thanks guys 🙏 if that completed the advice line survey can complete that's 177 we can do this All #IBDnurses and not just service leads
it’s about individual case loads complete and shareAdult nurses www.surveymonkey.com/r/adultIBD
And children and young people Nurses www.surveymonkey.com/r/IBDPaeds
Happy #NursingSupportWorkersDay! 🎉
Today we shine a light on nursing support workers and the essential care they provide to patients and their families.
Join the celebrations – tag or send this to your colleagues to say thank you #NSWD25 https://bit.ly/3gdE0Cu
The working group ☎️ aim to understand the advice service provision in the UK now this is open to all #IBD Nurses not just service leads we need to hear from you all 🙏 92 already 💥 keep them coming ✔️
Deadline 31st October 2025. 📆
Don’t put it off do it now 👇
forms.cloud.microsoft/r/peWjupJjr5o
@ukibdnrn.bsky.social is proud to support the advice service working group in this project understating advice service provision in the UK now this is open to all #IBD Nurses not just service leads we need to hear from you all !!!
forms.cloud.microsoft/r/peWjupJjr5
#WorldIBDDay it takes courage #ibdawareness to talk about the hidden symptoms of #IBD and courage to live with the conditions Crohn's & Colitis UK crohnsandcolitis.org.uk/get-involved.... Have many ways you can support awareness #Courage
New data shows that A&E waits for those in a mental health crisis have risen substantially.
Additionally, the mental health workforce has not grown enough to keep up with demand for services.
Hear from members at #RCN25 on how this impacts them and those they care for.
#MentalHealthAwarenessWeek
#HappyInternationalnursesday to colleagues old and new its a privalge to be a nurse the career & opportunities I've had have been amazing now as a highly trained professional who also cares about the people I support grateful to support others in their journey when ever I can #RCN25 @rcn.org.uk
Well I’ve kept it to myself for a while but I’m now very happy to share that I’m taking up the role of IBD Nursing lead with #Crohns&ColitisUK their #IBDNursing programme has supported my own advancing nursing journey so it’s fantastic to be able to support other #IBDnurses
@D_ECCO_IBD Education #IBD #Nurses at #ECCO following excellent talks from @Y_ECCO_IBD showing the value of collaboration and #MDT working
#ECCO25 good sessions at #NECCO school this morning some good reminders from us all. increasing research into the importance of vitamin D replacement and a reminder of the Importance of managing fatigue note of value of nutritional optimisation and fatigue improvement
#HappyNewYear2025 the years fly by
This report speaks for itself highlights the challenges faced by patients it’s clear the state of the #NHS impacts the ability to Deliver the #IBDUK standards #Facethefacts @IBDUKTEAM @rthonwesstreeting.bsky.social investing in diagnosis & management improves outcomes
ibduk.org/reports/2024...
listening to the #ibduk report sobering information on delays in diagnosis worse in #crohnsdisease due to subtle presentation recommending the use of what’s up with my gut in primary care #FacetheFacts #IBDUK #CrohnsandColitisUK
www.whatsupwithmygut.org.uk
#IBD people can you help
Are you age 16-18yrs living with Crohn’s Disease and moving from paediatric to adult care? Do you want to shape the future of care? We are looking for people to take part in a 40min zoom interview to of transition services. If interested please contact karen.kemp@mft.nhs.uk
Can you help !!!
It’s easy to forget the challenges #IBD patient’s face when it comes to the routine things in life we all have aspiration to work live provide for our families it’s not so easy with #Longtermhealthconditions
#Society makes it hard to function @bottomlineibd.bsky.social how can we help change this
Thank you Helen xx
Your experience is why the campaign to improve and speed up diagnosis matters so much. !!!
I hope that you recover soon !
Such a horrible feeling not being able to do the things we expect of ourselves and that society expects of us !
So important to share the truth that some people live with!!! #IBD #Crohn’sdisease
So sorry to hear your journey has been so difficult
Finally, I started infliximab infusions - absolutely brilliant - but had to stop because surgery for #CrohnsAbscesses left me with open wounds so I can't sit down to get to hospital (transport) or for the infusions (3hrs). So, back to square one.
Waiting to hear what's next.
#CrohnsColitis
My truth? 17 years of symptoms; 17 years of dismissal by medicos resulting in scarring that is now irreversible.
Not until my private insurance (through my employer) and the death of an uncle from colon cancer was I taken seriously and was tested. Final diagnosis: #CrohnsColitis
Various meds over the years that didn't work. Steroids for flares resulting in #Type2Diabetes
Best thing I did during that time was have my periods stopped (thank you Mirena coil) as that reduced the number of flares.
Left England, relocated to Scotland. Was assigned my first #IBDNurse
This #CrohnsandColitisAwarenessWeek has been a reminder to me why I campaign and advocate for #IBD patients and on that note I’m delighted to have been voted to the #N-ECCO committee for 25-28 #IBDEducation done globally.
Naughty elf and gorgeous kid want to be a #CrohnsandColitisNurse @CrohnsColitisUK she put my lanyard on and said she was off to work … The elf well not sure what he’s up to !!
Hello FNF
