This #IWD2026 EMSP is turning awareness into action.
Two sessions at #EMSP2026 putting women at the centre of MS, NMO & MOGAD:
🔥 Menopause & MS — Prof. Ruth Dobson
🧪 Clinical Trials: Who does the science serve?
Register today bit.ly/4a8w92I
@emmadragon.bsky.social @ema.europa.eu
Patient registries show how treatments work over time and what truly matters to patients. To use registry data in regulatory and #HTA decisions, we need clear standards and patient trust.
Input on use of registry data in health decisions
👉 Take the survey-https://bit.ly/4kUh0G3
🎯 REGISTRATION OPEN: #EMSP2026 Annual Conference📍April 24-25 | Berlin
🧠MS • NMOSD • MOGAD
Day 1: McDonald 2024 criteria, diagnostic biomarkers, clinical trial equity
Day 2: CAR-T therapy, stem cell research, menopause & MS, policy action
Register- bit.ly/4a7jGMK
🎙️New Let's Talk MS: Moving abroad with MS, NMOSD & MOGAD
Navigating healthcare systems, personal experiences, and real talk about the challenges and rewards of relocating internationally with a neurological condition.
🔗https://bit.ly/3MiAbMG
How are treatment decisions made in Europe? And how can YOUR voice shape them? Understanding #HTA gives patients real power in shaping treatment access.
Join this @ec.europa.eu webinar to learn how YOU can participate in consultations.
🔗http://bit.ly/3MoMV4z
🎉 We're thrilled to welcome Nele Vanbilsen as our new Project Coordinator at EMSP!
With a PhD in auditory-motor coupling in progressive MS and expertise in neurological research, Nele brings valuable skills to support our MS, NMO & MOGAD communities across Europe.
Welcome to the team, Nele! 👋
How can MS nurses transform daily symptom management?
Join our free webinar 🗓️ Jan 27, 16:00 CET to discover evidence-based care approaches:
Must attend for Researchers, MS nurses & patients
Register- bit.ly/4qaranF
🧵3/3:
Patient-reported evidence must drive policy. These findings give us the proof we need to demand better: improved symptom management, comprehensive rehab & healthcare that responds to MS reality.
🔗https://bit.ly/48CqsrR
#MultipleSclerosis #PatientEvidence
@emmadragon.bsky.social
🧵2/3: 17,000+ people with MS across 22 EU countries told us they experience avg. 14 symptoms. Fatigue, cognitive issues & mobility problems top the list. Yet many can't access personalised care—especially for invisible symptoms.
1/3: EMSP President Herbert Temmes presented #IMSS findings from Germany at the DACH Neurorehabilitation conference—bringing patient voices to clinical practice. This matters.
#LetsTalkMS New Episode Drop
Only 48% of people with MS are employed.
We are changing that conversation.
Tune in to learn about:
Employability, disclosure & workplace strategies for young people with #MS #NMOSD #MOGAD
Listen now: bit.ly/4pCQBh3
Most debilitating MS symptoms are often invisible.
Join our webinar exploring #IMSS survey findings & discuss how to better address these hidden challenges.
Featuring Prof. Peter Feys, Prof. Daphne Kos & EMSP Community Manager Anna Revilla.
Register: bit.ly/3XbbJyZ
Science moves faster when we move together. These meetings proved just how powerful these partnerships can be when researchers and the MS community work side by side.
#MSResearch #PatientEngagement #EUHealth #HorizonEU
Our role at EMSP: ensuring the lived experience of people with MS stays at the heart of research. We're working with partners and national MS societies to make this science accessible, inclusive, and impactful.
The breadth of work is remarkable—from immunology and single-cell tech to predictive modeling, epidemiology, and community engagement. Watching these teams collaborate in real-time was inspiring.
Partners from across science, clinical care, data science, and patient advocacy came together with one goal: understand #EBV's role in #MS to advance prevention and better outcomes for people living with MS.
The past 2 weeks reinforced why collaboration matters. EMSP participated in EBV-MS and Behind-MS consortium meetings in Norway and Heidelberg respectively—two major EU projects exploring how Epstein-Barr virus triggers multiple sclerosis. 🧬
📬 EMSP Newsletter: Latest updates in European MS Community
🔹Advocacy for equitable access & care across Europe 🔹Breakthrough research on walking fatigability & personalised rehabilitation
🔹 Award-winning patient programs & MS nurse insights
Read the full newsletter bit.ly/4pB5TDd
🧠 70% of people with MS experience walking fatigability—where walking becomes harder over time.
Felipe Santinelli, PhD candidate at University of Hasselt, is using brain imaging & motion sensors to develop personalised MS rehabilitation programs.
Read more 👇
bit.ly/49OxzQ8
⏰EU budget consultation closes TODAY (Nov 12)
COVID-19 showed us: without health, everything fails.
Yet health risks being sidelined again in the next EU budget.
We're demanding a dedicated EU health budget that puts patients first.
📄Speak up NOW: bit.ly/49glsLs
🏃♀️ 2 DAYS TO GO!
This Sunday, Nov 2nd, runners worldwide are taking on the EMSP MS Awareness Run at the Brussels Airport Marathon.
💙 Support them by contributing to their fundraisers
📣 Come cheer them on in Brussels
🌍 Help spread the word
Learn more: bit.ly/4hzcStq
See you there!
#MSRun
EMSP mourns the passing of Klaus Knops, our former Treasurer and Executive Committee member.
His wise leadership and dedication left a lasting legacy for the European MS community.
Our deepest condolences to his family, friends and loved ones. bit.ly/4p2ACsz
MS diagnosis changes entire families—not just patient's. Yet across Europe, caregivers remain unseen & unsupported.
Only 15 countries consult MS communities on policy. Just 16/35 support child MS caregivers.
It's time to close the gaps.
#EurocarersDay
🌟 Major news for the #MS community!
The EU is committing to 500 MORE clinical trials annually + faster trial starts through ACT EU initiative.
What this means: More treatment options, better access, less waiting for MS patients across Europe. Learn more: www.ema.europa.eu/en/news/new-...
Incredible session with Dr. Stephanie Woschek
& Guillaume Lodini on staying active with #MultipleSclerosis
Missed our "Movement with MS" webinar?
Watch the recording now: bit.ly/47L7y3f
FINAL REMINDER: Movement with MS starts in 6 HOURS!
🕐 17:00-18:15 CEST
Join our experts to learn: ✅Safe movement strategies for MS ✅ Exercise tips from specialists
✅ Real success stories
Register- bit.ly/4moU297
Webinar- Movement with MS: Strategies for Staying Active
📅 Registration closes Friday!
Whether you live with MS or just love fitness, this webinar is packed with tips to keep you moving.
🎟️ Limited spots—register now: bit.ly/4mdXHqi
#MSAwareness #FitnessForAll
🎙️New on Let’s Talk MS:
Meet Aida Fuentes Picazo—a young mother navigating life with Neuromyelitis Optica (NMO). Diagnosed after giving birth, her story is one of resilience, adaptation, and invisible strength.
🎧Listen now: bit.ly/3HNCFkg
#RareDisease #PatientVoices
💙 September is Pain Awareness Month
Did you know?
73% of people with #MS experience pain, yet only 5% have access to pain specialists.
Pain is real, overlooked, and deserves better care! #PainAwarenessMonth
Living with MS doesn't mean slowing down
Join our FREE webinar: Movement with MS: Strategies for Staying Active and discover how to make movement your powerful ally.
📅 Sept 16, 5-6:15 PM
🎯 For everyone - MS warriors, supporters & healthcare pros
🔗 Register: bit.ly/4os3daV
@braincouncil.eu @efna.net
