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Melissa Kinch

@melissa-kinch

PhD candidate UCD | Child, Adolescent & Family Research | Patient Voice & Engaged Research | Rare Disease Research | Methods Enthusiast | All views are my own

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03.12.2024
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Latest posts by Melissa Kinch @melissa-kinch

Research In Action - New video from @ucdiris.bsky.social /Sophie Mulcahy Symmons's PhD research which aims to find solutions to promote cervical screening awareness by working with a group of women in inner city Dublin using an approach called co-design. bit.ly/UCD-VideoHere

11.02.2025 15:19 πŸ‘ 5 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
Rare But Real- Not Just a Number: Children and Young People Speak Up about Rare Diseases!
Rare But Real- Not Just a Number: Children and Young People Speak Up about Rare Diseases! YouTube video by RAINDROP

πŸ“’ New video alert πŸ“’
⭐ Our amazing RAiN #CRAG group co-designed an informational video to raise awareness of #RareDiseases among school-aged #children and #youngpeople.
🧬 70% of #RareDiseases affect #children and #youngpeople.
Check it out πŸ‘‡
youtu.be/Og3GC8uzURk?...

18.02.2025 10:26 πŸ‘ 9 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
Preview
Toolbox - Rare Disease Clinical Trial Network Rare Disease Clinical Trials Tools Table of Contents The Rare Disease Clinical Trial Network is grateful to the following organisations for their kind permission to share their resources with our members. PROVIDE TOOLBOX FEEDBACK Rare Disease Clinical Trials Toolbox ECRIN’s Rare Disease Clinical Trials Toolbox has been developed as a practical aid for developers of...

πŸ“š Looking for valuable resources on clinical trials? Check out Trial Forge’s collection of guides and tools designed to improve trial design and delivery. Explore this and other resources in our Rare Disease Clinical Trials Toolbox! rarediseaseresearch....

13.02.2025 14:32 πŸ‘ 3 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0