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Julie Brose

@juliebrose

PhD β€’ Postdoc research fellow @perroninstitute.bsky.social and Honorary @UWA/University of Bristol/NIHR ARC West β€’ Foodie πŸ‡¨πŸ‡¦πŸ‡¦πŸ‡ΊπŸ‡¬πŸ‡§ Research includes #PalliativeCare #PublicHealth #NeuroRehab #PalliativeRehab #OT #Evaluation linkedin.com/in/julie-brose

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13.09.2024
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Latest posts by Julie Brose @juliebrose

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Evaluating how people with lived experience of multiple disadvantage can improve services - ARC West Working alongside people with lived experience of multiple disadvantage to improve services can have multiple benefits, according to a new study published in Health Expectations. Multiple disadvantage...

Working alongside people with lived experience of multiple disadvantage can transform services – and lives.

Our new study with Changing Futures Bristol shows how trauma-informed, co-produced work makes a difference.

πŸ“„ Read more: arc-w.nihr.ac.uk/evaluating-h...
#HealthResearch #CoProduction

10.11.2025 10:42 πŸ‘ 10 πŸ” 6 πŸ’¬ 1 πŸ“Œ 1

We are excited to share our new paper on helping new parents cope w/ a #CryingBaby to prevent infant #AbusiveHeadTrauma through the ICON programme! Thanks to @arc-west.bsky.social and team! @perroninstitute.bsky.social @capcbristol.bsky.social #academicsky #publichealth doi.org/10.1016/j.ch...

14.11.2025 03:17 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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ICON is a UK-wide programme to reduce the risk of abusive head trauma in infants. How do healthcare managers & frontline staff influence the delivery & sustainability of the programme?

New research has revealed organisational barriers & facilitators.

πŸ“° Read the news: tinyurl.com/59vdh2t3

#GPSky

05.11.2025 15:23 πŸ‘ 6 πŸ” 4 πŸ’¬ 1 πŸ“Œ 0

Thanks @capcbristol.bsky.social for sharing our research on staff perspectives on an abusive head trauma intervention! Check out our ⭐️new companion paper⭐️ on parent perspectives of the ICON programme β€”> doi.org/10.1016/j.ch... β€”> @arc-west.bsky.social story here: arc-w.nihr.ac.uk/news/parents...

14.11.2025 03:05 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Aspire Awards Program

Thank you to Business Events Perth and @perroninstitute.bsky.social for the incredible honour of being named one of the 2025 Aspire Award winners. 🌟 www.businesseventsperth.com/aspire-progr...

10.11.2025 07:11 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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It's okay to walk away: the program saving babies' lives Researchers who evaluated a UK program designed to prevent shaken baby syndrome say a similar approach could Australian parents struggling with crying babies.

Thanks UWA for sharing our evaluation of the #ICON program, helping parents manage infant crying safely and prevent #AbusiveHeadTrauma

bit.ly/UWAnews #ParentingIsHard
#PublicHealth #Parenting #InfantSafety @arc-west.bsky.social #ShakenBabySyndrome #medsky #academicsky doi.org/10.1186/s128...

06.11.2025 14:50 πŸ‘ 1 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

We are excited to share our new BMC Public Health paper! We explored staff perspectives on how the ICON programme across England helps parents cope w/ crying to prevent infant abusive head trauma & what supports/hinders its delivery. Thanks to @arc-west.bsky.social and team!
doi.org/10.1186/s128...

23.10.2025 13:48 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Healthcare leaders and professionals’ perspectives of the ICON programme to prevent abusive head trauma in infants: a qualitative study - BMC Public Health Background Abusive head trauma (AHT) in infants is the most common abusive injury in young children, and increased awareness has resulted in the development of prevention programmes. Most research eva...

The ARC West-led evaluation of ICON, a UK-wide programme designed to reduce the risk of abusive head trauma in infants, is published in BMC Public Health:
bmcpublichealth.biomedcentral.com/articles/10....

23.10.2025 11:28 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Developing good qualitative research questions: an NIHR RSS webinar | QUAHRC Join the NIHR Research Support Service (RSS) Hub at King’s College London for an interactive session designed to help you craft clear, focused, and purposeful qualitative research questions.

Looking for help designing #QualitativeResearch?

Join this free webinar with @nihr.bsky.social Research Support Service #qualitative experts on how to write good research questions:

#ResearchMethods #ResearchHelp #AcademicSky

www.quahrc.co.uk/training-sem...

01.07.2025 11:51 πŸ‘ 2 πŸ” 6 πŸ’¬ 1 πŸ“Œ 1

Occupational therapists help enable people of all ages to participate in everyday life activities. πŸ’ͺ @otaust.bsky.social @thercot.bsky.social #CAOT

01.07.2025 00:20 πŸ‘ 4 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Search for additional victims ends after massive rockfall kills 2 in Banff National Park | CBC News Two people were killed and three seriously injured in a massive rockfall that struck numerous hikers near Bow Glacier Falls in Banff National Park on Thursday and, after an overnight search, Parks Can...

We are deeply saddened to hear of Jutta Hinrichs death. She will be dearly missed. I am thankful to have worked with her - she was a kind and thoughtful person and occupational therapy educator at the University of Alberta. @ualberta.bsky.social

www.cbc.ca/news/canada/...

21.06.2025 04:00 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Do you work in #PalliativeCare in Europe? We would love to hear your perspectives on palliative rehabilitation (no knowledge on the topic required!) here: app.onlinesurveys.jisc.ac.uk/s/stirling/c... Please share! @eapcvzw.bsky.social @hospiceuk.bsky.social @peolcsw.bsky.social #hpm #hapm #RCOT

23.04.2025 08:35 πŸ‘ 3 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
MND - Identifying Key Priority Areas The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

Are you living with #MND, a carer, family, friend, researcher or health care professional of someone experiencing MND? Help shape the first Australian MND Care Guideline by completing the survey, thanks to Dr Danielle Pollock & #FightMND
adelaideunisop.syd1.qualtrics.com/jfe/form/SV_...

23.04.2025 05:07 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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two women are standing next to each other with the words that 's exciting yay !!! ALT: two women are standing next to each other with the words that 's exciting yay !!!

Occupational Therapists come & join our fab teaching team at the University of Worcester! Our ever expanding team (...and I don't just mean in relation to post-Christmas waistlines...) are seeking another OT lecturer! Take a look at the advert, any Q's pls ask!
jobs.worcester.ac.uk/vacancy.aspx...

17.01.2025 13:27 πŸ‘ 2 πŸ” 3 πŸ’¬ 0 πŸ“Œ 1
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πŸ“£πŸ“£πŸ“£ We are looking for health and care professionals with experience caring for adults with advanced illness, and working with ethnically diverse populations, to join an expert consultation.

Please contact us if you are interested πŸ™

See flyer πŸ‘‡

13.01.2025 17:26 πŸ‘ 9 πŸ” 15 πŸ’¬ 0 πŸ“Œ 0

Great to see you on Bluesky, @inspirerehabeu.bsky.social !

15.01.2025 10:49 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Hello Bluesky!
We're an EU-funded study testing a palliative rehabilitation intervention for individuals with cancer in Denmark, France, Norway, Italy and the UK! Delighted to connect with anyone interested in #palliativerehab- let's stay in touch!

14.01.2025 11:50 πŸ‘ 10 πŸ” 5 πŸ’¬ 3 πŸ“Œ 0

πŸ“’ Free webinar on our CLIP-Q approach to collaborative, intensive, pragmatic qualitative research

πŸ—“οΈ Thur 6 March
⏰ 10-11am
πŸ’‘ Learn about our responsive #qualitative process to research without compromising quality

🎟️ Reserve your place ⬇️
www.eventbrite.co.uk/e/collaborat...

#QualitativeResearch

13.01.2025 12:42 πŸ‘ 8 πŸ” 7 πŸ’¬ 0 πŸ“Œ 0
First page of article.

Fairytale type pic of Princess leaning over dead or sleeping Prince.

Facing death and grief: revolution needed
Despite growing public interest in death, support for end-of-life care and bereavement remains inadequate. We urgently need a revolution: a community centred, public health approach to the social processes of dying and mourning, backed by properly funded palliative care, writes Lucy Selman.

First page of article. Fairytale type pic of Princess leaning over dead or sleeping Prince. Facing death and grief: revolution needed Despite growing public interest in death, support for end-of-life care and bereavement remains inadequate. We urgently need a revolution: a community centred, public health approach to the social processes of dying and mourning, backed by properly funded palliative care, writes Lucy Selman.

Pic of man in bed in hospital.

Sample of text:

In the UK around 90% of dying people would benefit from palliative care, but 25% don't get it. Demand is set to rise 25% over the next 25 years as lifespans increase and health conditions grow more complex, yet the sector is already critically underfunded. Just a third of UK hospice funding comes from the state, with the remaining Β£1bn raised annually through charity shops, fundraising events, and donation.
This funding gap sends a clear message: care for dying people is less valued than aggressive treatments and high tech medical advances. (It's surely no coincidence that 9 in 10 of the clinical and care workforce in UK hospices are women, reflecting a long history of "women's work" being undervalued.)

Pic of man in bed in hospital. Sample of text: In the UK around 90% of dying people would benefit from palliative care, but 25% don't get it. Demand is set to rise 25% over the next 25 years as lifespans increase and health conditions grow more complex, yet the sector is already critically underfunded. Just a third of UK hospice funding comes from the state, with the remaining Β£1bn raised annually through charity shops, fundraising events, and donation. This funding gap sends a clear message: care for dying people is less valued than aggressive treatments and high tech medical advances. (It's surely no coincidence that 9 in 10 of the clinical and care workforce in UK hospices are women, reflecting a long history of "women's work" being undervalued.)

Pic of someone being cared for and having their hair brushed.

Sample of text:

Clinicians too have a critical role in reshaping attitudes and so must build their own death and grief literacy. By discussing end-of-life care openly and challenging common misconceptions, they can model acceptance of dying, build trust, and show the public that it is safe to ask questions and voice doubts and fears.
Care must be emotionally aware, culturally sensitive, compassionate, and person centred-and this must be reflected in clinical education.
Clinical leaders must acknowledge the emotional weight of dealing with death and grief and offer support, encouraging sharing, peer support, and remembrance. By making space for grief and vulnerability in professional life we nurture the human side of being a clinician.

Pic of someone being cared for and having their hair brushed. Sample of text: Clinicians too have a critical role in reshaping attitudes and so must build their own death and grief literacy. By discussing end-of-life care openly and challenging common misconceptions, they can model acceptance of dying, build trust, and show the public that it is safe to ask questions and voice doubts and fears. Care must be emotionally aware, culturally sensitive, compassionate, and person centred-and this must be reflected in clinical education. Clinical leaders must acknowledge the emotional weight of dealing with death and grief and offer support, encouraging sharing, peer support, and remembrance. By making space for grief and vulnerability in professional life we nurture the human side of being a clinician.

β€œFacing death differently: revolutionising our approach to death and grief”.

A really important piece here from @lucyselman.bsky.social in the @bmj.com.

I’ll try to pick out some highlights in a🧡, but actually I’d recommend reading the whole article.

Link here:
www.bmj.com/content/387/...

04.01.2025 10:01 πŸ‘ 101 πŸ” 55 πŸ’¬ 7 πŸ“Œ 7

Thanks! Would love an add :)

03.01.2025 07:22 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Wonderful! Done :) Have a merry Christmas!

24.12.2024 22:29 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Added! I hope you’re doing well :)

23.12.2024 09:34 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Added :)

22.12.2024 07:41 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Done Natalie :)

21.12.2024 22:47 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
RecipeTin Eats - A Food Blog Serving Up Quick & Easy Dinner Recipes A food blog with 1500+ delicious, free recipes. Quick and easy dinners, classics done right, incredible one-pot wonders, Asian takeout at home and holiday feasting – it's all here!

My go-to is always Nagi at www.recipetineats.com - she’s a lifesaver! Click on quick and easy recipes - I’ve not had a bad recipe yet :)

06.12.2024 15:40 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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#hpm #hapc #palliativecare #blackburn

05.12.2024 19:24 πŸ‘ 3 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0
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Please help us reach parents who manage their child’s cancer pain at home in the UK. #pain #palliativecare #cancerpain #paediatricpain

05.12.2024 20:35 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

May I be added please? Qualitative researcher here :)

04.12.2024 05:51 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
Hands holding acorns.

Hands holding acorns.

Read our final newsletter of 2024❄️the December national ARCs newsletter, for our latest roundup of news, blogs & opportunities from across the country: mailchi.mp/nihr/decembe...

β˜ƒοΈ Browse #ARCadvent this month, as we post a daily reveal of the most popular stories of the year!

03.12.2024 08:52 πŸ‘ 21 πŸ” 18 πŸ’¬ 0 πŸ“Œ 0

Thanks Miriam! We love our PT colleagues too :) Do feel free to tag me when they come over to Bluesky - always great to connect.

04.12.2024 03:05 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0