Paola Masuzzo

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L'archivio del mio cancro - II Il 4 febbraio, la giornata mondiale sul cancro. La mia cartella clinica. I dati nelle tabelline e le tabelline dentro i cassetti.

Ho il privilegio di avere incontrato anni fa @pcmasuzzo.bsky.social

Questo numero della sua newsletter, da leggere tutta senza "scrollare", è cibo per il cuore e per la mente.

Grazie Paola

substack.com/inbox/post/1...

Wordle 1.677 4/6

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Genuine question to the #OpenScience fellow advocates in this space: is (y)our advocacy still relevant? what is THE burning question nowadays in the open research world? why does it still matter?

Remember the 1920s when nobody was left-handed

Firma la petizione Vogliamo i dati sulla violenza di genere

servono dati aperti, accessibili e accurati per capire la violenza di genere in Italia. dati che mancano, e che chiediamo a gran voce.

firma anche tu la petizione
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#OpenData #DatiAperti

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Self-portrait This is the second episode in English. My self-portrait, ready to be rolled up in a golden sleeve. I'll ship it off to the hands of everyone daring to love me.

Self-portrait. A little thing I wrote about myself.

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This is so cool!

Decoding Hidden Heritages Explore the shared linguistic and cultural heritage of Ireland and Scotland

Happy 10th Anniversary to the JOHD: openhumanitiesdata.metajnl.com. It's wonderful to celebrate open access to humanities data as supported by this journal. And thank you for inviting me to speak about our work www.hiddenheritages.ai where we provide access to digitised Irish and Gaelic folktales.

"Can" relates to the competence of the person relied on, “try” to her intentions: the person relies on must have some capacity to complete the relevant action, and she must intend to do so.

This is such an interesting perspective.
Go read the article, it's absolutely worth it.

"to rely on someone to perform some action is to be disposed to act and believe under the assumption that this person can and tries to complete this action. /

> “I’m working on my Sunday column and I’m going to play bridge this afternoon,” she told one reporter, “so I don’t have time to read all this crap.”

Literally an icon and not only excellent social media disposition but also a natural on "media training"

These are stunning!

✨ The Art of Open Science ✨

This beautiful crossstitch was created by Leah Blankenship, an undergraduate student at the @uoregon.bsky.social! This meticulously embroidered art uses data from our Allen Brain Reference Atlases.

#OpenScienceWeek

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I love the university world. And I hate it at the same time. Can we do something different altogether? How could we fund this something else? What can we build from the bottom? I have little answers, but these are the questions I'd like to hear and talk about.

This makes a lot of sense. But I'm also really talking about challenging the status quo and presenting, wherever possible, alternative spaces and methodologies for research practices. /

So the question today - like on a lot of days - is: what's the most important thing you could be working on right now? Or talking about right now? And if you are not doing it, then what are you doing?

#OpenScience cannot mean what it meant 10 years ago.

#Research was supposed to save us. It's clear, to me, that it failed miserably. It just can't do it anymore. Not in its current shape and terms. And these terms aren't bound to change any time soon. /

This is me urging #OpenScience and #OpenData advocates and activists out there to change the conversation. It's 2025 and the world is burning alive. Metaphorically and not. /

We talked about it all. We've been talking about it for decades. Things that were bound to shift, shifted. And things that didn't, aren't going to shift anymore. And this is not me being pessimistic, no. /

We talked about licenses, preprints, repositories, #OpenAccess. We talked about changing the rewarding system, building spaces to enable good practices, better practices. /

Not that I don't appreciate people speaking up for #OpenScience, but I can't help but notice that a lot of the advocacy nowadays looks exactly what it looked like 5 or perhaps even 10 years ago. /

Bologna 2025! #csvconf #commallama

Delirium tremens at its best

#marconiexpress colpisce anche al ritorno. Tempi di attesa ai tornelli di almeno 50 minuti. Bus sostitutivo in corso. La buona amministrazione.

The only way to close off this long, rich thread is with a picture of my #OpenData friends in Italy! @dennisangemi.bsky.social @aborruso.bsky.social @mcx83.bsky.social @puntofisso.bsky.social @ingmmo.bsky.social @matteofortini.bsky.social @giorgialodi.bsky.social

Thank you, #csvconf ❤️‍🔥