researchmatters.bsky.social

This should surprise exactly no one.

Hey #AMIA2025 Coming in hot, hotter than DC at least.
#AMIA25

Research Takes Cents - Research!America Research Takes Cents Research!America’s signature Research Takes Cents compares selected consumer spending to the costs associated with conducting research. Research Takes Cents examples are easy to d...

Fun fact?? The US will spend $13Bn on all things #Halloween this year🧙🏻‍♀️🍬👻🎃🧟‍♀️. Yay for play, fun & escapism. And yet. This $$ eclipses CDC's entire FY25 budget. To this end, I appreciate unwavering advocacy by @researchamerica.bsky.social
@altcdc.altgov.info
www.researchamerica.org/research-eco...

Exploring the Shared Commitments for a Learning Health System - NAM This webinar will explore the Shared Commitments for a Learning Health System (LHS) as a common ground framework for collective action to improve health and

@nam.edu recently presented 10 Shared Commitments to serve as a trust framework for health & health care. Dive deeper into those commitments and a new initiative advancing the #learninghealthsystem on November 17. #NationalAcademyofMedicine

Register for the webinar at www.nam.edu/event/explor....

The FOMOpalooza is real. This sounds like an excellent conversation based on your real-time readout! #hdpalooza

NIH is shrinking the number of research projects it funds due to a new Trump policy NIH plans to shrink the share of grant applications it will award for the remainder of the fiscal year, in some cases by more than half.

Depressing AF.

NIH is shrinking the number of research projects it funds due to a new Trump policy www.statnews.com/2025/07/29/n... via @statnews.com

Thrilled to be in the room with the incomparable @coffeemommy.bsky.social for my first @cancercaremascc.bsky.social conference. Important session on partnering with patients to address chronic toxicities in #cancer care #MASCC25

Webinar: Exploring the Shared Commitments of the Learning Health System - NAM This webinar will explore the Shared Commitments of the Learning Health System (LHS) as a common ground framework for collective action to advance the LHS

Join the National Academy of Medicine, part of @nationalacademies.org for a webinar diving deeper into the Learning Health System and 10 Shared Commitments for unifying expectations among the health sector. #learninghealthsystem #healthtransformation

Learn more: www.nam.edu/event/explor....

If you’re here @academyhealth.bsky.social come check out my poster describing an approach to assessing progress toward realizing #learninghealthsystems.

And see what I’m like on 4 hours of sleep + 4 cups of coffee!☕️

#ARM2025 #ARM25

Timely study on differences in federal funding by type of cancer, incidence & mortality. "I also was surprised to see how many very common & highly lethal diseases — like colorectal, pancreatic, liver tumors and uterine cancer — get very little funding.” @ascocancer.bsky.social #SuneelKamath #ASCO25

Medicine warns doctors not to get too close. I’m glad mine did anyway Imagine a medical system that embraces doctors’ emotional investment in patients as a strength rather than a liability.

Amazing piece on the power of personal, compassionate connections between MDs & patients. As my @npaforg.bsky.social colleague once averred, we need VALUES-based care as much or more than we need value-based care. Empathy over efficiency!

www.statnews.com/2025/06/02/d... via @statnews.com

Setting up to hear panelists @julia-adler-mils.bsky.social @billhersh.bsky.social @prpayne5.bsky.social, and Keith Morse for their session on Preparing an AI Ready Workforce: Policy, Practice, and Future Directions.
🩺💻 #CIC25

The Price of Remission When I was diagnosed with cancer, I set out to understand why a single pill of Revlimid cost the same as a new iPhone. I’ve covered high drug prices as a reporter for years. What I discovered shocked ...

I have written many healthcare stories, but never before have I written about my own health. I decided to do so after learning one of my drugs costs nearly $1,000 a pill and just 25 cents to make. What I found was an incredible story of discovery and exploitation. www.propublica.org/article/revl...

Athena the Owl - Lady Bird Johnson Wildflower Center See Athena the Owl at the Wildflower Center as she raises her family of owlets through mid-April. She's been coming here for years. See her today!

Well, dumpster fires gonna dumpster fire. But I was so glad to learn about Owl Cam 🎥 today! @statnews.com #karenpennar

www.wildflower.org/visit/athena...

Read our open data blog series, which highlights its critical role in driving public health and scientific research and explores the threats it faces despite longstanding bipartisan support to make federally-funded data freely available to the public:

AHRQ in Your Community: How National Investments Improve Local Health Care academyhealth.org/blog/2025-04... via @academyhealth.bsky.social

AcademyHealth’s Situation Report: Congress Seeks HHS Transparency Amid Reorganization Turmoil | AcademyHealth This edition of AcademyHealth’s Situation Report examines growing congressional pressure on HHS, escalating concerns over tariffs and health care costs, and new tools for protecting public data…

The proposed HHS reorganization and economic turmoil of the past week has significant implications for the field. Our Situation Report offers updates for impacted researchers, including increased scrutiny from Capitol Hill and the impacts of tariffs on the health sector:

Federal advisory panel on ethical, legal issues in human health research disbanded A committee of experts that advises HHS on emerging ethical and legal issues in human health research has been disbanded, according to an email obtained by STAT.

🤬Federal advisory panel on ethical, legal issues in human health research disbanded www.statnews.com/2025/04/03/h... via @statnews.com

Exactly.

Peter Marks, FDA’s top vaccine regulator, forced out Top FDA official Peter Marks was forced to resign as the director of the Center for Biologics Evaluation and Research.

Peter Marks, FDA’s top vaccine regulator, forced out www.statnews.com/2025/03/28/f... via @statnews.com

Just need to say that Peter Marks is the steely-eyed missile man if the @fda.gov … this is an incomparable loss.

The Insurance Representative Tells Me How Much the Baby’s Delivery Will Cost It all depends on the child’s arrival.  If it arrives in what we call The Dawning  Hours, you’ll have to ring the bell

When creative writing meets the health "system," beauty and truth collide.
poets.org/poem/insuran...

#poetry #healthcare @katiecondon.bsky.social

I remember it being unpleasant & a lot less fudge-y.

MASCC25

I will co-chair with Prof Maryam Lustberg on June 26th AM
"Workshop 1: Partnering with patients in managing chronic toxicities of cancer and its treatment."
bringing together multidisciplinary professionals, cancer patients, survivors and carers to compare best practices for management toxicities.

Who will be at #SGOMtg? I'm speaking at the Patient Advocate Panel on March 14 about how I've become an accidental advocate (but a committed one!)
#AM25IMPACT

Applications are now open for the @NCICareDelivRes & @AcademyHealth Healthcare Delivery Research Visiting Scholars Program. Collaborate with talented researchers working to address #cancer care challenges. Learn more: ow.ly/xIvZ30mitNL

@ascocancer.bsky.social has published this tremendous position statement. Looking back thru my statements (EOBs) from my insurer, I can attest that even with good insurance, removing the added stress of copays & coinsurance for my #cancer treatment would be a godsend.

cdn.bfldr.com/KOIHB2Q3/as/...

The Value of Academic Health Research In the past month, the academic health research community in the US has been rocked by the new administration’s efforts to curtail health research expenditures. In the form of “Supplemental Guidance t...

"We do the research we do so that more people can live long, healthy lives, and live them as they wish to live them."

@kbibbinsdomingo.bsky.social #SandroGalea

jamanetwork.com/journals/jam...

I am grieving for the many talented & dedicated FDA employees who have been mistreated & those left to do the work of protecting public health. Also for those who will be harmed by this among patients and the public. Those who are complicit in their silence will be judged harshly by history.

Just gonna leave this right here
American chaos: standing up for health and medicine - The Lancet www.thelancet.com/journals/lan...

Come for the tough questions, stay for the onesies