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Royal Free 1955

@rfh1955

ME/CFS archive. For education, not profit. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. Reposts not necessarily endorsements. No art, emoji etc. https://rfh1955.blogspot.com/

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Latest posts by Royal Free 1955 @rfh1955

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The Daily Telegraph, UK. 2nd March 2006. #mecfs #cfsme #myalgice #myalgicencephalomyelitis

02.03.2025 19:50 πŸ‘ 5 πŸ” 2 πŸ’¬ 0 πŸ“Œ 1
"Campaigners believe dozens of children are being wrongly diagnosed because the illness is largely ignored by the medical profession, which could lead to tragic consequences."

"Parents are being told their child is school phobic or just plain misbehaving and they are being treated for psychiatric disorders."

"Campaigners believe dozens of children are being wrongly diagnosed because the illness is largely ignored by the medical profession, which could lead to tragic consequences." "Parents are being told their child is school phobic or just plain misbehaving and they are being treated for psychiatric disorders."

The Black Country Evening Mail, England. 2nd March 1990. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

Psychiatrists and children again.

02.03.2025 15:22 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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The Irish Independent. 2nd March 1993. About 'TATT' but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice

02.03.2025 16:35 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Was ever the case with post/persistent illness patients.

01.03.2026 17:52 πŸ‘ 8 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

Medicine's ongoing failure to deal with Long Covid did not begin in 2020.

It happened decades before that. Nothing has changed since, all of this has been and continues to be intentional.

There is something deeply wrong with parts of this industry, in how they deal with their own failures.

01.03.2026 15:51 πŸ‘ 13 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0

Video of presentation on #longcovid.

She immediately rules out any discussion on the overlap between long Covid and #myalgicencephalomyelitis.

The medical profession’s complete mishandling of ME is, in part, why there’s nothing available for long Covid.

@crick.ac.uk

01.03.2026 13:56 πŸ‘ 3 πŸ” 2 πŸ’¬ 1 πŸ“Œ 0
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Florida Today. 1st March 1991. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

01.03.2025 20:55 πŸ‘ 4 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0
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Ten years ago today. The Plain Dealer, Ohio, US. 1st March 2015. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

01.03.2025 22:53 πŸ‘ 14 πŸ” 3 πŸ’¬ 1 πŸ“Œ 0
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The Leader-Post, Saskatchewan, Canada. 1st March 2021. #longcovid #cfsme #myalgicencephalomyelitis #myalgice #mecfs

01.03.2025 23:03 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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The Saginaw News, US. 1st March 1996. Not about #myalgicencephalomyelitis as such but it is mentioned.

#lymedisease #chroniclyme #myalgice #mecfs #cfsme

01.03.2025 21:23 πŸ‘ 3 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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The Daily Republican-Register, Illinois, US. 1st March 1989. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

01.03.2025 20:47 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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The Daily Herald, Utah, US. 1st March 1990. #cfsme #mecfs #myalgicencephalomyelitis #myalgice

01.03.2025 20:50 πŸ‘ 4 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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About #gulfwarsyndrome #gws but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice

The Daily Post, Liverpool, England. 1st March 1999.

01.03.2025 22:27 πŸ‘ 3 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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The Evening Telegraph, Derby, England. 1st March 1997. #mecfs #myalgicencephalomyelitis #myalgice #cfsme

01.03.2025 22:11 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 1

The Daily Telegraph, UK. 1st April 1994.

Rodney Silver (a.k.a. Anthony Daniels) gets a reply to his diatribe.

#myalgicencephalomyelitis #cfsme #myalgice #mecfs

01.04.2025 01:22 πŸ‘ 2 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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The Hoddesdon and Broxbourne Mercury, England. 1st March 1996. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

01.03.2025 21:08 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Thirty years ago today. The Guardian, UK. 1st March 1995. #cfsme #mecfs #myalgice #myalgicencephalomyelitis

01.03.2025 21:00 πŸ‘ 6 πŸ” 2 πŸ’¬ 1 πŸ“Œ 1
Spence in heather, out to pasture.

Spence in heather, out to pasture.

Pension letter today, short because there aren't many numbers and they are small. I retired on 9-Feb-2026 age 59 (due to disability, the #LongCovid life-upside-down mess). Very strange feeling. Cash runs out in 7 years, state pension age in 2033, but hey ho for now. Housebound & fractured pelvis.

28.02.2026 20:35 πŸ‘ 6 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

@ashleydaltonmp.bsky.social one for you to ask your department. If you will.

28.02.2026 16:57 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 1
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Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome - Nature Communications Post-infectious myalgic encephalomyelitis/chronic fatigue syndrome (PI-ME/CFS) is a disabling disorder, yet the clinical phenotype is poorly defined and the pathophysiology unknown. Here, the authors ...

www.nature.com/articles/s41...

28.02.2026 14:39 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Do you have a link to the published paper?
Is it a new analysis of the original NIH study describing PEM as "effort avoidance"?
@davetuller1.bsky.social are you aware?

28.02.2026 13:38 πŸ‘ 2 πŸ” 1 πŸ’¬ 3 πŸ“Œ 0

Not immediately.

28.02.2026 13:49 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
Ein Herz, daneben ein Pfeil, der zu einem Text zeigt.

Text:

LONG COVID:

EVERY HEARTBEAT COUNTS

FIBROSIS

NECROSIS

PERICARDITIS

MYOCARDITIS

HYPERTENSION

HEART FAILURE

FIBRILLATION

HEART ATTACK

THROMBOSIS

VESSEL DAMAGE

ARRHYΞ€Ξ—ΞœΞ™Ξ‘

And more...

Every COVID infection can cause damage.

High quality masks can help protect you.

#LongCovid

#Long CovidHeartbeats

#LongCovidAwareness

Ein Herz, daneben ein Pfeil, der zu einem Text zeigt. Text: LONG COVID: EVERY HEARTBEAT COUNTS FIBROSIS NECROSIS PERICARDITIS MYOCARDITIS HYPERTENSION HEART FAILURE FIBRILLATION HEART ATTACK THROMBOSIS VESSEL DAMAGE ARRHYΞ€Ξ—ΞœΞ™Ξ‘ And more... Every COVID infection can cause damage. High quality masks can help protect you. #LongCovid #Long CovidHeartbeats #LongCovidAwareness

International Long COVID Awareness im MΓ€rz

International Long COVID Awareness Day am 15. MΓ€rz 2026

Thema 2026: Impacts of COVID & Long Covid on the cardiovascular system

www.longcovidawareness.life

#LongCOVID #COVID #COVID19

27.02.2026 12:47 πŸ‘ 25 πŸ” 17 πŸ’¬ 0 πŸ“Œ 0
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Commentary: How loneliness became a pandemic You don’t have to be sitting by yourself on an island to be lonely. Loneliness is everywhere.

Llewellyn King again and a passing mention of #myalgicencephalomyelitis.

www.davisenterprise.com/forum/commen...

28.02.2026 13:19 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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From Chronic Fatigue to 90 Minutes of Daily Yoga - indonesiakini From Debilitation to Deep Healing: A Journey Through Chronic Fatigue and the Power of Movement For over two decades, Caroline Ings-Chambers has dedicated her career to guiding others through the trans...

From Chronic Fatigue to 90 Minutes of Daily Yoga.

indonesiakini.id/2026/02/28/f...

28.02.2026 13:17 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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New Study Uncovers "Exhausted" Immune System in ME/CFS, Offering Hope for Diagnostics and Treatment A groundbreaking study from the National Institutes of Health (NIH) has revealed critical insights into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/C

New Study Uncovers "Exhausted" Immune System in ME/CFS, Offering Hope for Diagnostics and Treatment.

ekhbary.com/news/new-stu...

28.02.2026 13:15 πŸ‘ 1 πŸ” 1 πŸ’¬ 3 πŸ“Œ 0
Preview
Long COVID studies stymied by pharma’s lack of cooperation Academic researchers want to repurpose drugs for the condition. Manufacturers aren’t supplying them

"…pharmaceutical firms want to await a concrete biomarker that could serve as a clinical trial end point before putting any resources toward long COVID studies, but it’s not possible to find such a metric without more studies."

They need proof. We need hope. #Medsky #LongCOVID

28.02.2026 02:36 πŸ‘ 3 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
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Our paper on Symptom Patterns, Recovery, and Impact of
#LongCovid is now published. This is follow up data over 1 yr. Note how the pattern of symptoms changes over time with most starting out as fluctuating pattern and more ending up with a constant symptom pattern.
academic.oup.com/ofid/article...

27.02.2026 19:16 πŸ‘ 90 πŸ” 38 πŸ’¬ 9 πŸ“Œ 7
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The Times, Shreveport, US. 28th February 2024. #longcovid #cfsme #myalgicencephalomyelitis #myalgice

28.02.2025 22:18 πŸ‘ 32 πŸ” 9 πŸ’¬ 0 πŸ“Œ 0
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The Chronicle, Crewe, England. 28th February 1996. #cfsme #mecfs #myalgicencephalomyelitis #myalgice

28.02.2025 20:59 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0