@iamcharleneyoung
💎Inspirational Mother of the Year Award Winner 2023 💎Nominated Patient Advocate 2021 💎Advisory Board Member 💎Workshop Facilitator Interests: #PublicInvolvement #PPI #PPIContributors #HealthResearch #ClinicalTrials #Patients #Engagement #EDI #Diversity
🔗To see the full poster visit: www.iamcharlene.com
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#PatientLedResearch #RareDisease #RareDiseaseResearch #PosterPresentation #ResearchCommunity #RareCancer #IAmCharlene #RareGems #BionicWarrior #PPI #PPIE #PatientInvolvement
I’m grateful to everyone who stopped by my poster to ask questions, share insights, and discuss the work that I've been doing.
Events like this highlight how important collaboration and knowledge sharing are within the rare and under-represented communities.
⭐️ I Won Best PPIE Poster ⭐️
I had the opportunity to present my poster at the King's Health Partners Rare Disease Network PPIE Event last Friday and I'm excited to announce that I won Best PPIE Poster!
Save the Date!
Join us for Optimising Recruitment & Retention in Clinical Trials. We've teamed up with UCD CRC, @hrb-tmrn.bsky.social, ICC CTN , and ID-CTNI for an essential day of learning and networking.
🗓️ May 26
🕘 9 am – 4 pm
📍 O'Reilly Hall, UCD
🔗 Register: www.eventbrite.ie/e/optimising...
🗣 Join the conversation tomorrow...
📍Where: Online (Zoom)
📅 When: Wed 25 Feb 2026
⏰️ Time: 12pm - 1pm
🔗 Register: ucd-ie.zoom.us/webinar/regi...
🗣 Join me on Thursday at YOU GOT THIS!—an intimate gathering for women creating success on our own terms.
Come and connect, recharge & be celebrated!🥳
📅 Date: Thur 25th Sept 2025
⏰️ Time: 10am - 3pm
📍Location: 65-69 East Road, London, N1 6AH
🔗 tinyurl.com/3n28j9p2
📅 Tuesday 2nd September 2025
📍 London SE1
⏰ 12pm - 5pm
📩 DM to express your interest
#EDI #PatientInvolvement #HealthResearch #PatientAdvocate #IAmCharlene
🗣️ Join me as I'm hosting an EDI Table Talk at the South East London Cancer Research Panel (SELCRP) Patient Involvement Event!
A space for open, honest conversations about Equity, Diversity, and Inclusion (EDI) in healthcare and research.
#SarcomaAwarenessMonth #RareGems #HopeOverFear #StrongerThanSarcoma #RareButResilient #SarcomaSurvivor #BionicWarrior #IAmCharlene
Although it's the last day of Sarcoma Awareness Month I continue to advocate for myself, those still fighting, for those we’ve lost, and for those who might not know what signs to look for. Early detection can save lives.
Advocacy can change outcomes and awareness matters.
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I'm so proud to have been featured in this Patient Advocacy Special Issue for E-Cancer on addressing health disparities and equitable representation in cancer research.
Read the article here: 👇🏾
ecancer.org/en/journal/a...
👋 Meet The People’s Review Steering Group!
Our steering group is made up of people like you and me from around the world. 🌍
They’ve been part of this journey since the very beginning - way back in November 2022. Time flies when you're having fun 😉
#JuneReset
#MidYearReset
#JuneRenewal
#ReflectAndReset
#JuneGoals
#PersonalGrowth
#GoalSettingCoach
#IAmCharlene
✨ Declutter - Clear out your space, delete old files.
✨ Reconnect - With friends, family, or even to yourself.
✨ Set New Intentions - List your top three priorities for the next few months.
How will you reset this month❓️
🌿 June Reset: A Mid-Year Fresh Start 🌿
June marks the halfway point of the year — a perfect time to pause, reflect, and realign your goals.
Here’s how you can reset:
✨ Reflect - Take a look back at the past six months.
⭐️Thank You for the Feedback⭐️
I’m incredibly thankful for the amazing feedback shared and knowing that the workshop made a real impact is the best reward of all..😇
📆 If you're interested in bringing this workshop to your Organisation or Patient Involvement Event, I’d love to hear from you!
Thinking out loud...💭
Who decides the rates? And who is on this review committee..? 🤔...
💡Overall this needs to be reviewed.
This deserves a whole blog post from me...LOADING!⏳️
www.nihr.ac.uk/about-us/wha...
The NIHR guidance payment rates for involvement activities often comes up at @Diverse_PPI and other meetings.
Discussions around 'the rates not matching up' to the level of involvement, sharing lived experiences/re-living trauma after these meetings have taken place... The list goes on...
It's been two years and I'm still honoured to receive this award...🏆
#TBT
#ThrowBackThursday
#InspirationalMother
#BionicWarrior
#IAmCharlene
📣Calling all Chinese Family Carers in the UK and Ireland📣
Share your experiences to help shape better support services 👥
📧: Contact Wenji Tang - wenji.tang@ul.ie
‼️Please share to your networks‼️
Thank you for the acknowledgement ❤️
#NHS
#Health
#HealthInequalities
#PatientAdvocate
#IAmCharlene
Living with multiple long-term conditions isn't the easiest when nagivating a NHS system that has no co-ordinated clinical care, plus more...
I shared my lived experience with The Kings Fund 🗣
🔗Read here to find out how patient care can be improved 👉🏾 www.kingsfund.org.uk/insight-and-...
💡 Health isn’t just about medicine — it’s community, connection, and confidence.
youtu.be/Iyr5FRdiKv8
#SocialPrescribing #CommunityHealth #Wellbeing #PrimaryCare #SocialPrescriber #HolisticHealth #NHS #PublicHealth #PatientAdvocacy #IAmCharlene
✅️ Personalised Plan: A plan will be created to support your needs. This includes activities, groups and services.
✅️ Ongoing Support: You will receive continued support to work towards your goals.
How to access your local social prescriber❓️
✅️ Talk to your GP: Discuss your situation and how they are impacting your health or wellbeing.
✅️ Referral: Ask to be referred to a social prescribing link worker.
✅️ Initial Meeting: You meet with a link worker to discuss your needs and goals
🌿 Who Are Social Prescribers? 🌿
Social prescribers are connectors, listeners, and supporters 💬💙
They help people find non-medical support to improve their health and well-being, from community groups and exercise classes to housing advice and mental health support.
The list of 21 questions that made it through to this stage are...
🔗 Cast your vote here: buff.ly/E87QLDx
Will and Zoe from the Bone Cancer Research Trust stand in a garden with David and Sara from Alice's Arc and Gail from Solving Kids Cancer.
Yesterday, we were honoured to view the Children with Cancer Garden at the Chelsea Flower Show 🌺
The space is a beautiful tribute to children and families affected by cancer, and we were proud to stand alongside our friends at @skcuk.bsky.social and Alice's Arc.
#UntilTheresACure
📢Stage 2 is now open...💃🏾💃🏾
It's not too late to get involved...🏃🏾♀️
#ThePeoplesReview
