π’ #CallForPublicHealthAction
Iβm also demonstrating for the right to
- #CleanAir
- #InfectionControl
- adequate care & biomedical research for #LongCovid/#MECFS
Please make your voice heard for those who are too unwell to protest.
#CovidIsNotOver
31.01.2026 18:56
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They should call it post-exertional deterioration instead of post-exertional malaise. βMalaiseβ makes it sound like merely an unpleasant feeling rather than an actual physical blow to the body.
19.01.2026 22:31
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Hej! π€π
14.01.2026 15:10
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"So currently, we are protecting HCWs and their patients against a droplet in an ocean of aerosols. This inadequacy would not be tolerated in any other industry β nor should it be in healthcare."
Exactly.
Protection from airborne disease is a workers' rights issue.
#CallForPublicHealthAction
09.01.2026 18:17
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ME/CFS study among the 2025 NIH Research Highlights π
06.01.2026 15:45
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Thank you!
06.01.2026 14:53
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Thank you so much! This study seems to focus on the risk of developing LC in the first place, though? I may not have expressed myself very clearly, but Iβm actually looking for studies showing that patients who already have ME/LC face a risk of deterioration if they catch new infections. Know any?
06.01.2026 12:40
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Iβm seeking official or scientific sources stating that reinfections (or infections in general) are a risk factor for deterioration in #MECFS or #LongCOVID. Any tips would be appreciated! π
05.01.2026 21:39
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Please sign this petition even if you're not a Swedish citizen! Our very bad national treatment guidelines for #LongCOVID, #MECFS and other post-infectious illnesses need to be withdrawn!
There's an English description on the petition web page, and you can sign no matter your nationality.
05.01.2026 10:43
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π«Άπͺ
29.12.2025 20:31
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The last post Megan shared was a petition to get safe air and masks in NZ healthcare.
Anyone anywhere can sign it.
Source post from Twitter: x.com/rhirhiarhii/...
12.12.2025 21:59
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Vad roligt Nasrin! Lycka till med utbildningen! π€
10.12.2025 16:16
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π«
26.11.2025 13:51
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π£ #callforpublichealthaction
Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS!
week 5οΈβ£0οΈβ£ β
Journalism must stop promoting false, outdated medical knowledge about #PAIS and #ME/CFS from dogmatic medical professionals through false balance!
This destroys medical progress!
23.11.2025 13:01
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Alison Hume MP shares an account of severe #MECFS and warns that many healthcare professionals lack understanding of severe ME β especially its hallmark symptom, post, exertional malaise PEM β and that patients are too often pushed into pathways that simply arenβt appropriate.
21.11.2025 12:28
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π
11.11.2025 21:45
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And so are you! πͺ
11.11.2025 19:32
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Thank you Malin, I hope so too π«
10.11.2025 16:15
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10.11.2025 16:14
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Well, it doesn't have to be like this. This is a choice we're making by not cleaning the indoor air or informing the public about the need for infection control.
Moreover, these numbers also mean a new, year-round baseline of chronic illness.
This is not sustainable!
#CallForPublicHealthAction
11.10.2025 13:22
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π’ #CallForPublicHealthAction
Iβm demonstrating virtually for the right to
- #CleanAir
- #InfectionControl
- adequate care & biomedical research for #LongCovid/#MECFS
#CovidIsNotOver
#MaskUp
#CovidCautious
10.10.2025 19:10
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π
10.10.2025 14:30
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π£ #callforpublichealthaction
Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS!
week 4οΈβ£6οΈβ£
While governments, for capitalist reasons, fantasize that ME/CFS care is "comprehensively secured," the reality for ME/CFS sufferers is completely different.
Support us with Reskeet! π€
09.10.2025 12:30
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... pure hell in itself, and being disbelieved and neglected by healthcare and government certainly doesn't help. We desperately need a diagnostic test to escape the gaslighting -- and then we need a cure.
08.10.2025 18:37
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... without suffering for it afterward. I still work part-time from my bed, but that's basically all I can manage, and with my health being so fragile, I live in constant fear of becoming even worse or losing my sick pay and not having the energy to fight for it. The disease is...
08.10.2025 18:37
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Thank you so much for writing about this πΈ I became ill in early 2020, and my life has been destroyed. I worked full-time
at the university, enjoyed my social life, did all kinds of sports, and had many other hobbies too. I'm housebound now, and can't even shower or walk around inside the house...
08.10.2025 18:36
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Scientists develop first βaccurate blood testβ to detect chronic fatigue syndrome
Research could offer hope for ME patients β but some experts urge caution and say more studies needed
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...π§΅
www.theguardian.com/society/2025...
08.10.2025 06:08
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Always better to leave some room for doubt, right? We wouldnβt want people to start demanding clean air in schools or something.
06.10.2025 12:53
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