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Gitte 🧿✨

@gitteilc

#cancer #advocate #sepsis #lobular #eyetracking #bcsm #oncosky #PCORI πŸ‡©πŸ‡°πŸ‡¬πŸ‡§πŸ‡ΊπŸ‡Έ I ❀️ cats and horror 🎬🍿 Check out my new ETSY store πŸ‘‡πŸͺ·πŸ§Ώβœ¨πŸŒˆπŸ¦„πŸ‘‡ https://huldrashollow.etsy.com

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11.11.2024
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Latest posts by Gitte 🧿✨ @gitteilc

I don't have arthritis I have early onset rigor mortis. 

[skeleton dancing and a crow or raven]

DearFibromyalgia/Beth

I don't have arthritis I have early onset rigor mortis. [skeleton dancing and a crow or raven] DearFibromyalgia/Beth

18.06.2025 13:42 πŸ‘ 4186 πŸ” 570 πŸ’¬ 98 πŸ“Œ 44
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✨ MAGNETIC ENERGY ALERT ✨ Margaret Atwood called. She wants you to spread the gospel from your bumper.
$12 gets you a mobile piece of resistance art.🌷Free shipping because we believe in liberation, not hidden fees #CarMagnet #BumperStickers #RollingResistance #ProtestOnTheGo huldrashollow.etsy.com

05.07.2025 18:40 πŸ‘ 6 πŸ” 9 πŸ’¬ 0 πŸ“Œ 0
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Interesting catch by a user on X about today's shooting in Idaho

30.06.2025 02:56 πŸ‘ 7 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

When u can't get #cancer tx or even #antiobiotics or a #vaccine cuz u can't afford it or it's unavailable or deemed unnecessary by those in power, when yr child can't afford college, when education itself crumbles, when u lose yr job to AI & safe food & water are no longer a given, remember this. πŸ‘‡

26.06.2025 04:22 πŸ‘ 3 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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πŸ“£ Going to #MASCC25? Catch my Rapid E-Poster
πŸ—“ June 26 | πŸ•’ 15:35–15:40
πŸ“ Grand Ballroom I & II – Stage 2
Beyond the #Pain: Understanding #Cancer Treatment-Related Oral #Mucositis Through #Patient Experiences

πŸ‘• We’ve got t-shirts! @cancersuckless.bsky.social @cancercaremascc.bsky.social

26.06.2025 00:06 πŸ‘ 5 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

"β€˜Supportive care’ refers 2 managing toxicities of #cancer tx but embraces all symptom management thru tx & survivorship. Unfortunately, supportve care delivery remains low. One study found up to 81% of cancer survivors had unmet supportive care needs & were dissatisfied w/current services." #CanSky

25.06.2025 18:55 πŸ‘ 7 πŸ” 4 πŸ’¬ 2 πŸ“Œ 0
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Progression-free survival is NOT an ideal endpoint (advocates could have told you this!)
Interesting to see the intentions behind it as an endpoint tho
#ASCO25
~ Chris Booth

30.05.2025 18:34 πŸ‘ 11 πŸ” 5 πŸ’¬ 0 πŸ“Œ 0
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Common Myths vs Facts about Invasive Lobular Carcinoma (ILC) - The Lobular Breast Cancer Alliance LBCA has developed a new patient resource to help clear up common and pervasive myths about invasive lobular carcinoma (ILC) and its treatment. Many misconceptions […]

LBCA has developed a new patient resource: Myths and Facts about Invasive Lobular Carcinoma to help clear up common and pervasive myths about invasive lobular carcinoma (ILC). Read it here: lobularbreastcancer.org/myths-vs-fac...

23.05.2025 20:54 πŸ‘ 6 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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πŸ‘• Headed to ASCO? Come find me if you want a #MakeCancerLessShitty t-shirt! They’re soft, expressive, and mildly therapeutic. Like a hug… but with attitude. Limited supplyβ€”like everyone’s emotional bandwidth πŸ’© #ASCO2025 #SuppOnc #SurvOnc #CancerHumor #OncoSwag @cancersuckless.bsky.social

24.05.2025 17:24 πŸ‘ 14 πŸ” 6 πŸ’¬ 0 πŸ“Œ 0

Very much looking forward to the conversations around how we can improve the quality of, and access to, supportive care, based on key findings from the patient and advocacy community.
Also looking forward to hanging out with those at #MASCC25

05.05.2025 15:45 πŸ‘ 5 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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JOIN US for a Lobular Breast Cancer Chat with Dr. Yeh, advocate Gitte Joergensen @gitteilc.bsky.social & Dr. Ulaner to discuss new metastatic ILC imaging research, the SNMMI Mars Shot program @snmmi-marsshot.bsky.social & more! Register here: forms.gle/WzWvmQn9dWhe...

28.04.2025 14:27 πŸ‘ 3 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Excited that our team will be presenting at #MASCC25

Let’s make supportive care smarter, stronger, and more human 🧬 πŸ’ͺ πŸ’š

@coffeemommy.bsky.social @jj5145.bsky.social @cancersuckless.bsky.social @cancercaremascc.bsky.social #OralMucositis #MakeCancerLessShitty #PatientVoice #SuppOnc #SurvOnc

24.04.2025 15:09 πŸ‘ 8 πŸ” 3 πŸ’¬ 0 πŸ“Œ 2

Hey @flysas.com, I’ve now been on hold for 1 hour and 20 minutes (and this is not the first time). All I want is to use my voucher to book a flightβ€”shouldn’t be this hard, right? Please message me so we can sort this out. #DoBetter #SAS #CustomerService ✈️ πŸ€·β€β™€οΈ

07.04.2025 20:32 πŸ‘ 4 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

cheese is woke now

02.04.2025 03:06 πŸ‘ 23507 πŸ” 1931 πŸ’¬ 1053 πŸ“Œ 229
A woman could have an axe sticking out of her forehead and a dozen knives sticking out of her back and the first question the doctor will always ask is "what was the date of your last menstrual  period"

A woman could have an axe sticking out of her forehead and a dozen knives sticking out of her back and the first question the doctor will always ask is "what was the date of your last menstrual period"

02.04.2025 12:32 πŸ‘ 610 πŸ” 89 πŸ’¬ 25 πŸ“Œ 14
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Yesterday, I fondly remembered my dear friend Leonard Nimoy, who would have turned 94. His legacy lives on in our hearts. Just days ago, Bill Shatner celebrated his 94th birthday β€” wishing him continued health and happiness. Live long and prosper, my friends.

27.03.2025 16:14 πŸ‘ 74558 πŸ” 7389 πŸ’¬ 1403 πŸ“Œ 309

@cancersuckless.bsky.social

25.03.2025 20:02 πŸ‘ 5 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Preview
LIVE: Trump-folk er igen pΓ₯ vej til GrΓΈnland Midt i de grΓΈnlandske regeringsforhandlinger har en ny amerikansk delegation med prominente folk meldt deres ankomst.

www.dr.dk/nyheder/poli...

25.03.2025 18:07 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

We expected 2,000 people out in GOP-held Greeley, Colorado.

11,000 people showed up.

Something special is happening, folks. Now is the time to organize in every dimension possible and get to work.

21.03.2025 21:23 πŸ‘ 128472 πŸ” 25918 πŸ’¬ 3708 πŸ“Œ 1740
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Welcome to autocracy. The Republic we have known for the last 240 years is gone. This is going to keep getting worse. Much worse. The courts mean nothing, the law means nothing, Congress is irrelevant. He is a malignant psychopath.

17.03.2025 11:21 πŸ‘ 32005 πŸ” 9521 πŸ’¬ 2954 πŸ“Œ 1017
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It gets worse. Schumer isn’t just going on a book tourβ€”he’s charging for tickets.

Absolute insanity. While Americans are scared and in crisis mode, he’s basically saying, let them eat cake.

@schumer.senate.gov Step Down.

16.03.2025 12:49 πŸ‘ 14811 πŸ” 4606 πŸ’¬ 2402 πŸ“Œ 1033

Many hours have passed and I’ve thought about what happened in the Senate some more.

And you know what? I’m still mad as hell.

I may just repost their names every day until everyone knows them by heart.

15.03.2025 01:58 πŸ‘ 47124 πŸ” 6434 πŸ’¬ 1976 πŸ“Œ 351
Preview
a cat is standing on top of a woman 's head in bed . Alt: a cat is standing on top of a woman 's head in bed .
15.03.2025 13:50 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

I think some in the Senate have convinced themselves that the backlash to folding will be limited to β€œthe left” and therefore ignorable.

Those people are deeply and profoundly misreading the moment and the stakes.

Virtually every swing district House Dem walked the plank to vote NO for a reason.

14.03.2025 02:46 πŸ‘ 131867 πŸ” 24410 πŸ’¬ 4973 πŸ“Œ 1463
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🚨 A Trip to the Dentist: Cancer Survivor Edition 🚨
@cancersuckless.bsky.social @thankscancer.bsky.social
#MakeCancerLessShitty #DentalPhobiaChronicles #SurvivorLife #NitrousAndNostalgia #SendHelp #SuppOnc #SurvOnc #Cancersky

08.03.2025 17:53 πŸ‘ 6 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
an owl in a crown saying matriarchy now

an owl in a crown saying matriarchy now

i made a thing. happy international womens day.
let women lead.

08.03.2025 09:35 πŸ‘ 69 πŸ” 15 πŸ’¬ 3 πŸ“Œ 2
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SpaceX is a piece of shit, just like Elon Musk.

07.03.2025 02:50 πŸ‘ 3115 πŸ” 818 πŸ’¬ 244 πŸ“Œ 70
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Trudeau: I want to speak first directly to the American people… your government has chosen to do this to you. Your government has chosen to put American jobs at risk. They have chosen to raise costs for American consumers on everyday essential items…

04.03.2025 16:25 πŸ‘ 75814 πŸ” 20477 πŸ’¬ 2032 πŸ“Œ 1367
Advocate Chat: First Recipient of Deborah Mueller Foundation Lobular Breast Cancer Research Grant
Advocate Chat: First Recipient of Deborah Mueller Foundation Lobular Breast Cancer Research Grant YouTube video by Lobular Breast Cancer Alliance 2023

youtu.be/qI50HWXJ16Y @lobularbca.bsky.social #lobular #bcsm

02.03.2025 17:55 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0