A cream background with an illustrated circular patch in the middle.
There is a navy inner circle with a half moon and stars inside it, which is surrounded by a white thick outline with black text that reads, "resting can be fighting too."
The whole design has a thin navy outline to frame it.
By @ThisThingTheyCallRecovery
It's #NationalNappingDay - a day those with adrenal insufficiency can relate to!
Pre diagnosis, 94% of people report overwhelming exhaustion which we describe as tired in a way no amount of sleep will fix 💤 www.addisonsdisease.org.uk/diagnosis-infographic-with-comics
📸 @thisthingblog.bsky.social
09.03.2026 05:09
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#RareDiseaseDay 2026 may be over but raising awareness never stops 💜
Every day is an opportunity to highlight rare conditions like Addison's disease and adrenal insufficiency and keep the conversation going.
Catch up on our post below to learn more ⬇️
04.03.2026 14:05
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Congratulations to previous ADSHG research award winner & outgoing @socendocrinology.bsky.social Nurse Committee Chair, Louise Breen, as she received the Nikki Kieffer Medal in recognition of her significant contribution to advancing patient care, education & research 🏅 | #SfEBES2026
04.03.2026 12:13
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Congratulations to previous ADSHG research award winner & outgoing @socendocrinology.bsky.social Nurse Committee Chair, Louise Breen, as she received the Nikki Kieffer Medal in recognition of her significant contribution to advancing patient care, education & research 🏅 | #SfEBES2026
04.03.2026 12:13
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Three people, Noel, Cathy and Alison, stand behind an Addison’s Disease Self-Help Group exhibition table covered with leaflets, resources, and injection training kits, with a large ADSHG banner behind them explaining the charity’s work supporting people with Addison’s disease and adrenal insufficiency.
ADSHG volunteer Alison smiling, wearing an Addison’s Disease Self-Help Group badge, stands indoors holding healthcare professional information packs and an ADSHG Connection sign with a QR code encouraging newsletter sign-ups.
Hello from @socendocrinology.bsky.social BES Conference!
🆕 New for this year: our free healthcare professional packs. Each folder incs publications to support you & your patients.
📍Visit our stand in the PSG Hub, between Hall D and Studio One, to collect yours
02.03.2026 04:22
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Overhead photo of an Injection Training Kit from the Addison’s Disease Self-Help Group (ADSHG).
The contents of the kit are laid out on a wooden table and include: a labelled plastic box, vials of water, empty sample bottles, disposable Amp Snaps, an instruction leaflet and packaged syringes and needles.
There is also an orange that is being used for practice.
Text at the top of the image reads “Injection Practice Day – It’s here! Sunday 1 March.”
The white logo for the ADSHG is in the top-left corner.
Two adults sitting at a table during an injection practice session, using training syringes and oranges to practise injections.
Injection training kits and supplies are laid out on the table.
Image of the Addison's Disease Self Help Group Training injection kit at the bottom right with text reading ‘Time to get practising!’.”
The white logo for the ADSHG is in the bottom-left corner.
It’s Injection Practice Day⬇️
🍊Grab your training kit & add an orange.
📝Follow the step-by-step instructions or visit our Training page.
💡Learn together!
☑️Check your emergency hydrocortisone kit contents are in date.
🔗 https://www.addisonsdisease.org.uk/injection-training | #ShareYourKit
01.03.2026 00:00
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Purple-to-blue gradient graphic with the text “I Support Rare Disease Day – 28 February 2026,” in the middle.
At the top are the Rare Disease Day and Addison’s Disease Self-Help Group logos.
In the bottom left there is #RareDiseaseDay with the Genetic Alliance website and Addison's Disease Self-Help Group website underneath. To the right is the Genetic Alliance UK and Rare Disease UK logos in white.
Informational graphic titled "What are Addison’s disease and adrenal insufficiency?"
Addison’s disease and adrenal insufficiency are rare endocrine conditions, which affect adrenal gland function and can be life-threatening.
Lifelong treatment with replacement steroid hormones is required and if untreated is fatal.
Medication is time-critical and taken several times daily.
Individuals must also know how to administer an emergency hydrocortisone injection to prevent
a potentially fatal adrenal crisis.
Includes a body diagram highlighting the adrenal glands, plus icons for an NHS steroid emergency card and emergency injection kit.
In the bottom left, there is #RareDiseaseDay with the Genetic Alliance website and the Addison's Disease Self-Help Group website underneath. To the right is the Genetic Alliance UK, Rare Disease UK, and Addison's Disease Self-Help Group logos in white.
Illustrated infographic showing a person with symptoms of Addison’s disease, , including fatigue, dizziness, nausea, weight loss, pigmentation, and muscle cramps, with notes on diagnosis through symptoms, blood tests, and a synacthen test.
Titled "Diagnosing Addison's Disease". The CoMICs logo is in the top right.
In the bottom left, there is #RareDiseaseDay with the Genetic Alliance website and the Addison's Disease Self-Help Group website underneath. To the right is the Genetic Alliance UK, Rare Disease UK, and Addison's Disease Self-Help Group logos in white.
Titled "People living with Addison's disease &
adrenal insufficiency need to..."
Bullet points list:
Take time-critical medication multiple times daily
Learn the Sick Day Rules, to increase medication dosing for physical or severe emotional stress.
Carry a steroid card & wear medic-alert ID
Live with daily, sometimes “invisible”, symptoms
Learn the emergency hydrocortisone injection
Become an expert patient
In the bottom left, there is #RareDiseaseDay with the Genetic Alliance website and the Addison's Disease Self-Help Group website underneath. To the right is the Genetic Alliance UK, Rare Disease UK, and Addison's Disease Self-Help Group logos in white.
💡 Did you know that 3.5 million people in the UK live with a rare condition?
Today is #RareDiseaseDay - a chance for the rare disease community to raise awareness and highlight the impact on people's lives.
Join us as we shine a light on our rare conditions, Addison's and adrenal insufficiency ⬇️
28.02.2026 00:30
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A picture of the new Addison’s Disease Self-Help Group Injection Training Kit.
It is a transparent green plastic box with a teal label on top reading “Injection Training Kit - Helping you to be prepared”.
The label also states “Training only, not for emergency use, no medicines enclosed” and includes the Addison’s Disease Self-Help Group logo.
Above the box, white text reads “Back in stock!” with a white arrow underneath pointing to the kit.
The box is shown on a wooden surface.
A hand wearing a white medical alert wristband, from the Addison’s Disease Self-Help Group online shop, holds a syringe. The visible side of the wristband reads “Medical Alert: Risk of Adrenal Crisis”.
The hand is poised as if about to inject a large orange, which is positioned in front of an emergency hydrocortisone injection instruction leaflet. The leaflet shows step-by-step photos with text for preparing and administering the injection.
At the bottom is the Addison’s Disease Self-Help Group logo and the website address www.addisonsdisease.org.uk/injection-training.
A picture of the new Addison’s Disease Self-Help Group Injection Training Kit, open to show the contents.
Items include syringes in sealed packaging, vials, ampoules of water for injection, needle packs, and the opened green training box showing instructional steps printed inside.
🎉 Our Injection Training Kits are back in stock!
Inject with confidence. Your life-saving skill.
Put 1 March in your diary as an Injection Practice Day! Twice a year we’ll remind you to check your kit and practise the emergency injection.
👉 https://www.addisonsdisease.org.uk/injection-training
20.02.2026 03:30
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Landscape banner for Rare Disease Day 2026 with a blue-to-purple gradient background. The Rare Disease Day logo appears in the top left, and the date “28 Feb 2026” in the top right.
Large central text reads “EQUITY” with icons of people standing at different heights to illustrate unequal access.
Below, text states: “For people living with rare conditions is equitable access to diagnosis, treatment, health, social care and opportunity.”
The bottom includes the hashtag #RareDiseaseDay, the website geneticalliance.org.uk/rdd26, and the Genetic Alliance UK and Rare Disease UK logos.
Not sure how to get involved in #RareDiseaseDay2026 next Saturday?
Use Genetic Alliance UK’s Advocacy Pack & write to your MP to urge them to support the 3.5 million people in the UK living with a rare condition.
📝 Use the ready-made templates & make your voice heard 👉 https://loom.ly/d7TridA
17.02.2026 04:01
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Purple-background graphic from the Addison’s Disease Self-Help Group (circular logo in the top-right corner).
Large white headline reads: “Sending love this Valentine’s Day to those with Addison’s or adrenal insufficiency who are…”
Beneath are six hand-drawn white heart icons arranged in two rows, each paired with a message: “Newly diagnosed & feeling confused,” “Struggling to cope with daily symptoms,” “Feeling alone or misunderstood,” “In need of extra support right now,” “Finding the health admin overwhelming,” and “Worried about the future”.
At the bottom, a white banner states: “Our charity is here to support you” with a small, white arrow pointing right.
Addison's Disease Self-Help Group leaflets are arranged on top of each other, with the top leaflet reading "Medical Summary".
Two hydrocortisone blister medication packs are laid across each other on top of the leaflets. There is a heart shape made out of hydrocortisone tablets positioned above them.
At the bottom, the text reads "Check out our free publications or become a member today".
💗 How's your relationship with your health this #ValentinesDay?
Feelings towards Addison's or adrenal insufficiency can be complicated. The ins and outs of a rare condition can be difficult to understand.
Check out our free publications ⬇️
https://www.addisonsdisease.org.uk/publications
14.02.2026 01:01
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This #FundraiserFriday, we’re celebrating Kirsty and her team of 9, who took on the Edinburgh 10K Winter Warmer Run dressed in Lord of the Rings inspired costumes🧝♂️🧙♀️
A huge thank you for their commitment, creativity and support 💜
👉 Donate here 🔗 www.justgiving.com/page/the-fellowship-10k
13.02.2026 01:02
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A picture of the new Addison's Disease Self-Help Group Injection Training Kit.
It is a transparent green plastic box with a teal label on top reading “Injection Training Kit – Helping you to be prepared”.
The label also states “Training only, not for emergency use, no medicines enclosed” and includes the Addison’s Disease Self-Help Group logo. The box is shown on a wooden surface.
A picture of the new Addison's Disease Self-Help Group Injection Training Kit, open to show the contents.
Items include syringes in sealed packaging, vials, ampoules of water for injection, needle packs, and the opened green training box showing instructional steps printed inside.
Inject with confidence. Your life-saving skill.
Put 1 March in your diary as an Injection Practice Day! Twice a year we’ll remind you to check your kit & practise the emergency hydrocortisone injection with those close to you.
💉Learn more👉 https://www.addisonsdisease.org.uk/injection-training
09.02.2026 01:01
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A hand holds a purple, green, and white booklet titled “Managing your Addison’s disease or adrenal insufficiency,” created by the Addison’s Disease Self-Help Group (ADSHG).
The cover includes the Addison's Clinical Advisory Panel logo at the top, a “For Members” icon with a symbol of a person near the bottom, and the subtitle “Becoming an expert patient; being aware, prepared and understood.”
Also on the booklet cover is the website address “addisonsdisease.org.uk” as well as the registered charity number, 1179825.
To the left, purple text reads “Digital download available” with a purple arrow pointing towards the booklet.
The Addison's Clinical Advisory Panel version of the Addison’s Disease Self-Help Group logo appears in the bottom left corner. The background is light grey.
Recently diagnosed with Addison's or adrenal insufficiency?
We've summarised the key points that you need to know in our booklet, 'Managing Your Addison's Disease or Adrenal Insufficiency'.
🛒 Order yours or download your free digital copy ⬇️ www.addisonsdisease.org.uk/managing-your-addisons
30.01.2026 03:01
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Purple update graphic from the Addison's Disease Self-Help Group (ADSHG).
The bold heading reads “UPDATE” and the main text underneath says: “Statement from Accord-UK Ltd on quality issues with 10mg hydrocortisone tablets.”
Below this, the text reads: “Visit our website for full article & download our one-page document for your GP.”
Two images appear at the bottom, which are of 10mg hydrocortisone tablet boxes.
The website address www.addisonsdisease.org.uk/news
is underneath the images and the circular logo for the Addison's Disease Self-Help Group is at the top.
⚠️ Following reports of Accord 10mg hydrocortisone tablets crumbling when split, Accord-UK Ltd have now issued a statement.
Read the full article and download our one-page document to share with your healthcare team ➡️ www.addisonsdisease.org.uk/News/tablet-prices-smaller-doses
29.01.2026 02:30
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Magazine - Winter 2026
Welcome to our latest members' magazine - available for download now! Packed with news, views and advice from the Addison's and adrenal insufficiency community.
You've got mail! Our Winter Magazine is here! 📬 Perfect weekend reading, it’s packed with news, personal stories & expert, trusted articles.
Paper copies are in the post! To read online, ADSHG members, please check your emails or visit our website ⤵️
https://loom.ly/GLuEPvY
23.01.2026 04:31
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Illustrated diagram of the human body showing internal organs, with a highlighted close-up of the kidneys and adrenal glands.
Text at the bottom reads, “What are Addison’s disease & adrenal insufficiency?” with the Addison’s Disease Self-Help Group (ADSHG) white logo.
The background is teal.
Teal-background educational infographic titled “What are Addison’s disease & adrenal insufficiency?”
There is a large illustrated diagram of a human torso with labelled organs including the lungs, heart, liver, stomach, kidneys, intestines and bladder.
The adrenal glands are highlighted above the kidneys with a note stating that each one is about the size of an acorn.
Includes the Addison’s Disease Self-Help Group (ADSHG) white logo and the following website address: www.addisonsdisease.org.uk.
There is a small image of an informational leaflet from the ADSHG with the title: “What are Addison’s disease & adrenal insufficiency?”
Addison’s disease and adrenal insufficiency are rare life-threatening endocrine conditions. The adrenal glands cease to function, no longer producing sufficient steroid hormones which are essential for the functioning of the body.
Learn more ⬇️
www.addisonsdisease.org.uk/what-is-addisons-disease
21.01.2026 02:01
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Social Meeting: Perth (24 January) - 24/01/2026 11:00:00
Join Louise at her ADSHG Members Social Meeting in Perth on Saturday 24 January.
Meet members in Perth this Saturday 💜
Join our wonderful volunteer host, Louise, for a warm and welcoming ADSHG Members' Social Meeting in Scotland.
📅 Saturday 24 January, 11am - 1pm
📍 Perth, Scotland
👥 ADSHG Members Only
👉 RSVP here 🔗 https://www.addisonsdisease.org.uk/perth-24-jan
20.01.2026 01:30
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There’s still time to join our Steps for Addison’s Awareness fundraising challenge this February 👣
✅ Sign up now 🔗 www.justgiving.com/campaign/stepsforaddisons26
Together, we can make a difference - one step at a time.
17.01.2026 02:00
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A bold white headline on a purple box at the top reads, “THANK YOU THRIVE!” and underneath it says, “For your continued support with our online shop.”
In the centre, there is a cardboard box filled with various medical alert and emergency items for Addison’s disease and adrenal insufficiency.
The items include a small emergency injection kit, medical alert cards, a thank-you note, a mug with the ADSHG logo, information leaflets, an ADSHG notebook, an ADSHG pen,
a medical alert keyring, a pillbox keyring, and wristbands labelled “Risk of Adrenal Crisis.”
The background is a faded and enlarged version of the Addison's Disease Self-Help Group logo.
The website address “www.addisonsdisease.org.uk/shop” is displayed at the bottom, next to an icon of a shopping trolley. Inside the trolley is the ADSHG logo.
We want to say thank you to Thrive Fulfilment for their professionalism and support with our online shop 🛒
In 2025, they processed 3,010 orders on our behalf - with items varying from leaflets and keyrings, to injection kits and welcome packs!
🛍️ Visit our shop 👉 www.addisonsdisease.org.uk/shop
14.01.2026 01:30
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