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Coconut oil has worked for me im the past!

Im so happy to hear that. Ive heard Megan has long covid too

The denver show? Im bedbound with long covid since 2020, or else id be there. So glad to hear most people were receptive to masking.

Jealous of your matcha posts, I miss it so much. My MCAS and dysautonomia say no. Im nervous to try again.

All while disability is exponentially increasing.

I was there protesting in 2017. I became disabled by covid in 2020 and still bedbound and cognitively impaired. I wish I could protest all of this. But grateful for those who show up for those of us who cant.

I daydream about cheesecake daily! And chocolate. Fuck mcas lol

So glad to hear that🙏🏼 Does the hematologist have any understanding of long covid? Im considering trying to get a referral to one, but not sure it's worth the time.

Do I need to use a solvent for suppositories? Or just when making a topical lotion?

I will definitely be doing research on this. I have experience making cannabis suppositories, so I'm assuming I'll find a way to make this work! 🙏🏼

Thank you so much for this information! I had heard of it being used rectally/made into suppositories. I too struggle with the gi symptoms.

And what dose of MEL and for how long until you saw benefit? Sorry for all the questions, but it's hard to find others who have experimented with these things, and even harder to find people in remission 🙏🏼

Amazing ❤️ I feel there is a lot of overlap between ME and Long Cvid. I meet the criteria for ME as well, but no formal diagnosis.
What dosing did you do for psilocybin? Ive experimented with microdosing but nervous to do a hero's dose with dysautonomia and mcas.

That's great you've seen improvement! I am taking it for severe chronic illness(long covid) and have yet to see any real benefit. I have horrible insomnia (2hrs broken sleep for 5yrs now) so was hoping it would help at least a bit 🫠

Me too! I wish I had worn them pre-2020, especially when flying/concerts etc. "Do the best you can until you know better. Then when you know better, do better" Maya Angelou

My partner does basically everything for me. Without him I'd be in a nursing home or worse. But i feel his annoyance and resentment towards me growing stronger as time goes on. Both of our lives have been ruined.

🤞🏽 Come on Canada! That hat is dope!

Do your cats get along with the bunnies, or do you have to keep them separated at all times?

Not 100% sure it's what's helping my mcas, but maybe? Im also on a very strict mcas/low histamine diet as well as various herbs and supplements. I'm down to 1-2 benadryl per day when last spring/summer I was having to take 7-8/day during high estrogen times of my cycle just to stave off anaphylaxis

I've been on it for 6 months, every 2 weeks -150mg per injection. Not painful. I self-inject now and have no issues, no bruising. And I typically bruise easily.

Are you doing ok now?

🫂🫶 Yeah it's bullshit. Especially with all you've dealt with prior.

This disease makes me hate myself. I know it's not my fault. I know I should have compassion for myself. But I'm fucking miserable and despise my existence in this form.

She looks amazing in jeans. 😍Glad to see you got some good shots!

Ew, one of the worst forms of Christianity.

Yay, thanks for showing up!✨️ I'd be there of I wasn't bedbound. Went to his rally in 2019 when he was campaigning for potus.

Church of cannabis. There is one in colorado, maybe there is one near you?

Wicked witch and flying monkeys gave me nightmares as a kid. Not sure why I was watching that movie at age 6. I was already a sensitive child 😂

I also have dreams a few times/week that involve someone from junior high. In my dream they are my best friend/safe place. Irl I was just an acquaintance & haven't seen them in 22 years.

I keep having recurring dreams about black bears. I'm not afraid of them, they tend to just be around me out in nature, eating berries and being cute. I need a dream interpreter.