27 I ME/CFS seit 2021 I WING Universität Augsburg I DE II EN
https://www.mecfs.de/was-ist-me-cfs/
Patient/Caregiver-led nonprofit 501c3 focused on #MECFS and #LongCovid • https://Renegade-Research.org 💙 Runs project @remissionbiome.bsky.social • Donate now ▶️ https://tinyurl.com/44azdsxm
Working for a safe, inclusive world that prioritises people and planet not profit, making lives better not death, destruction and exploitation, humanity not machinery, honesty not manipulation, accountability not cover up.
PhD biochemist. #MECFS. Just joined here from X (docsimsim). #C4News
#LongCovid Scientific Consultant
PhD Nutrition & Metabolism
Hon Research Fellow, Lund Uni
Posts: nutrition ▪ health ▪ all-things-science ▪ activism ▪ fun facts ▪ #PostVac
Donations: https://ko-fi.com/drsmash
Facebook: https://www.facebook.com/LongCovidSC
My partner was infected with Covid by doctors because the doctors refused to use respirator masks or air filters.
Twice.
So now I'm campaigning.
https://whn.global/doctors-should-not-infect-patients/
#WearAMask #WearARespirator #N95 #P100 #FFP3 #P3
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
Lead by love and data. Doing my best to reduce the suffering in the world. Hope is Not a Plan. Universal Design benefits Universally. Amiskwaciwâskahikan #MaskUp #CleanAirRevolution #Decarbonize #Decolonize
😁Chronisch optimistisch
✍️Schreiben & Kreativität
🥖Gluten-/laktosefrei
⚕️ME/CFS
🧙🏻Urban Fantasy Autorin
https://www.julia-stueber.de/social-media/
#StandWith🇨🇦🇲🇽🇵🇦🇵🇸🇺🇦🇪🇺
Italian-American anti-fascist anti-maga anti-psychopaths in politics
Person with #MECFS #MyalgicEncephalomyelitis
🏵️🏵️🏵️ Life-long WOKE progressive, horticulturist, democrat, and rescue dog mama. 🐕🐕🦺
🫘
#BlueCrew #StrongerTogether💙💙💙💙
She/her/them
Autistic human with EDS, POTS, LC + like 1000 others
Far left, queer af, pissed US citizen
Happily married!
May have used this same handle on the bluebird place a long time ago
🫶🏻
Researcher, advocate, mediocre dog mom.
Health systems and patient-provider relationships.
Chronic illness, LC, disability justice.
I would really love to see a photo of your dog.
She/they
Trying to love Jesus & my neighbor—results vary daily. Wife/mom/GR’s lady-in-waiting. Social-justice, civil rights, LGBTQ+ ally. Commonsense gun safety & masking. Inclusive spaces are healthier & safer for everyone. 🚫DMs
Living in North Wales 2 cat household
. Worrying about our NHS 💙 😷 Covid CC. Love nature
Interests: Civility | Democracy
| Long Covid | ME/CFS | MCAS | Autism | PDA | Alexithymia | Repost/Follow/Like doesn't imply endorsement
I am a retired teacher from Ca. Part of the blue crew resistance. MAGA sucks donkey.
Writing poems and songs are a great form of therapy. It can release some stress. It’s ok to disagree with someone. That’s the beauty of a democracy.
All you need is love
Long Covid since May 2022. Chronically ill.
Likes Community, real science & research. BPS types & anti-science folk can move along.
We provide support, resources & reliable science-based information to patients, parents or caregivers of those suffering from Long Covid in Canada in our FB support group. Engaging w our community& building collaborations. Because we are STRONGER TOGETHER.
🌿 Lines/colors/shapes are my medicine
🎨 Tiny Neurographic/Zentangle/Grid/Abstract art
🌀 Navigating Long COVID, POTS & HO one drawing at a time
🫏 Unwavering 🏳️🌈 Democrat in AZ
🐶🐶🐶🐶 mom
The principles of good governance are fairness, transparency, honesty, and solidarity.
https://t.co/sBmyWo7Ivc
Based in Scotland
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak.
I care.
Ⓐ💚, (FR/DE/EN, but posts in english)
Clinging onto the ledge above the abyss.
Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷
https://www.disabledginger.com
A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
Love my dog, my husband, cooking, gardening and being creative - not necessarily in that order.
In Long Covid hell since Feb. 2020.
Founding Member and Research Co-Lead of @longcovidsupport. Views my own.
UK charity dedicated to supporting people with Long Covid
• Support • Research • Advocacy • Education •
www.longcovid.org
https://linktr.ee/longcovidsupport
📧info@longcovid.org
Refugee from twitter democrat 🚫NO DMS🚫
Civ.Attn. Lit & transact.business.real prop.PI wills and trusts. BA PoliSci Oakland U; JD UOP, Photographer and hubby to amazing advocate Li follow her: @cateyezgreen.bsky.social on 🦋
🦋Bylines Scotland articles: https://bylines.scot/author/alisonmurray/
My views here are my own. #StopFundingHate #NHS 💖#EU
#YouYesYet #Booksky #RomComReads #HolidayRomance
I #FB liberal active users I use Unfollower App to check. No DMs
21, Bedridden for 9yrs with #VerySevereME #hEDS #SFPN #MCAS #PoTS Chronic Insomnia & Chronic Bladder condition.
Mother helps run account. ♥️
Instagram : @aliceandthemillions / alicefricker
(Don’t want to be defined by my) mecfs & adhd. Too fatigued to be on the barricades but I'll make the cocktails
Long Covid pediatric advocate
#CovidisAirborne
#LongCovidKids
#pwLC
#pwME
Hate has no home here.
A life long reader, a sometimes baker and a community gardener.
Views are my own.
Healing my body and mind. Striving to be positive and repel real forms of hate in society and in my life. Looking for folks to join me on my journey to live and save democracy. Long COVID is a battle I fight every day. No porn or crypto. That’s X not here.
Met Not Recovered Belgium komen we op voor alle patiënten met Long Covid, ME/CVS, POTS, Lyme en fibromyalgie.
We ijveren voor betere zorg, het oprichten van kenniscentra, registratie van patiënten, ...
Long covid brought me here, from fit to wheelchair. In a shitty club with great people #FBLC. No woowoo. #PEM #PESE #MECFS
Mastodon: @_trans4m8tion@zeroes.ca
Former Professor of Psychology. Fascinated by hallucinogens and phobias. Chiroptophobic. Dreamer.
Avoiding the plague like the plague. Although that phrase doesn't really mean what it used to...
Editor, writer, oral historian. Pākehā living in Wairarapa, Aotearoa. She/her. Old lefty bisexual feminist. Cats, gardens, art, books, knitting, human rights. Kia kaha te reo Māori, toitū te Tiriti. Covid isn't over.
🏴 Loving life 🌻 grannie 👨❤️💋👨 cyclist 🚲 knitter 🧶 walker 👣 still learning 📚 retired teacher👩🎓bread maker 🍞 Scottish Independence 🏴
Non-profit accelerating a cure for 100M+ people with Long COVID.
Longcovidlabs.org
Various interests, including mental & physical health & well-being, science, world affairs, politics, evaluation, performance measurement, etc. Posts are my own. Reposts are not endorsements. Please don't DM me just because I follow you back.
Asociación de Personas con Encefalomielitis Miálgica (PEM) - ONG PEM - Asociación de ámbito nacional.
www.ongpem.org
info.ongpem@gmail.com
#EncefalomielitisMiálgica #TestimoniosPEM #pwME #MyalgicEncephalomyelitis
COVID-19 Longhauler Advocacy Project is a patient-led #LongCOVID 501(c)(3).
Visit longhauler-advocacy.org/lcamonth26 to learn more and take action this #LongCOVIDAwarenessMonth.
#LongCOVIDAwareness #OneInfectionAway
https://twitter.com/Osaca_ME
Life on pause due to Long Covid and ME/CFS-advocate and patient
Jeweller 💍 Scientific & Archeological Illustrator 👩🏼🎨 Graphic Designer 👩💻 I ♥️ dogs🐕 rats🐀 nature🍃 bugs🐞 skulls💀 water💦 flowers🌸 music🎶
first wave #LongCovid 🌊
Team member @longcovidsos 🛟
Sharing international Covid-related new learning, opportunities and creativity; driving good practice towards a safe Inclusive New Normal. Please tag if you have some to share. Thanks!
Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020 || Lawyer on Pause
A platform for business opportunities, Knowledge based Society and a book publishing business . Here we are Entrepreneurs, Builders, Dealers ,Deal Makers and Facilitators. Founded by RHAL. Visit us here: https://linktr.ee/alpharayangossio
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk
Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
Official spokesperson for the Silent Majority. Fully Certified Renaissance Man. Leftist, anti-Zionist, Green party member, JC Stan. Ultra longhauler ME, chronic illness sufferer. Egalitarian. Follow me if you want to live.
Living with Long Covid.
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
Health academic trying to navigate these interesting times 😬
she/her/i/ise
#CovidIsAirborne #MaskUp 😷
Composer who is currently working on a Song Cycle.
Posting about: Music, COVID safety, Clean Air, Climate Change & wildlife.
#Covidisairborne #FBCV
#Vaccinessavelives
#WearARespie ffp2/3
Vote Green Party 💚
#IStandWithGreenland
#DoNoHarm
#CallForPublicHealthAction
words assure, actions commit
Squatter on Indigenous Land
Research Director of the #Exercise #Technology & #Cognition Lab | #Movement #Neuroscience | Husband | Dad | #MartialArtist | #FlowArtist | #Tennis Teaching Pro | Advocate for Persons with Long Covid
Musician (saxes, basses), artist, writer. Science advocate. Non believer. #brexitwasacon #wearffp3 #ClimateCatastrophe #zoology #animals. Banner is a tan and white boxer dog on a beach holding a long stick and looking to camera.
Also writes.
#GreenParty of England and Wales #covid and #longcovid campaign working group. Join us? https://linktr.ee/greensagainstcovid
Disabled. Living with severe M.E. Watching the world from the window while bedbound. Excuse typos etc, sometimes the cognitive bits don’t work. Also posting on endometriosis and a little on mental illness too 🏴
differently abled intersex artist
lyon n2 zurichn2
https://www.patreon.com/staykinduniverse
Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
Woman of many hobbies, but due to M.E. little energy to do any of them. Here to stay in touch with the outside world, which is tricky to interact with right now. Chair of KCIMESG (Kirklees and Calderdale ME Group).
Just a human who wishes we can create a world where people aren’t exploited and divided by the wealthy, where we take care of each other & the planet, & value diversity. Might actually be from Saturn. Shhh🤫
🌎🕊️ 🏳️🌈 🔬 🥦 🪐
First waver disabled by #LongCovid (with #MEcfs). Anti-capitalist and zero covid zealot. 29 and the mom to a very clever cat.
Master i spesialpedagogikk, pårørende til alvorlig ME-syk
I like physics and computers and complex systems and doing something good in the world. Recovering from LongCovid. I live in Aotearoa/NZ. He/him.
Covid is airborne. Covid is not mild (ask your neurons & vasculature).
And -- Covid is not over 😷 #wekeepussafe #covidcompetentcommunity #makeairbreathableagain #maskup
[art credits: Eyvind Earle, "Paradise"; Artur Rosa, "Layers of Impossibility"]
Avid reader, occasional reviewer. Beginner genealogist & dysgu Cymraeg.
Retired by moderate-severe ME/CFS & chronic migraine.
Managed by Rowan. She/her.
#LGBTQ #LovelsLove #BLM #ChronicPainSucks #CancerSucks #Lupus
🛑 NO DMS! 🛑 NO FOREX/BITCOIN 🛑
💙 I'm a blue 🔵 in a red state. Don't judge my GoFundMe unless you know me!
https://www.paypal.me/RenateTurner
https://gofund.me/9856991e
NO Lists please
ME since 2021
#PwME #mecfs #longcovid #fibro #pots #severeME
I live on a lovely little island ( #OrcasIsland #PNW )
pfp: my black cat sleeping with forelegs stretched out
Lancashire Lass with #MECFS likes flowers 🌸trees 🌳nature 🌱climate ⛈️ justice for all 👩🦽 interested in #longcovid prefer to interact a with community of kind humans ! . North West England . Feel like a Mole in an #MECFS hole trying to dig my way out!♿️
Nature lover🐦, peace seeker, gentle soul. From engineer to psychology graduate. Now more husk than human🐌: Housebound Pw #MECFS #PoTS #CPTSD #Menieres
Horizontal advocate for #pwME. 🇳🇱 in 🏴. Medically Retired Hardware Engineer. FOSS Fan.
Ally. PwME/LC. Volunteer with @meactionscotland.bsky.social. He/Him. #SaveSavannah #BIPOCLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
Life on hold by severe #MECFS, currently 99% bedbound 🛌
Documenting my life like it is now, advocacy through photography 📷
📍Finland
https://nikosuvisto.com/
Songwriter - International Political Economist - Guerrilla Gardener
#architecture #gardening #LGBTQ2 #MECFS #ONTECH #socialist
South West UK, #autistic, #close2ME, learning as fast as I can! Caring for #pwme
Artist, researcher. Anthropology, experimental archaeology, painting, sculpture, visual communication. Slowed but not entirely stopped by ME/CFS. Ottawa, Canada.
Blessed to bliss
Long covid/ME sufferer attempting to see if eating the rich is an effective cure
Letterboxd: https://boxd.it/nVfz
Retired nurse. #swiftie. Loving life in PNW.💙no DMs please
Living in London with a Hungarian, two Russian Blue cats, #MEcfs and a healthy obsession with the art of Keith Haring. 🇬🇧🇪🇺🏳️🌈🇺🇦♥️
Seculier humanist | anti-theïst | anti-spiritualist | wetenschapsnerd | haat complotdenkers | ♥️ wielrennen & muziek maken | was liever astronoom geworden | Long Covid | POTS | PEM | social anxiety | OCD | ME/CFS
Professor of Mathematical Sciences at the University of Puerto Rico, Mayagüez
/
The pandemic ends when infections end, not when your attention span ends.
Animal and nature lover, enjoy socializing but find it exhausting. Love the outdoors especially on the back of a horse. Once a Music Business Professional and still love music of all sorts. DMS off. No crypto. 🙏
documentariste | artiste audio
during COVID is now. resistance starts with a respirator.
La folie qui nous entoure ne m'empêche pas de constater qu'une structure de phrase trop longue et ambigu n'abouti pas toujours au résultat escompté. De toute façon, le temps avance trop vite pour s'y figer de manière efficace. Ceci est une 3e phrase.
Writer, photographer, retired cop but politically progressive. Support community oversight of police and government transparency. Go figure.
Oh, I am also a fountain pen nerd.
🤯DEPUIS 2022:CovidLongue
😇AVANT:Journaliste gaspésienne/Agente comm à Parcs Canada/5à7teuse/ Cueilleuse sauvage/Jardinière
📍Gaspésie, ⚜️ 🇨🇦
#covidlong #longcovid #covidisairborne
