Itβs been a privilege to be part of the Children and Young Peopleβs Cancer Taskforce, helping to shape the recommendations that will improve experience and outcomes for young cancer patients and their families. More to come on Wednesdayβ¦
@ashleyballgamble
Chief Executive, CCLG: The Children & Young People's Cancer Association @cclguk.bsky.social . π³οΈβπ. Interests: CYP cancer, cancer science, collaborative working, health policy, travel, food. Disney Adult. He/him.
Itβs been a privilege to be part of the Children and Young Peopleβs Cancer Taskforce, helping to shape the recommendations that will improve experience and outcomes for young cancer patients and their families. More to come on Wednesdayβ¦
The inclusion of a specific children and young peopleβs section is a huge milestone, with long-awaited recognition that cancer in children and young people is different and needs a different strategy and approach.
Great evening celebrating the upcoming launch of the National Cancer Plan with colleagues from across the cancer sector. Looking forward to the publication of the Plan on World Cancer Day this Wednesday.
Birthday breakfast. Of course the birthday boy gets the face!
Think I might have a problem
Merry Christmas all, from a cold but sunny Brugge
Rotterdam. (Or anywhere. Liverpool or Rome.)
WeihnachtsgrΓΌΓe aus Hamburg
Fantastic inaugural @cclguk.bsky.social Early Career Researcher Network day in Birmingham today. Great projects presented by ECRs as well as career talks from established leaders. Huge thanks to everyone who has supported this work, inc the peer-led ECR network committee
Registration now open for *the* key event of the year for children and young peopleβs cancer professionals - looking forward to seeing you all in Manchester in the Spring!
β¦by working more closely, aligning strategies, and thinking about deeper relationships than ad-hoc co-funding (which is great, but is just the start).
Delighted to be asked to speak this earlier this week at #ChildrenWithCancerUK Research Conference and share my (somewhat single minded and bossy) thoughts on collaboration and how much of a bigger impact we could achieve as fundersβ¦
Great to be in Glasgow chairing a panel discussion on children & young peopleβs cancer at #ScotCanConf with with @younglivesvscancer.bsky.social @cclguk.bsky.social & the CYPC MSN for Scotland - lots of engagement from the audience and positive that CYP cancer is a focus at this event
We were proud to attend the International Society of Paediatric Oncology Congress ποΈ
Our CEO @ashleyballgamble.bsky.social presented our State of the System research alongside Rosanna Thomasoo and shared a first look at the North Star Cancer Collaborative.
Together, we can achieve more!
Great to see #REFORMSStudy represented at #SIOPCongress @worldsiop.bsky.social @cclguk.bsky.social #AlicesArc
Sharing some of our collaborative work at #SIOPCongress @worldsiop.bsky.social looking at unmet health information needs
Last week, our CEO @ashleyballgamble.bsky.social
and Chair Dr Sara Stoneham spoke at the first All-Island Paediatric Oncology Conference, sharing how CCLG can support this vital step toward creating a joined-up system of care for children and young people with cancer across the island of Ireland ποΈ
Great to present our State of the System research on behalf of our partners and our North Star Cancer Collaborative plans on behalf of those partners at #SIOPCongress @worldsiop.bsky.social with @rthomasoo.bsky.social today as part of a great psychosocial care session @cclguk.bsky.social
Greetings from rainy Amsterdam and #SIOPCongress. Some great talks already today and looking forward to four days of networking, developments in treatment and care, and a global perspective on children and young peopleβs cancer
Half way between Belfast and Dublin and an excellent first day at the inaugural All-Island Paediatric Oncology Conference, exploring how closer collaboration and an all-island network could improve care for children and young people with cancer (and talking how @cclguk.bsky.social can help!)
Non-commercial clinical research (which includes charity-funded research) - as well as addressing patient priorities and developing new treatments and cures - has a huge benefit to the UK economy.
Around 1 in 500 children in the UK will be diagnosed with cancer by age 14. This #CCAM, weβre highlighting #ChildCancerSmart, sharing information about how diagnoses are made and what support is available for families ποΈ
Find out more and get involved at bit.ly/45JBdsi
π‘ Have an idea to improve cancer outcomes for children and young people?
@littleprincesses.bsky.social Project Grants are available for #research into kinder treatments, better care, and improved diagnosis.
Find out more and apply by 8 October at bit.ly/47vDWa5
#CCAM #CYPCancerResearch
π¨ Attention, early career researchers working in childhood and young people's cancer: Share your work π£οΈ
Submit a poster, presentation, or power pitch for our Early Career Research Day.
Deadline: 5 pm, Friday, 19 September.
More info and submit at bit.ly/42qh9c6
3 persistent symptoms, 3 GP visits or 3 weeks of unexplained symptoms? We want #HealthcareProfessionals to consider: 'Could it be cancer?'
#ChildCancerSmart Dissemination Lead, @drbobphillips.bsky.social, explains more about our evidence-based approach.
π bit.ly/4lno0Kh
We're joining #OneCancerVoice, a coalition of over 60 charities, to urge the UK Government to deliver a bold and fully funded #NationalCancerPlan for England. This plan aims to save and improve the lives of more people, including children and young people ποΈπ£
Finally got round to creating my kitchen gallery with pride of place given to my fave Christmas present, βThe Mona Lisa Scott-Leeβ by @joelycett.bsky.social
We want #HealthcareProfessionals to consider the question: 'Could it be cancer?'
If a child has 3 persistent symptoms, 3 GP visits, or 3 weeks of unexplained symptoms, it might be time to call your local on-call paediatrician π
cclg.org.uk/childcancers...
#ChildCancerSmart
Huge thanks to everyone involved, not least CCLG Early Diagnosis Fellow @headsmartfellow.bsky.social, all of the team involved in this, the children, young people and families who have contributed, and @dramirkhangp.bsky.social for helping to spread the word!
It follows several years of research, including a population-based observational study and a lot of systematic reviews, to ensure we have, for the first time, a sound evidence base and a good understanding of the signs and symptoms of childhood cancer and the pathways to diagnosis.