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Renegade Research

@renegaderesearch

Patient/Caregiver-led nonprofit 501c3 focused on #MECFS and #LongCovid β€’ https://Renegade-Research.org πŸ’™ Runs project @remissionbiome.bsky.social β€’ Donate now ▢️ https://tinyurl.com/44azdsxm

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Latest posts by Renegade Research @renegaderesearch

Today! Come learn about ways to fix breathing in sleep so the chronic stress response lowers.

New panelists:
Bela Chheda, MD, Inf. disease & internist
Anil Rama, MD, neurology and sleep medicine
Kishan Tarpara, DO, neurologist & sleep medicine at Vanderbilt Autonomic Dysfunction Center

06.03.2026 16:01 πŸ‘ 3 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0

Dr. Gold, Sleep Medicine / Pulmonary specialist, will speak at next @renegaderesearch.bsky.social Clinician's Roundtable.

Sleep Dysfunction & Breathing Mechanics
Friday
March 6, 2026 at 1 pm Eastern US

Free. Invite your networks interested in sleep.

Sign up
us06web.zoom.us/webinar/regi...

24.02.2026 00:18 πŸ‘ 5 πŸ” 3 πŸ’¬ 1 πŸ“Œ 1
March events: Sleep Breathing, Microclotting, Gut-Brain Axis, & LC Awareness Dialogue.
March events: Sleep Breathing, Microclotting, Gut-Brain Axis, & LC Awareness Dialogue. YouTube video by Renegade Research

A 43 second video to promote our 4 March events!

Doctors, researchers, patients, caregivers and other members of the public invited.

For registration links, see our website Events page, our Bluesky timeline, or open our YouTube channel and look in the description. www.youtube.com/watch?v=QA5i...

06.03.2026 05:07 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Looking forward to this! See you there

04.03.2026 23:53 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
@TheNicotineTest | Twitter, Instagram, Facebook | Linktree A patient-led, Citizen-Science project! Together we are stronger.

You can also follow @thenicotinetest.bsky.social and see their LinkTree for more info, resources and updates about #TheNicotineTest linktr.ee/thenicotinet...

04.03.2026 23:45 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

This is this Friday! Register now so you don’t forget, #LongCovid and #pwME communities

04.03.2026 18:13 πŸ‘ 3 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

#LongCovid #LongCovidAwareness #LongCovidAwarenessDay #LongCovidAwarenessWeek #LongCovidAwarenessDay2026 #LongCovidAwarenessWeek2026 #PASC #COVID #COVID19

04.03.2026 23:26 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Roundtable Recordings | Renegade Research Renegade Research offers free education webinars called for doctors and other clinicians, researchers, patients, and caregivers about ME, Long Covid, and their comorbidities including EDS/HSD, MCAS, L...

The recording of this event will be available soon after on our website at renegade-research.org/recordings

and on our YouTube channel at youtube.com/renegaderese....

04.03.2026 23:26 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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Scheduled: Long Covid Awareness 2026 Renegade Research’s Space Β· Where live audio conversations happen

Tune in for our X Space for Long Covid Awareness 2026 on March 17 at 4 pm ET US: x.com/i/spaces/1nK...

We will be hosting a discussion to talk about Long COVID community thoughts, feelings, concerns, needs, research and care. All are welcome!

04.03.2026 23:26 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
A black graphic with orange bubbles and white text reads: X Space, Long Covid Awareness Week, Community Dialogue, 4 pm ET US, March 17, 2026. The Renegade Research logo is in the upper righthand corner. The words "Decentralized and Patient-led" are at the bottom with the Renegade Research website URL, Renegade-Research.org.

A black graphic with orange bubbles and white text reads: X Space, Long Covid Awareness Week, Community Dialogue, 4 pm ET US, March 17, 2026. The Renegade Research logo is in the upper righthand corner. The words "Decentralized and Patient-led" are at the bottom with the Renegade Research website URL, Renegade-Research.org.

Please join us for an X/Twitter Space Discussion for Long COVID Awareness Week on March 17 at 4 pm ET US! (in honor of Long Covid Awareness Day on March 15)

Bluesky doesn't have a Spaces-like tool, so we can't host here

Moderators: @isabelrb.bsky.social and @emilyrj.bsky.social

X space link in 🧡

04.03.2026 23:26 πŸ‘ 5 πŸ” 1 πŸ’¬ 1 πŸ“Œ 1

#TheNicotineTest #MECFS #LongCovid #PASC #MECFSResearch #MEResearch #LongCovidResearch #PASCResearch #FundMECFS #FundLongCovid #Vielight #RedLightTherapy #Rutin #HRV #HeartRateVariability #PEM #GIP #PostPrandial #MedicalResearch #PatientLed #PatientLedResearch #FundMedicalResearch

03.03.2026 18:07 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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Accelerate research and care for ME/CFS & Long COVID Renegade Research (RR) is a non-profit, 501c3 decentralized organization pioneering patient and caregiver-led research with a focus on ME/CFS, Long COVID (LC) and other infection associated chronic il...

Our other medical research projects in the works:

β€’ Vielight red light device responses
β€’ Responses to the supplement Rutin
β€’ Heart Rate Variability
β€’ PEM Supplement Formula
β€’ GIP and postprandial reactions

You can donate to support the rest of our projects here: www.zeffy.com/en-US/fundra...

03.03.2026 18:06 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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Donate to The Nicotine Test Research 🌟 Join us in Creating Change in patient-led Research! 🌟At The Nicotine Test & Renegade Research, we know that change starts with people like you. Every act of kindness, every dollar, and every mom...

You can donate to support The Nicotine Test project here: zeffy.com/en-US/donati...

This is a follow-up project to our previous project #TheNicotineTest, back by popular demand

You can read more about this and our other projects in detail at: www.renegade-research.org/projects

03.03.2026 18:04 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
A white graphic background featuring a graphic of a blue butterfly flying in pink, orange and blue pain splashes. The title reads "Low-Dose Nicotine Project" in orange text. A QR code is in the upper left hand corner with a graphic below it of a hand with a pointer finger selecting a donate button. The words "A small donation makes a difference" in red and blue text are in the lower left hand corner. The Renegade Research logo is in the lower right hand corner.

A white graphic background featuring a graphic of a blue butterfly flying in pink, orange and blue pain splashes. The title reads "Low-Dose Nicotine Project" in orange text. A QR code is in the upper left hand corner with a graphic below it of a hand with a pointer finger selecting a donate button. The words "A small donation makes a difference" in red and blue text are in the lower left hand corner. The Renegade Research logo is in the lower right hand corner.

A screenshot of the Renegade Research purple Zeffy crowdfunding page, titles "Accelerate Research and Care for ME/CFS and Long Covid," with a description of Renegade Research. Different donations boxes with varying monetary values are depicted. You'll receive a tax receipt for making a donation.

A screenshot of the Renegade Research purple Zeffy crowdfunding page, titles "Accelerate Research and Care for ME/CFS and Long Covid," with a description of Renegade Research. Different donations boxes with varying monetary values are depicted. You'll receive a tax receipt for making a donation.

We have several projects in the works by our citizen/patient scientists!

We made a Zeffy page for The Nicotine Test (a followup to our previous Nicotine Test project), to help the budget. PI Troy Roach.​

Donate to The Nicotine Test project and our other patient-led projects in this thread 🧡

03.03.2026 18:04 πŸ‘ 5 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0

I designed these! πŸ’ž Please boost these posts so our very deserving and #LongCovid and #MECFS communities (and all who care about us) can stay stylish while funding education, research, awareness and advocacy β€οΈβ€πŸ©Ή

01.03.2026 00:29 πŸ‘ 8 πŸ” 5 πŸ’¬ 0 πŸ“Œ 0
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Renegade Research | Official Merchandise | Bonfire Renegade Research is a decentralized science,Β clinical education, & practical advocacy organization for IACI, emphasizing ME/CFS and Long Covid.

You can buy #LongCovid and #MECFS merch here: bonfire.com/store/renega...

Included are 100% cotton items, shirts for kids and teens – and YES, we even have crop tops for the heat intolerant baddies out here! ✨

Have any fun merch ideas for what you'd like to buy from us? DM us your ideas!

01.03.2026 00:21 πŸ‘ 4 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
A graphic reading "Long Covid Awareness" "March 2026" "Join Us" with the Bluesky handle @RenegadeResearch and the Renegade Research merch store link: https://www.bonfire.com/store/renegade-research/. Also depicted is the word "fashion" is pink cursive and a black and white graphic of a coat hanger, along with two colorful shirts with white graphics promoting Long Covid Awareness.

A graphic reading "Long Covid Awareness" "March 2026" "Join Us" with the Bluesky handle @RenegadeResearch and the Renegade Research merch store link: https://www.bonfire.com/store/renegade-research/. Also depicted is the word "fashion" is pink cursive and a black and white graphic of a coat hanger, along with two colorful shirts with white graphics promoting Long Covid Awareness.

A graphic reading "Long Covid Awareness" "March 2026" "Join Us" with the Bluesky handle @RenegadeResearch and the Renegade Research merch store link: https://www.bonfire.com/store/renegade-research/. Also depicted is the word "advocacy" in purple and a black and white graphic of hands holding in a circle along with two colorful shirts with white graphics promoting ME/CFS Awareness.

A graphic reading "Long Covid Awareness" "March 2026" "Join Us" with the Bluesky handle @RenegadeResearch and the Renegade Research merch store link: https://www.bonfire.com/store/renegade-research/. Also depicted is the word "advocacy" in purple and a black and white graphic of hands holding in a circle along with two colorful shirts with white graphics promoting ME/CFS Awareness.

A graphic reading "Long Covid Awareness" "March 2026" "Join Us" with the Bluesky handle @RenegadeResearch and the Renegade Research merch store link: https://www.bonfire.com/store/renegade-research/. Also depicted is the word "science" in black and white and a blue and white graphic of a microscope, along with two colorful shirts with white graphics promoting Long Covid Awareness.

A graphic reading "Long Covid Awareness" "March 2026" "Join Us" with the Bluesky handle @RenegadeResearch and the Renegade Research merch store link: https://www.bonfire.com/store/renegade-research/. Also depicted is the word "science" in black and white and a blue and white graphic of a microscope, along with two colorful shirts with white graphics promoting Long Covid Awareness.

Check out our new Bonfire merch for Long Covid Awareness! 😎 It's pretty PASC-tacular

You can wear these every March or even year-round to get your advocacy on for #LongCovid and #MECFS πŸ’ͺ

Our merch store link: www.bonfire.com/store/renega...

01.03.2026 00:21 πŸ‘ 8 πŸ” 2 πŸ’¬ 1 πŸ“Œ 1

Great events in March by @renegaderesearch.bsky.social

Times ET US

3/06 12p sleep breathing
Dr. Gold

3/13 1p hypercoagulability
Drs. Vaughn, Pretorius, Kell

3/17 TBD X Space
Chat 4 LC Awareness Week

3/27 1p neurogastroenterology
Dr. Spiritos

27.02.2026 13:20 πŸ‘ 5 πŸ” 1 πŸ’¬ 0 πŸ“Œ 1

Excited to host this webinar with you!

26.02.2026 20:59 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Yes, indeed! We are a co-host for this event with Zac Spiritos, MD, neurogastroenterologist.

He is the founder of the Ever Better Medicine (.health) clinic and can only take patients from IL or NC.

We have a few of his patients in our support group who have been pleased with their care.

26.02.2026 02:48 πŸ‘ 1 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
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Subscribe | Renegade Research

To get reminders about our upcoming Clinician and Research Roundtables, our research projects and community events, please sign up for our Renegade Research Newsletter: www.renegade-research.org/join-email-l...

26.02.2026 01:45 πŸ‘ 5 πŸ” 1 πŸ’¬ 1 πŸ“Œ 1

You may recognize Dr. Zac Spiritos from his viral Instagram posts on these topics

You can follow him and watch his videos here

Some of our favorite recent clips of his:

www.instagram.com/p/DUeI7cREjBu/

www.instagram.com/p/DT8lR8rkjNp/

www.instagram.com/p/DS5w_-gkqhs/

26.02.2026 01:36 πŸ‘ 4 πŸ” 1 πŸ’¬ 2 πŸ“Œ 0
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Why Do Some GI Problems Hide from Every Test? Dr. Linda Bluestein dives deep into the tangled web of GI problems with neurogastroenterologist Dr. Zachary Spiritos, especially for patients with EDS, MCAS, and POTS

Dr. Linda Bluestein featured Dr. Zac Spiritos on the Bendy Bodies podcast in July 2025, discussing Ehlers-Danlos Syndrome #EDS, Postural Orthostatic Tachycardia Syndrome #POTS, Mast Cell Activation Syndrome #MCAS, "normal" tests, motility problems and more www.bendybodiespodcast.com/why-do-some-...

26.02.2026 01:36 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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Managing PoTS: Tips for living with the chronic illness affecting millions PoTS typically affects women, and Dysautonomia International reported around 80 percent of those with PoTS in the U.S. are female.

See more of Dr. Zac Spiritos' research: www.researchgate.net/profile/Zach...

He was quoted in this May 2025 @newsweek.com article "Managing #POTS: Tips for Living with the Chronic Illness Affecting Millions" on hormonal and immune impacts on conditions and symptoms

www.newsweek.com/managing-pot...

26.02.2026 01:36 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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(PDF) Epidemiology of early esophageal adenocarcinoma PDF | Background/Aims: Endoscopic resection has become the preferred treatment approach for select early esophageal adenocarcinoma (EAC); however, the... | Find, read and cite all the research you nee...

A May 2022 paper by Dr. Zac Spiritos: "Epidemiology of early esophageal adenocarcinoma"

Key: Found a 7-fold increase in early esophageal adenocarcinoma #EAC, much more than other major epithelial malignancies examined - more recently, EAC incidence decreased

www.researchgate.net/publication/...

26.02.2026 01:36 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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Meet Our Team | EverBetter Medicine EverBetter Medicine is proud to offer an experienced clinical team, led by Dr. Zachary Spiritos. Learn more about our providers' qualifications & expertise.

Dr. Spiritos treats many gastrointestinal and liver disorders, #IBS, functional abdominal pain, motility disorders, dysautonomias like #POTS, #MCAS, issues in hypermobility syndromes like #EDS everbettermedicine.health/team/zac-spi...

He integrates nutrition, lifestyle changes, gut-brain therapies

26.02.2026 01:36 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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Welcome! You are invited to join a webinar: Clinician's Roundtable: GI-NeuroImmune Axis & the role of Histamine and Mast Cells. After registering, you will receive a confirmation email about joining t... Zachary Spiritos, MD, will speak and a Q & A and discussion session will follow. Zac Spiritos is a Duke-trained neurogastroenterologist and founder of EverBetter Medicine, a telehealth clinic focused...

Register for our Clinician's Roundtable with neurogastroenterologist Dr. Zac Spiritos on Friday, March 27 at 1 pm ET here:

us06web.zoom.us/webinar/regi...

He will speak and the a Q & A and discussion session will follow

Our co-host on this event is @meactionnc.bsky.social

26.02.2026 01:36 πŸ‘ 4 πŸ” 0 πŸ’¬ 2 πŸ“Œ 1
An orange graphic with bubbles, depicting a QR code in the upper left hand corner and the Renegade Research logo in the upper right hand corner. Center right depicts a photo of Dr. Zac Spiritos, Neurogastroenterologist, a smiling white man with short brown hair wearing a black shirt. White text reads: Clinician's Roundtable, GI-NeuroImmune Axis and the role of Histamine and Mast Cells, March 27, 2026 at 1 pm ET US. Co-host #MEActionNC. Renegade-Research.org. Register: tinyurl.com/ypy99ma5

An orange graphic with bubbles, depicting a QR code in the upper left hand corner and the Renegade Research logo in the upper right hand corner. Center right depicts a photo of Dr. Zac Spiritos, Neurogastroenterologist, a smiling white man with short brown hair wearing a black shirt. White text reads: Clinician's Roundtable, GI-NeuroImmune Axis and the role of Histamine and Mast Cells, March 27, 2026 at 1 pm ET US. Co-host #MEActionNC. Renegade-Research.org. Register: tinyurl.com/ypy99ma5

We welcome you to join us on Friday, March 27 at 1 pm ET (US) for a Clinician's Roundtable with neurogastroenterologist Dr. Zac Spiritos

He will be discussing the Gastrointestinal-Neuroimmune Axis & the Role of Histamine and Mast Cells

Registration link below with info on Dr. Spiritos' work 🧡

26.02.2026 01:36 πŸ‘ 8 πŸ” 4 πŸ’¬ 1 πŸ“Œ 0

Dr. Avram Gold's About page is here: renaissance.stonybrookmedicine.edu/medicine/pul...

bsky.app/profile/rene...

25.02.2026 23:43 πŸ‘ 3 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Subscribe | Renegade Research

To get reminders about our upcoming Clinician and Research Roundtables, our research projects and community events, please sign up for our Renegade Research Newsletter: www.renegade-research.org/join-email-l...

25.02.2026 23:26 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0