The people who spent years defending and even lionizing Kyle Rittenhouse and Ashli Babbitt now want us to believe that an unarmed mother in her car and a disarmed nurse were domestic terrorists who deserved to be murdered by law enforcement.
There's some cool research in the fields of communication and linguistics on emoji use as mediators in digital communication. Would be interesting (also depressing) to study 2026 from this lens
NYC Protest today
A Chicago Pope implies the existence of an MLA Pope and APA Pope
The Public Broadcasting Act of 1967 created the Corporation for Public Broadcasting. I reread it today; nothing in the law allows a president to defund PBS and NPR. In fact, Congress specifically sought to insulate public media from political pressure.
On a day like this, it’s important to say THANK YOU to all the science and public health communicators for all you do. Your work will be even more critical in the coming years. Keep going! You are very much needed and appreciated. ❤️
Very exciting when the director of #NINDS comes to your meeting. Thanks Dr. Koroshetz, you made our day! @rareepilepsy.bsky.social
About to kick off our annual #rareepilepsy workshop at #AES! #rareepilepsynetwork
Child sitting with head in arms with text overlay: "Siblings of children with epilepsy can experience trauma. Pediatric Epilepsy Surgery Alliance. epilepsysurgeryalliance.org"
It's Epilepsy Awareness Month, and there is no better time to remind you that this journey can severely impact siblings of children with epilepsy. Watch here: ow.ly/PHp850U2yo6
#epilepsy #epilepsyawareness #NEAM2024 #EpilepsyAwarenessMonth #PESAlliance #NeuroSky
#PatientAdvocacy
4) While I wasn't directly involved in this, the FIRST NATIONAL PLAN for the epilepsies was introduced to the house and senate this week. Big shout out to all that made this happen. FWIW, epilepsy is the only major neurological disorder that doesn't have a national plan. HUGE WIN for the epilepsies
3) Attended the #NCA (National Communication Conference) this week for the first time. Lots of great #healthcommunication and #qualitative scholarship. Plan to apply what I learned to my teaching and research in #rareepilepsy (always!)
2) Got official notice on the publication of #Cambridge Elements on #SCN2A! It's sort of like an encylopedia on SCN2A-related disoders that I had the BIG honor and priveledge of co-authoring. Read it here: www.scn2a.org/pdf/scn2arel...
It's been a busy and hugely productive week. Here are some highlights. Really proud and excited.
1) Co-led a #FDA listening session on the DEEs (Developmental and Epileptic Encephalopathies) where the patient voice was front and center. This was the first time the FDA accepted a DEE panel.
✨ Big News! ✨
Seize the Moment. Move Mountains for SCN2A!
We’re thrilled to announce that our 7th Family & Professional Conference is coming to Denver, Colorado on July 31-Aug 2, 2025! More details coming soon! 💙💚💜
#SCN2A #cureSCN2A #genetics #geneticeilepsy #autism #epilepsy
#healthcommunication announcements from the #NCA health communication division (3/3). Health communication research opportunities through #NIH
#healthcommunication announcements from the #NCA health communication division (2/3). A new health story hub for shared resources of #healthcommunication stories, syllabi, and teaching materials from #universityofiowa
#healthcommunication announcements from the #NCA health communication division (1/3). CPM dissertation fellowship opportunity that I wish I knew about when I was writing my diss on #LGS and privacy sharing!
Big news for the epilepsy community. A bill has been introduced in the Senate (S.5353) and House (# TBD) to create A National Plan for Epilepsy. Learn more - www.epilepsy-national-plan.org
@rareepilepsy.bsky.social
Yay!!!
Very cool opportunity from the #Epilepsy Foundation. They are launching a Research Ambassador Program to strengthen connections between the epilepsy community and research, providing insight into the processes of clinical research and new therapy development. www.epilepsy.com/research-fun...
Check this one out... Disabled people transforming media from Beth Haller. It's open access too. www.taylorfrancis.com/books/oa-mon...
There are nearly 1,000 genes known to cause epilepsy. 800+ of them are associated with developmental and epileptic encephalopathy. #rareepilepsy #epilepsy #genetics
We have these at Fairfield University and they are mostly sidewalk obstructions that die in between deliveries because someone forgot to charge them 🤣
Excited to see so many new followers by colleagues and friends in epilepsy, health communication, rare disease, academia, medicine, and more.
A great way to follow a bunch of epilepsy researchers all at once.
Love this. Thank you so much.
Q: What happens when you overpay for a social media platform, drive away most of your advertisers, alienate half its users, making it worth less than a third of what you paid for it within a year?
A: You get put in charge of government efficiency.
Health communication researcher here 👋
Librarians moving dystopian novels to the nonfiction shelves.
And last month, "A roadmap to Cure CHD2-related disorders" journals.sagepub.com/doi/full/10.... was published in Therapeutic Advances in Rare Disease #rareepilepsy #autism #patientadvocacy @curechd2.bsky.social
