Alison Twycross RN PhD's Avatar

Alison Twycross RN PhD

@alitwy

Living with Long Covid. Doing my bit to support UK healthcare workers with Long Covid. Chair of Supporting Healthcare Heroes UK. Associate Member Long Covid Support. Former Professor of Children’s Nursing. #FBLC

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30.11.2024
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Latest posts by Alison Twycross RN PhD @alitwy

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📢 Our Annual General Meeting (AGM) will be held on Wednesday 11 March 2026, 3pm–5pm.

Register here:
shh-uk.org/?mailpoet...

#AGM2026 #CommunityEngagement #NonprofitLife #Leadership #GetInvolved #SaveTheDate

05.03.2026 17:05 👍 1 🔁 2 💬 0 📌 0
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March 15 is Long Covid Awareness Day 💚

Our Long Covid awareness pins are available now.

Shop here 👉 shh-uk.org/shop/

#LongCovid #LongCovidAwareness #LongCovidAwarenessDay #LivingWithLongCovid #InvisibleIllness #ChronicIllness

06.03.2026 07:58 👍 8 🔁 3 💬 0 📌 0
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Join conversation

Healthcare workers living with Long Covid – you’re not alone.

Join our online support group
🗓 Tuesday 10 March
⏰ 11:00–12:00

A supportive space to share experiences & connect with others who understand.

Join here:
teams.microsoft.com/...

Info from: supportgroup@shh-uk.org

06.03.2026 12:21 👍 1 🔁 2 💬 0 📌 0
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Healthcare workers living with Long Covid – you’re not alone.

Join our online support group
🗓 Tuesday 10 March
⏰ 11:00–12:00

A supportive space to share experiences & connect with others who understand.

Join here:
teams.microsoft.com/...

Info from supportgroup@shh-uk.org

06.03.2026 13:21 👍 3 🔁 2 💬 0 📌 0
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Handmade Long Covid awareness jewellery is helping raise funds for Supporting Healthcare Heroes UK.

@Starseeker1986 is donating £1 from every piece sold to @SupportingHH_UK.

Read the story behind it:
shh-uk.org/long-covi...

#Fundraising #LongCovidAwareness

06.03.2026 13:57 👍 3 🔁 2 💬 0 📌 0
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📣 Join our campaign call!

🗓 Monday 9 March 2026
🕕 6pm (GMT)
🔗 Register: tinyurl.com/5t4ap4z6

#SafeAir4All #PatientSafety #PublicHealth #InfectionPrevention #HealthPolicy #Healthcare

06.03.2026 19:04 👍 1 🔁 1 💬 0 📌 0
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Mission and Gallery I Safe Air Schools

If you believe children deserve to study in safe classrooms with clean air and to stop being constantly infected by preventable diseases, please sign this open letter to #education ministers and children's commissioners of the UK and devolved nations safeairschools.org/open-letter/
#CleanAir #Covid

04.03.2026 16:21 👍 9 🔁 6 💬 1 📌 0

@longcovidkids.bsky.social @longcovidsupport.bsky.social @longcovidsos.bsky.social @shh-uk.bsky.social @nikki-s.bsky.social

04.03.2026 16:27 👍 2 🔁 2 💬 0 📌 0
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Blyth ex-GP says long Covid patients are being forgotten The NHS in the North East and Cumbria is closing its last dedicated long Covid clinics this month.

"Covid isn't over. We'd love it to be, and the messaging might sound like it is, but it's not gone and it's still causing long Covid.
A lot of the patient community are feeling left behind and stuck in this nightmare when everyone else is moving on", Dr Rae Duncan.
www.bbc.co.uk/news/article...

01.03.2026 22:45 👍 18 🔁 11 💬 0 📌 0
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New resources just dropped 👇
🔎 Debunking Long COVID myths:
shh-uk.org/debunking...
🏢 Workplace air quality guidance:
shh-uk.org/som-guida...
Facts matter. Clean air matters. Let’s protect everyone.
#SafeAir4All #CleanAir #LongCovid #PublicHealth #HealthAndSafety #EvidenceBased

03.03.2026 10:00 👍 7 🔁 3 💬 0 📌 0
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✨ Stay Informed. Stay Connected. ✨

📬 Sign up to our newsletter today and join a community committed to supporting the people who care for us every day.

👉 Subscribe now: shh-uk.org/

#longcovid #longcovidawareness #longcovidrecovery

03.03.2026 17:51 👍 2 🔁 1 💬 0 📌 0
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💙 Volunteer Opportunity: One Evening a Month

Volunteer Online Support Group Moderator

🗓 Just one evening per month
🌍 Remote opportunity
🤝 Make a real impact supporting our healthcare heroes

Apply here:
reachvolunteering.or...

#VolunteerOpportunity #HealthcareHeroes

04.03.2026 09:02 👍 1 🔁 1 💬 0 📌 0
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Healthcare workers living with Long Covid — this is for you 💙
 
Our online support group meets twice monthly (2nd & 4th Tuesdays, 11am).
 
📅 Next session: 11:00am, 10th March
 
A safe, confidential space with people who understand.

Email supportgroup@shh-uk.org for more info.

01.03.2026 11:10 👍 4 🔁 2 💬 0 📌 0
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Coming soon 👀

A new monthly evening support group for UK healthcare workers with Long Covid — for those in work or planning a return.

Because going back shouldn’t mean going alone 💙

Follow for details.
#LongCovid #HealthcareWorkers #SHHUK

28.02.2026 14:10 👍 2 🔁 2 💬 0 📌 0
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🛒💜 Support us for FREE

Support SHH-UK just by shopping online as usual. It costs nothing, but every purchase raises a free donation via EasyFundraising.

👉 Sign up: easyfundraising.org....

#LongCovid #SupportHealthcareWorkers #EasyFundraising #ShopForGood #NHS #Charity

28.02.2026 20:00 👍 1 🔁 1 💬 0 📌 0
 screenshot of a Zoom chat between Miles, betsy, Torie, Funmi, and Madeline. Their names are emphasized in starburst shapes. The text reads, “The Sick Times. Watch now! Expert tips on pitching and
writing Long COVID op-eds.”

screenshot of a Zoom chat between Miles, betsy, Torie, Funmi, and Madeline. Their names are emphasized in starburst shapes. The text reads, “The Sick Times. Watch now! Expert tips on pitching and writing Long COVID op-eds.”

Help break the stigma around #LongCOVID: share your story by writing an op-ed! To help demystify the process of writing and pitching, we hosted a free webinar with expert guests Torie Bosch, Funmi Okunola, and Madeline Miller.

Watch now, or share with a writer friend! bit.ly/4s1qJxb

28.02.2026 15:52 👍 52 🔁 25 💬 1 📌 1
Red broken heart graphic on a navy blue background. The text overlay on the heart reads: "Having Long Covid is heartbreaking because… sweeping my apartment means spending a day in bed." Above the heart, highlighted text reads: "Share what it’s like to live with Long Covid by March 1." In the bottom right of the graphic is a teal bubble; inside, the text reads "your experience here" with an arrow pointing to the heart.

Red broken heart graphic on a navy blue background. The text overlay on the heart reads: "Having Long Covid is heartbreaking because… sweeping my apartment means spending a day in bed." Above the heart, highlighted text reads: "Share what it’s like to live with Long Covid by March 1." In the bottom right of the graphic is a teal bubble; inside, the text reads "your experience here" with an arrow pointing to the heart.

Red broken heart graphic on a navy blue background. The text overlay on the heart reads: "Long Covid is heartbreaking because… it’s robbed my son of his childhood and his education." Above the heart, highlighted text reads: "Caregivers: Share your Long Covid experience by March 1." In the bottom right of the graphic is a teal bubble; inside, the text reads "your experience here" with an arrow pointing to the heart.

Red broken heart graphic on a navy blue background. The text overlay on the heart reads: "Long Covid is heartbreaking because… it’s robbed my son of his childhood and his education." Above the heart, highlighted text reads: "Caregivers: Share your Long Covid experience by March 1." In the bottom right of the graphic is a teal bubble; inside, the text reads "your experience here" with an arrow pointing to the heart.

March 1 is the deadline to share your Long Covid story for our public awareness project. Submissions will be displayed at our Long Covid Awareness Day events on March 15th, to highlight the many different ways #LongCovid is heartbreaking.

Submit your story here: covidsociety.ca/priorities/l...

28.02.2026 17:39 👍 26 🔁 16 💬 0 📌 1
Julie is glad that she’s wearing a mask on a flight with poor ventilation. CO2 level is at 1654 ppm. High CO2 level is a proxy for poor ventilation. She is flying American Airlines to Scottsdale for RECOVER planning meetings.

Julie is glad that she’s wearing a mask on a flight with poor ventilation. CO2 level is at 1654 ppm. High CO2 level is a proxy for poor ventilation. She is flying American Airlines to Scottsdale for RECOVER planning meetings.

High risk for everyone especially those who are #LongCOVID immune-deficient but can’t miss out on the 2026 RECOVER planning session.
🆔 Julie, in a flomask, holding a CO2 monitor that shows the CO2 level way above 1600ppm, likely inadequate air filtration, on the @americanair.bsky.social ✈️

28.02.2026 17:42 👍 13 🔁 2 💬 2 📌 0
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March 15 is Long Covid Awareness Day 💚

Our Long Covid awareness pins are available now.

Shop here 👉 shh-uk.org/shop/

#LongCovid #LongCovidAwareness #LongCovidAwarenessDay #LivingWithLongCovid #InvisibleIllness #ChronicIllness

27.02.2026 07:58 👍 1 🔁 2 💬 0 📌 0
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Healthcare worker with Long Covid?

Join our SHH-UK online peer support group.
🗓 2nd & 4th Tuesday
⏰ 11:00–12:00 (UK)

Confidential. Supportive. No pressure.

Join: teams.microsoft.com/...
Email supportgroup@shh-uk.org for reminders.

#LongCovid #HealthcareWorkers #PeerSupport

27.02.2026 10:26 👍 3 🔁 2 💬 0 📌 0
Help wanted

Help wanted

Healthcare workers with Long Covid — your voice matters.

Ahead of the UK Covid Inquiry Module 3 report (18/3), we’re compiling a list of healthcare workers with Long Covid willing to speak to journalists. The list will be shared with @LongCovidSOS.

27.02.2026 16:23 👍 4 🔁 4 💬 0 📌 0
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2026 INTERNATIONAL LONG COVID AWARENESS MONTH 4th Annual Global Campaign Calls for Urgent Action for Long COVID and Heart Health

Hi all!

Here is the ILCA 2026 Press Release for International Long Covid Awareness Month.

We encourage you to share with the press (TV, radio, everywhere). The more media picks this up, the more we hope it will bring more attention to #LongCovid.🧵

www.einpresswire.com/article/8955...

26.02.2026 18:24 👍 5 🔁 3 💬 1 📌 0
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📢 Our Annual General Meeting (AGM) will be held on Wednesday 11 March 2026, 3pm–5pm.

Register here:
shh-uk.org/?mailpoet...

#AGM2026 #CommunityEngagement #NonprofitLife #Leadership #GetInvolved #SaveTheDate

26.02.2026 17:05 👍 1 🔁 1 💬 0 📌 0
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Healthcare workers...

You don’t have to do this alone 💙

Online support tailored for you:
shh-uk.org/shh-uk-on...

Plus support for Long Covid, PoTS & MCAS:
shh-uk.org/other-onl...

#HealthcareWorkers #LongCovidSupport #POTS #MCAS #FrontlineStaff #HealthcareSupport

24.02.2026 17:51 👍 2 🔁 1 💬 0 📌 0
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Supporting each other through revalidation makes all the difference. 💙

See how strong partnerships are helping nurses succeed with their NMC revalidation 👇
shh-uk.org/nmc-reval...

#NursesUK #NMCRevalidation #UKNursing #NurseLife #HealthcareHeroes #NurseSupport

24.02.2026 21:00 👍 1 🔁 1 💬 0 📌 0
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Join conversation

Healthcare workers with Long Covid — join our SHH-UK online peer support group.
 
🗓 2nd & 4th Tuesday
⏰ 11:00–12:00 (UK)
 
Safe space. Shared understanding. No pressure.
 
Join:
teams.microsoft.com/...
 
Email supportgroup@shh-uk.org for reminders.
 
#LongCovid #PeerSupport

25.02.2026 19:24 👍 2 🔁 2 💬 0 📌 0
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Cleaner air matters. 🌬️

HEPA filtration can dramatically improve indoor air quality by capturing tiny airborne particles.

Read more: shh-uk.org/hepa-filt...

#SafeAir4All #CleanAir #IndoorAirQuality #PublicHealth #HealthyBuildings #HEPA

24.02.2026 06:00 👍 3 🔁 1 💬 0 📌 0
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Healthcare workers living with Long Covid — our online support group is happening this morning.

Whether you’re still working, on reduced hours, or no longer employed, you are welcome.

🕚 11am–12pm
🔗 Join us: teams.microsoft.com/...

You don’t have to navigate this alone.

24.02.2026 09:30 👍 5 🔁 3 💬 0 📌 0

Happening tomorrow ⬇️⬇️⬇️⬇️

23.02.2026 10:51 👍 0 🔁 0 💬 0 📌 0
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Healthcare workers are used to caring for others. Long Covid can turn that identity upside down. Our online support group offers space to:
• Speak openly
• Share experiences
• Reduce isolation

🗓 24 February
⏰ 11:00–12:00 (UK time)

Join us:
teams.microsoft.com/...

22.02.2026 11:10 👍 3 🔁 2 💬 0 📌 1