapc journals.sagepub.com/doi/full/10....

Page not found | EAPC Blog The blog of the European Association for Palliative Care

This week’s #EAPCblog @palliativemedj.bsky.social’s Editor’s Choice ‘In healthcare settings Cognitive Authority plays out in subtle but powerful ways. It shapes which voices are heard, which kinds of knowledge are legitimised, and whose truths are sidelined.’ bit.ly/3Skhfga

Page not found | EAPC Blog The blog of the European Association for Palliative Care

This week’s #EAPCblog @palliativemedj.bsky.social’s Editor’s Choice ‘In healthcare settings Cognitive Authority plays out in subtle but powerful ways. It shapes which voices are heard, which kinds of knowledge are legitimised, and whose truths are sidelined.’ bit.ly/3Skhfga

Family caregiver-targeted web-based interventions may facilitate spouses’ and patients’ experience of sharing everyday life. #hpm #hapc journals.sagepub.com/doi/full/10....

Advance care planning and quality of life: A qualitative interview study in people with young-onset dementia and their family caregivers - Jasper Maters, Marieke Perry, Ton de Wit, Raymond T.C.M. Koop... Background: The importance of palliative care and advance care planning in dementia is increasingly recognized. However, little is known about the distinct need...

This study on young-onset #dementia identified future care preferences consistent with a palliative care approach, emphasizing palliative care goals and prioritizing quality of life in decision-making. #hpm #hapc journals.sagepub.com/doi/full/10....

Mary Godfrey 1953–2020

Since 2016 I've produced 138 podcasts for @palliativemedj.bsky.social Podcast #1 by Mary Godfrey explores cancer pain.

Mary Godfrey died in 2020, tribute 👇
academic.oup.com/ageing/artic...

Paper
journals.sagepub.com/doi/abs/10.1...

Podcast
sagepalliativemedicine.libsyn.com/godfrey-pati...

#hapc