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27.02.2026 09:05
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You're welcome!
Your neurologist and/or epilepsy nurse, you can also speak to your GP about it. If you'd prefer, there's also Epilepsy Action - they are lovely and have a free helpline 0808 800 5050
www.epilepsy.org.uk/support-for-...
So glad you liked it, Emma!
What's the business re Keppra rage ๐๐ก? True? False? Inbetween? Who cares about seizure control when they are feeling so depressed (or worse)? ๐
Watch ๐!
๐ฌ YouTube lnkd.in/eAhf66-2
This episode is presented in partnership with EASEEยฎEpilepsie, by PRECISIS GmbH.
#epilepsy #keppra #kepprarage
Should people be using neurologists or #AI for advice on #epilepsy? Should neurologists be using acadmic publications/learnings to give advice?
75% of GPs are using ChatGPT for advice and they have no training! What's the pros and the cons? Watch, with Dr. Charlotte Blease! ๐ youtu.be/nvVAQaPP1vc
Neurologists must look beyond seizures! Prof. Kette Valente ๐ง๐ท shares how other symptoms must be recognised & addressed early - if we want to improve quality of life!๐
๐ฌ lnkd.in/e7f7uHxu
This episode is presented in partnership with EASEEยฎEpilepsie, by PRECISIS GmbH.
#epilepsy #genetics
It's a double-release! In this week's 2-part episode, hear from a mum of a son with a rare #epilepsy and a neurologist who helps improve the quality of life of families affected! With #Dravet Syndrome (and other epilepsies) there's so much more than seizures to consider!
youtube.com/playlist?lis...
What could the global epilepsy community achieve if no country had to work alone? ๐๐ค
In this trailer ๐, Prof. Nicola Specchio ๐คฉ๐ฎ๐น explains why evidence, training and advocacy must be shared to create a global minimum standard for epilepsy care! ๐
๐ shorturl.at/7WodS
#epilepsy #globalhealth
Thatโs the question ๐! On the podcast today, Prof. Nicola Specchio shares the challenges currently faced re inequality of access to quality care and how heโs going to address it - in his new role as Chair of ILAE (International League Against Epilepsy) - Europe! Watch here ๐!
๐ฌ youtu.be/eWXWNjL2FGw
๐ Could clearer communication transform the epilepsy journey for families? ๐
Great minds have poured their souls into new book - providing practical info about #epilepsy diagnoses, morbidities (e.g. #depression, #anxiety), cerebral palsy, & confidence!
Watch here ๐ youtu.be/bHhtMfNxErw
Which parts of #epilepsy care are being overlooked? ๐ค Cheryl Tveit ๐คฉ ๐บ๐ธ & Dr. Charbel El Kosseifi ๐คฉ ๐บ๐ธ break down the journey, inc. first aid, driving, careers, morbidities (eg mental health), and how clear communication can transform outcomes! ๐
๐๏ธ Podcast shorturl.at/H5jEA
๐ฌ YouTube shorturl.at/FBZJ9
๐ค What happens when clear info about epilepsy finally reaches the those who need it most? ๐ก
We hear about a powerful new book ๐ for people with an #epilepsy, families, and even clinicians & educators!
Think diagnosis, morbidities, quality of life! ๐๐ป
youtu.be/bHhtMfNxErw
@mackeithpress.bsky.social
๐ Congratulations to FutureNeuro Investigator Dr @dowlingjk.bsky.social at @rcsi.bsky.social awarded โฌ791,428 by the @researchireland.ie Frontiers for the Future Programme to investigate Arginase-2 as a novel therapeutic target for epilepsy.
Read more: futureneurocentre.ie/futureneuro-...
Epilepsy: what happens when the Blood-Brain Barrier (BBB) leaks?! ๐ฉธ๐ง
Dr. Claire Behan ๐คฉ๐ฎ๐ช & Dr. Chris Greene ๐คฉ๐ฎ๐ช reveal fascinating insights into how issues with the BBB can lead to seizures and #epilepsy! Availalbe now on the Epilepsy Sparks Insights podcast! ๐ youtu.be/rBpI_-daWjw
#neurology
How does the blood-brain barrier influence epilepsy? ๐ค๐ง Join Dr. Claire Behan ๐คฉ๐ฎ๐ช & Dr. Chris Greene ๐คฉ๐ฎ๐ช on the podcast to hear all about it as they chat with Torie!๐
๐ฌ youtu.be/rBpI_-daWjw
#epilepsyawareness #epilepsyresearch #bloodbrainbarrier #epilepsysurgery #epilepsyawarenessmonth
Great to see our researcher @chrisgreene.bsky.social & Dr Claire Behan discuss their latest research with @torierobinson.bsky.social on the @epilepsysparks.bsky.social Sparks podcast โ exploring how blood-brain barrier dysfunction links to epilepsy & future therapies.
๐ง youtu.be/rBpI_-daWjw
โWe have to protect one area of the brain & remove another.โ - Dr. Ricardo Morcos ๐คฉ ๐ฌ๐ง!
A hopeful, very educational chat about the epilepsy surgery journey ๐ช๐ง - clear, empowering, & informative!
Watch the full episode here! ๐
youtu.be/QzIoLlRG1Lw
#epilepsysurgery #epilepsy #neurosurgery
Approx. 30% of people with an epilepsy donโt respond well to meds โ so what happens next? ๐ง
On #Epilepsy Sparks Insights๐๏ธ, Torie Robinson chats with Dr. Ricardo Morcos ๐คฉ๐ฌ๐ง about the #epilepsysurgery pathway โ from EEGs & MRIs to MDT meetings & life after surgery! ๐
๐ฌ Watch here: youtu.be/QzIoLlRG1
๐งโ๐คโ๐ง Our fellow humans in prison โ๏ธ - are not getting the epilepsy care or even the prescriptions they need - because they're in prison. This isn't only impacting quality of life but increasing risk of #SUDEP!
Check out our trailer for this week's podcast here ๐!
๐ฌ YouTube shorturl.at/qNwkX
#epilepsy
Why is epilepsy so common in prisons - podcast
Who knew that #epilepsy was soooo much more common in prisonsโ๏ธ? Up to 4 times as many people in prison have an epilepsy compared to the regular public ๐ซจ!
Learn about why this is and what can be done to sort things out! ๐
๐๏ธ shorturl.at/sywif
๐ฌ shorturl.at/qNwkX
#prisonhealth #neurology
โ๏ธAre they just disregarded? Not valued? #Epilepsy is up to FOUR TIMES more common in prisons โ๏ธ.
People are way more likely to have had Traumatic Brain Injury, have substance misuse, mental health illnesses and more.
Check out this weekโs episode all about it! ๐๐ป youtu.be/2yKOxliR1pY
Interactive, self-paced & global - the ILAE Academy is transforming clinician education in the epilepsies! ๐ Hear from Prof. Gagandeep Singh ๐คฉ ๐ฎ๐ณ.
๐๏ธ Podcast shorturl.at/QdjMR
๐ฌ YouTube shorturl.at/4gvmM
#EpilepsyEducation #ILAEAcademy #Neurology @ilae-epilepsy.bsky.social
How is the ILAE Academy reshaping epileptology training worldwide? ๐ Hear from Prof. Gagandeep Singh ๐คฉ ๐ฎ๐ณ on Torieโs show!
๐๏ธ Podcast shorturl.at/QdjMR
๐ฌ YouTube shorturl.at/4gvmM
๐ Show notes shorturl.at/c8SyD
๐ค Gagandeep profile shorturl.at/48lSb
@ilae-epilepsy.bsky.social @uclh.bsky.social
Snapshots of the fun mini docu about the International Epilepsy Congress in Lisbon ๐ต๐น! All by Landis Weidner ๐คฉ๐บ๐ธ - host of the What The EF podcast about the epilepsies! Check it out here: youtu.be/8jDWeFI_gAw?...
#epilepsy #neurology #whattheef #seizures
What can it *really* be like to care for someone with an epilepsy? ๐ค
Dr. Florien Boele ๐คฉ๐ณ๐ฑ๐ฌ๐ง shares why carersโ wellbeing must not be overlooked - and how to take part in her research all about it! ๐
๐ฌ shorturl.at/7iv2e
#EpilepsySparks #EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch
Low-down of episode and QR code for the study
Unpaid carers save the UK ยฃ184B a year - but at what cost to their health? ๐คฏ
Dr. Florien Boele ๐ณ๐ฑ๐ฌ๐ง talks with Torie Robinson about quality of life, stress, & why carers matter. Check out the episode here ๐.
๐ฌ shorturl.at/7iv2e
#EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch
@carers-uk.bsky.social @carersscotland.bsky.social @carers-week.bsky.social
Who are carers really - and why do they matter so much in the epilepsies? ๐๐ค
Dr. Florien Boele ๐คฉ ๐ณ๐ฑ๐ฌ๐ง joins Torie Robinson to talk about unpaid carers & their ยฃ184B ๐ฎ contributionโฆ!
๐ฌ shorturl.at/7iv2e
๐ shorturl.at/ttH16
#EpilepsySparks #EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch
New podcast episode! ๐ Dr Ewan Nurse ๐คฉ๐ฆ๐บ joins Torie to discuss his research re:
ใฐ๏ธ Missed seizuresโฆ
ใฐ๏ธ Flawed diaries ๐คฆโโ๏ธ
ใฐ๏ธ Improving reporting for better care ๐
Watch/listen/read the Epilepsy Sparks Insights episode ๐
๐๏ธ shorturl.at/BsOVW
๐ฌ shorturl.at/SJLxN
๐ shorturl.at/RK1vL
#epilepsy #seizurediary
๐ฅ New Ep! ๐ฅ
Harvardโs Dr Phillip Pearl ๐คฉ๐บ๐ธ (Chief of Epilepsy at Boston Childrenโs Hospital & Prof at Harvard) on:
โก Why advocacy matters
๐งฌ Rare epilepsy & gene therapy
๐ SUDEP & mental health
Catch it here ๐
๐๏ธ shorturl.at/LbjyF
๐ฌ shorturl.at/z7VzU
๐ shorturl.at/PDSag
#Epilepsy #Neurology #SUDEP
