@oncogenecancer
🔬 Advancing Research. Empowering Patients. Championing Advocacy. We’re patients & families dedicated to improving outcomes for people with oncogene-driven lung cancer through education, support, and powering cutting-edge research.
We were pleased to join fellow advocates, clinicians and researchers at #BTOG26.
Multidisciplinary conversations like these matter — bringing the thoracic community together to keep pushing progress in #lungcancer.
#LCSM #StrongerTogether
Photo of two young people looking at a laptop. Text says call for volunteers.
Text says turn your skills into progress.
Two young women photographed with words research cannot wait.
Let’s drive progress together.
Progress in #lungcancer doesn’t only happen in clinics or labs.
Why not use your skills to accelerate patient-focused outcomes?
We’re seeking volunteers w expertise in finance, legal, marketing, data, digital, project management & research.
Interested? www.oncogeneresearch.org/volunteer
#LungCancer can turn life upside down – fear, questions, a future that looks different.
This #WorldCancerDay @younglungcancer.bsky.social & OCR honour the people who steady the spin: clinicians, researchers, nurses, fellow patients, families.
Who helps you turn your world downside up.
#LCSM
Staying Connected with Oncogene Cancer Research - Yvonne Diaz
@yvonnediaz.bsky.social @oncogenecancer.bsky.social
oncodaily.com/voices/yvonn...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews
Photo of lots of people in a grid - often younger people, smiling, travelling, doing exercise, ordinary days and also in scanning clothes. The text says subscribe now: Be part of a community working to change outcomes in lung cancer. Sign up for patient stories, practical resources, and updates from us. We send occasional emails. You can unsubscribe at any time.
We believe progress happens when patient voices, medical, research & industry come together.
Subscribe to receive patient stories, practical support & updates from us, shared occasionally & with care.
Join our community here: 👇
oncogenecancerresearch.eo.page/rymgx
#LCSM
We’re proud to share our first Annual Report.
In our 1st year, we focused on helping our community live longer & better lives, through empowerment, advocacy & research.
Thank you for walking alongside us. This is just the beginning.
👉 oncogeneresearch.org/annual-report
#LCSM
How 5-year Relative Cancer Survival Rates (%) Changed from 1975 to 2021 Relative survival is a measure of life expectancy among people with cancer compared to that among the general population of the same age, race/ethnicity, and sex. This table shows how the 5-year relative survival rate (%) changed for 12 common cancer types all stages combined over three diagnosis periods. All survival rates improved over time except for cancer of the uterine cervix (cervical cancer) and uterine corpus (endometrial cancer). Source: Cancer Statistics 2026 Slideshow
Some good news!
5 yr survival rates for some hard to treat cancers have increased.
Liver cancer, with a 7% relative survival rate in the 1990s rose to 22%
Lung cancer- 15% to 28%
Myeloma- 32% to 62%
This is in part due to early detection & better treatment.
🧪 www.cancer.org/research/acs...
New hope for small-cell lung cancer. UK Markey Cancer Center treated the first U.S. patient with a next-gen trispecific T-cell engager that may work even when standard therapies stop. A big step forward for patients. nkytribune.com/2026/01/univ... #lungcancer #immunotherapy #oncology #TCSC
Six people standing together in a formal old room that is wood panels with slides behind them. Speakers at a conference including Yvonne Diaz of OncogeneCancer research and executives from Thermo Fisher. Also medical oncologist and pathologist.
For people living w #lungcancer, biomarker testing is not an abstract system, it is a lifeline. It shapes treatment, quality of life & time. It’s the beginning of hope.
Pleasure to have our Chair @yvonnediaz.bsky.social represent the patient voice at @thermofishersci.bsky.social European meeting
LCRF's Sr. Dir. Research & Administration, Dr. Dhru Deb, explains how early funding for NTRK gene fusion research led to the first targeted therapy for this driver. Our commitment to #LungCancer research continues to make an impact. Read more: LCRF.org/connecting3
Don’t miss this conversation with Duncan. So many of us are in our prime years when we are diagnosed with an oncogene-driven lung cancer like ALK. Our stories become others survival guides. Thank you, Duncan
Part 3, the last part of my interview with @yvonnediaz.bsky.social of @oncogenecancer.bsky.social
We discuss brain mets, brain surgery, and their implications for driving in the UK. We also talked about returning to work and then adjusting my life so I can stop working.
youtu.be/yIWw0U2yg5c?...
This card says “Reserach spotlight”snd features a photograph of Professor Elena Kelnova in a white lab coat. She is a PhD, genetics and living with ALK+ lung cancer. The card says: read Elena‘s published paper designed to help patients and families understand ALK+ lung cancer in clear and empowering terms.
A must-read for the ALK+ community.
Professor Elena Klenova, a scientist w background in cancer research & education & an ALK+ patient, explains ALK #lungcancer in clear, accessible terms - from biology to TKIs.
Written for patients & clinicians alike.
oncogeneresearch.org/patient-publis…
The 82-year-old music legend announced on Instagram that an MRI uncovered early-stage lung cancer, prompting him to pause and reschedule upcoming concerts.
Months for some.
Years for others.
More than one doctor.
More than one misdiagnosis.
Delayed #lungcancer diagnosis is not rare, especially when you are young & do not fit the “profile”.
Help us change the narrative. Help us create more awareness.
#LCSM
2025 was powered by our patient community, alongside clinicians, researchers & industry partners working together to drive progress.
Thank you for showing up in big ways and small. Here’s to a better 2026 for all of us.
Happy new year! #HNY2026
Not all advanced #lungcancer is the same. And neither are patients.
This @lungcancerstoday.bsky.social article shares a recap from Dr Mara Antonoff @iaslc.bsky.social @ascocancer.bsky.social #NACLC on surgery in oligometastatic lung cancer.
Have a read 👇
www.lungcancerstoday.com/post/the-ias...
Oncogene Cancer Research - The Part of Caregiving People Don’t Talk About
@oncogenecancer.bsky.social
oncodaily.com/voices/careg...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #OncogeneCancerResearch
Cancer does not pause for the holidays.
For those living with cancer, scans and worries do not stop.
We are thinking of everyone navigating this season alongside cancer, and thanking those working every day to improve outcomes.
Wishing you rest, love, and peace.
#LCSM
Angus Pratt was unforgettable - his large white ribbon, red toque and dry humour lit up every many conferences & events. After navigating breast cancer as a man & later EGFR LC, he found a real kinship with the #lungcancer community. He leaves a big mark on our hearts. #LCSM
Duncan, We appreciate you not only sharing your story, but going into all the amazing advocacy projects you're involved in. Shows the power of public patient involvement. Your comments on the impact of the stigma in lung cancer is also key. Encourage everyone to tune in. 👇
youtu.be/8wRLznxVN0U?...
The 2nd part of my interview with @yvonnediaz.bsky.social of @oncogenecancer.bsky.social
In this part, I discuss my advocacy work, especially my work with Greater Manchester Cancer Alliance.
We also talk about who inspired me to become a patient advocate, Cameron Millar
youtu.be/8wRLznxVN0U
1/2
Logan, diagnosed with stage 4 ALK+ #lungcancer age 32, thought he was protecting his son until this moment.
Be sure to watch the full interview to learn about how hard it was to get diagnosed and how he’s supporting others.
🎙️youtube.com/playlist?list=…
#LCSM
Photograph of Dr Jose Luis Costa, of Thermo Fisher Scientific. He provides a quote for our lung cancer awareness campaign. He says: We want to see every patient receive the diagnostic that can guide the most precise treatment.
#BiomarkerTesting has changed everything in #lungcancer. It gives those in our community the chance to receive the right treatment at the right moment.
It's why @thermofishersci.bsky.social José Luis Costa believes in continued innovation.
#StoriesOfLungCancer #LCAM25
So true! Thank you
New Evidence Highlights the Power of the Patient Voice in Oncology - Yan Leyfman
@yleyfman.bsky.social
oncodaily.com/voices/yan-l...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews
Progress in #lungcancer happens when we refuse to accept today’s limits as tomorrow’s reality.
As Nuvalent’s Dr Henry Pelish reminds us — let’s keep pushing science’s limits.
#StoriesOfLungCancer #LCAM25
Lung cancer causes more deaths than colon, breast & prostate cancers combined. Early detection saves lives.
If you're 50–80 with a smoking history, ask your doctor about a low-dose CT lung screening. bit.ly/487gjDn
The image shows a drawing of two women - one a journalist called Sofia and a doctor known as Dr Ana. It says: Biomarker Testing: Watch this new education video. It's all you need to know about lung cancer and biomarker testing. Produced by Thermo Fisher with support from Oncogene Cancer Research.
#Biomarkertesting helps people with #lungcancer get the right treatment at the right time. Yet too many still miss out.
This video created w @thermofishersci.bsky.social is a great resource for anyone diagnosed.
Help share to empower & inform more people👇
www.oncogeneresearch.org/biomarker-te...
Sorry for both of your losses, words cannot replace what was lost😔
This troubling news came out.
www.nbcnews.com/nightly-news...
