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MND Scotland

@mndscotland

Making time count for people living with motor neuron disease. https://linktr.ee/MNDScotland

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27.11.2024
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Latest posts by MND Scotland @mndscotland

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❗ Falkirk Wheel Abseil - limited spaces available ❗

Sign up today, support MND Scotland, and help make time count for families affected by motor neuron disease: https://bit.ly/3ZQy0Uz

06.03.2026 12:20 👍 0 🔁 0 💬 0 📌 0
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We're recruiting for a National Support Advisor to join our team 💙 Full details: https://bit.ly/4r6mw9R

04.03.2026 16:17 👍 0 🔁 0 💬 0 📌 0
Developing tests to improve access to MND therapies  - Dr Fergal Waldron
Developing tests to improve access to MND therapies - Dr Fergal Waldron YouTube video by MND Scotland

Recorded as part of LEARN, our next video presentation is from Dr Fergal Waldron, who discusses his research into the FUS protein and the potential of future therapy developments in not only FUS-linked familial MND, but also in other MND subtypes: https://bit.ly/4aV286L

04.03.2026 13:15 👍 0 🔁 0 💬 0 📌 0
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Can you spare some time to volunteer and help us #maketimecount for people with MND? Come along to our Volunteer Evening on Tuesday 24 March to learn about the different volunteer roles available and hear how your time can directly support people living with MND: https://bit.ly/3N1YS0r

04.03.2026 09:10 👍 0 🔁 0 💬 0 📌 0
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We would like to thank Lizette Bingham, President of the Livingston Rotary Club, and its members for their generous donation of £500 to MND Scotland. The cheque was presented by Ms. Moira Niven MBE, Lord Lieutenant for West Lothian, to Angela Cameron on behalf of MND Scotland 💙

03.03.2026 16:36 👍 1 🔁 0 💬 0 📌 0
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Thank you to our wonderful volunteer, Maureen Purves, who recently presented a cheque of $200.00 to MND Scotland on behalf of her aunt, Mary McCall, who donated in memory of brother John ‘Jackie’ Fletcher 💙

01.03.2026 10:03 👍 1 🔁 0 💬 0 📌 0
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Motor unit MRI; towards better diagnosis in motor neuron disease - Professor Roger Whittaker Recorded as part of the MND Scotland Lived Experience and Researcher Network (LEARN). The speaker is Professor Roger Whittaker from the University of Newcastle. Professor Whitaker discusses his research into an innovative use of MRI scanning to look a...

The next video in our LEARN presentation series is from Professor Roger Whittaker who discusses his research into an innovative use of MRI scanning to look at muscle twitching, and whether this could be a useful MND diagnostic test in the future: https://bit.ly/3Osk1kD

26.02.2026 09:54 👍 1 🔁 0 💬 0 📌 0
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We are happy to announce that MND Scotland and @mndassoc.bsky.social have been selected as Curtin's charity partners of the year 💙 Thank you to the team at Curtins for supporting our cause, and helping make time count for families affected by MND 💙

https://bit.ly/46jiqny

24.02.2026 17:45 👍 3 🔁 0 💬 0 📌 0
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We would like to say thank you to the members of Troon Portland Bowling Club for their generous donation of £1,500! Thank you to Grace McKellar, Morag Boyle (Past Ladies President), Robert Muir (President), and MND Nurse, Helen Lennox, who accepted the donation on behalf of MND Scotland💙

24.02.2026 11:50 👍 1 🔁 0 💬 0 📌 0
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❗ Falkirk Wheel Abseil - Final Few Spaces Remaining❗Experience an adrenaline rush like no other! Join Team MND Scotland next month for an unforgettable 100ft abseil at the iconic Falkirk Wheel 🛞 and help make time count for families affected by MND 💙 Sign up today! https://bit.ly/3ZQy0Uz

23.02.2026 08:39 👍 1 🔁 0 💬 0 📌 0
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As we reach the halfway point of our 200k in 45 days challenge, we want to say a huge THANK YOU to everyone who is taking part - together, you have raised over £9335 so far! 🥳 Thank you all for your support 💙 Keep going, you've got this! 💪

#MNDScotland #MakeTimeCount #200kin45days

22.02.2026 10:22 👍 1 🔁 0 💬 0 📌 0
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🚶Whether you sign up for the Wee Wander (3 miles), The Big Stroll (14 miles) or the Mighty Stride (23 miles), by Kiltwalking for MND Scotland, you are bringing us closer to our vision of a world without motor neuron disease 💙

https://mndscotland.org.uk/events/kiltwalk-glasgow/

21.02.2026 09:19 👍 0 🔁 0 💬 0 📌 0
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A huge THANK YOU to Gemma Catton and everyone who supported her 'Sock It To MND' challenge! 🧦 She wore 753 different pairs of socks and raised over £2,300 for MND Scotland, totaling over £26,000 in ten years! Thank you for your continued support 💙 #MNDScotland #MakeTimeCount #MND

20.02.2026 10:15 👍 2 🔁 0 💬 0 📌 0
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MND Scotland's 45th Anniversary - MND Scotland This year marks the 45th anniversary of MND Scotland, and we need your support now more than ever.

🥳 Introducing: 45 Ways to Get Involved 💙 This year marks the 45th anniversary of MND Scotland, and we have put together 45 ways for you to get involved this year and help make time count for families affected by MND. Find out more: https://bit.ly/4rpH6mQ

#MNDScotland #MakeTimeCount #MNDScotland45

18.02.2026 15:54 👍 0 🔁 0 💬 0 📌 0
Revealing new therapeutic targets for MND using human stem cell based technologies  - Gareth Miles
Revealing new therapeutic targets for MND using human stem cell based technologies - Gareth Miles Recorded as part of the MND Scotland Lived Experience and Researcher Network (LEARN). The speaker is Professor Gareth Miles from the University of St Andrews. Professor Miles discusses his group's research investigating why motor neurons degenerate in...

The next video in our LEARN presentation series is from Professor Gareth Miles, who discusses his group’s research investigating why motor neurons degenerate in MND and how a better understanding of this process will hopefully lead to the identification of new therapies. https://bit.ly/3ObdXNj

18.02.2026 13:00 👍 1 🔁 0 💬 0 📌 0
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On Tuesday 17 March, the MND Scotland team will be at the 📍Global Energy Stadium in Dingwall to host the pilot event of our MND Scotland coffee afternoons 💙

➡️ You can find out more information about the event let us know you’re interested in coming here: https://bit.ly/3MCNCat

18.02.2026 09:00 👍 0 🔁 0 💬 0 📌 0
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Tick an adrenaline rush off your bucket list and support MND in Scotland! 💙

Join us on Saturday 9 May 2026 for a 131ft abseil down the Port of Leith Distillery with stunning views of Edinburgh. No experience needed!

➡️ Sign up today! https://bit.ly/4q6mpuI

17.02.2026 16:12 👍 1 🔁 2 💬 0 📌 0
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We are excited to announce that our Bereavement Support Services video has officially been shortlisted as a finalist in the Smiley Charity Film Awards 2025! A huge thank you to everyone who voted for us - we are truly grateful for your support 💙

#SmileyCFA26 #charityfilmawards #TheSmileys #CFA26

17.02.2026 11:06 👍 1 🔁 0 💬 0 📌 0
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Join us on 4 May 2026, for 'Jinky’s Journey'! Walk 7 miles from the Jimmy Johnstone Memorial Garden to Celtic Park to honour Celtic FC and Scotland legend, Jimmy Johnstone, 20 years after his sad passing.

➡️ Register today: https://bit.ly/49WI9nV

@celticfcfoundation.bsky.social

16.02.2026 08:42 👍 1 🔁 0 💬 0 📌 0
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🌟 An evening with Kevin Sinfield, in support MND Scotland and My Name'5 Doddie Foundation🌟 For more information or to book your tickets, please visit: https://bit.ly/4qfnznM

15.02.2026 14:15 👍 2 🔁 0 💬 0 📌 0
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If you are thinking about a loved one today who is no longer with us 💙 we invite you to take a moment to pay tribute to their memory by leaving a message on our dedication page: https://mnds.tributepage.org/mndscotland

#MNDScotland #InMemory #MakeTimeCount #MuchLoved

14.02.2026 08:59 👍 1 🔁 0 💬 0 📌 0
Bringing a repurposed drug from bench to bedside - Dr Helena Chaytow
Bringing a repurposed drug from bench to bedside - Dr Helena Chaytow YouTube video by MND Scotland

The next video in our LEARN presentation series is from Dr Helena Chaytow. Helena’s research focuses on understanding the mechanisms behind MND more fully and researching new potential therapies: https://bit.ly/4acEYXU

13.02.2026 13:00 👍 1 🔁 0 💬 0 📌 2
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Glasgow hairdresser and business owner, Jade Hayter, is sharing the story of her late mother‑in‑law, Margaret “Mags” McQuaid, to help raise awareness of the number of women affected by motor neuron disease (MND).

➡️ Read Jade's story here: https://bit.ly/4tKgjTQ

13.02.2026 10:03 👍 0 🔁 0 💬 0 📌 0
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Take on a personal challenge and raise funds for MND Scotland. Every action brings us closer to a cure. Get involved today: https://mndscotland.org.uk/get-involved/

12.02.2026 09:26 👍 0 🔁 0 💬 0 📌 0
Edinburgh Firewalk
Edinburgh Firewalk YouTube video by MND Scotland

🔥 We are thrilled to share the video from the recent Firewalk event in Edinburgh! A massive WELL DONE and THANK YOU to everyone who took part. It was incredible to see the MND community come together and help support our work and take part in this challenge 💙 https://bit.ly/4quWBsl

11.02.2026 20:00 👍 0 🔁 0 💬 0 📌 0
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❗ For the first time ever, we are bringing our legendary Zipslide Challenge to the stunning Strathclyde Park Loch! 🏞️ Soar 1,000ft and tick an epic adventure off your bucket list while helping make time count for people affected by MND 💙 Sign up today! https://bit.ly/3NK19gJ

11.02.2026 18:23 👍 0 🔁 0 💬 0 📌 0
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As wedding season approaches 💍 please consider supporting MND Scotland with our charitable wedding favours 💙

👉 To find out more, please visit: https://mndscotland.org.uk/mnd-scotland-shop/

#MNDScotland #MND #MakeTimeCount

11.02.2026 13:12 👍 0 🔁 0 💬 0 📌 0
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MND Scotland launches Manifesto ahead of 2026 election - MND Scotland Ahead of the Scottish Parliament Elections in May 2026, MND Scotland has appealed to the next Scottish Government to legislate and recognise the urgent statutory rights and needs of those with termina...

We are calling on the next Government to deliver timely, fast-tracked support for everyone in Scotland living with MND. Read our full statement and find out how you can involved: https://mndscotland.org.uk/news/mnd-scotland-launches-manifesto-ahead-of-2026-election

11.02.2026 08:30 👍 0 🔁 0 💬 0 📌 0
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🏃Edinburgh Marathon Festival - sign up for the Half Marathon! 🏃

Join Team MND Scotland in May 2026 for the Edinburgh Marathon Festival and help make time count for families affected by motor neuron disease 💙

➡️ Spaces are filling up fast, so sign up today!

https://bit.ly/4jLvm9M

10.02.2026 20:58 👍 0 🔁 0 💬 0 📌 0
The pathway to therapy in spinal muscular atrophy  - Simon Parson
The pathway to therapy in spinal muscular atrophy - Simon Parson Recorded as part of the MND Scotland Lived Experience and Researcher Network (LEARN). The speaker is Professor Simon Parson from the University of Aberdeen. Professor Parson discusses the work that has been undertaken in SMA (a childhood form of MND) ...

In our next video, as part of our LEARN presentation series, we hear from Professor Simon Parson from the University of Aberdeen who discusses the work that has been undertaken in SMA research over his career and the success of finding meaningful treatments: https://bit.ly/4a0wXH2

10.02.2026 17:00 👍 1 🔁 0 💬 0 📌 1