"McGill University-led research has discovered that transplanting gut microbiota from women with fibromyalgia into mice induces pain, immune activation, metabolomic changes, and reduced skin innervation."
Read more: https://tinyurl.com/mv82c492
#MECFS #MyalgicEncephalomyelitis #Fibromyalgia #Fibro
Me/cfs or fibro changes you so much that you wish you could find your new tribe but you have no energy to do so
โI would love to say itโs the fatigue but honestly itโs notโ: Into Adulthood with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
Screenshot is from the latest Science for ME weekly update
www.tandfonline.com/doi/abs/10.1...
#MEcfs #CFS
1) Good news: the European call on high-burden, under-researched conditions will likely be renewed in the 2025 work program of Horizon Europe.
#MECFS is prominently mentioned as an example.
I have to see my employers doctor tomorrow and the irony is I can't sleep. After 2 years of sleep, I was not expecting this problem. I'm terrified that I'll lose my job if I don't agree to go back in some capacity. #CFS #ME #LongCovid But if I don't go back soon, I'll die of poverty. Great options!
It's so nice to be back online again. That's definitely the last time I go to hospital for a day procedure when I'm severe. Just slept for 19 or 20 hours out of every 24 for months. Feeling a little better at last.
Reports of conditions resembling #ME/CFS began emerging in the early 20th century, describing sporadic cases of encephalomyelitis (likened to โabortive poliomyelitisโ) with unclear origins following illnesses (7). Notably, one of the earliest diagnostic journals.physiology.org/doi/full/10....
Friends or family who go to a gym, consider helping your me/cfs or fibromyalgia loved one with physical tasks instead...
Thanks for the messages about my starter pack. I've been in hospital for a few days so will reply when I've improved.
I've made a #CFS #ME #LongCovid starter pack for us newbies. go.bsky.app/FbLo7qc
I've made a #CFS #ME #LongCovid starter pack for us newbies. go.bsky.app/FbLo7qc
Thanks for the messages about my starter pack. I've been in hospital for a few days so will reply when I've improved.
Here we go again... Any tips out there for a decent app for posting to multiple social media platforms in one go?
Text readsโJust had my disability hearing and it was frankly the most traumatic experience of my life idk why anyone would put themselves through this for no reasonโ
Text readsโLike it actually felt like I was being prosecuted for a crime that's how shameful these ppl made me feel and it's 100x worse than any of the medical gaslighting l've experienced recentlyโ
Text reads โJust feels like a gut punch honestly I have issues that are so complicated for me to explain that it probably just sounds to outside observers that I'm bullshitting but I'm not. Like screaming in a nightmare and nothing coming out. Not even a tiny squeak. I'm in max suicidal mode rnโ
I just got these texts from a bed bound Long COVID friend who went through a traumatic experience at her SSDI hearing. Itโs heartbreaking how dehumanizing this process is for people already struggling to survive. #SSDI #DisabilityRights #LongCOVID
๐
Tips: moving from Xitter to Bsky Before you start following people, fill out your profile! Bio, PFP, banner, and post at least 5 to 10 things. Just reuse your top 10 banger tweetsโrecycling is encouraged! This way, when people see you followed them and they check your profile, theyโll know you arenโt a bot, will see what you are about, and might follow back. Turn off NSFW filters in Settings > Moderation > Content Filters ( อกยฐ อส อกยฐ) and Settings > Moderation > Advanced > Bluesky Moderation Service Find your friends from the hellsite using SkyFollowerBridge.com. Not perfect, but it will find the majority of the people you were following. Follow a few feeds related to your interests. Some generic ones Iโd recommend: Catch Up: kinda like a โbest posts of the weekโ Only Posts: to see no quotes/reposts, only new posts from those you follow FollowersLike: to discover random things your followers recently liked Turn on โShow Posts From My Feedsโ in Settings > Following Feed Preferences. This will sprinkle random posts from your feeds into your main Home feed. Block often. Donโt interact with trolls, donโt quote dunk, comment, nothing. Let them rot in silence, take away their oxygen and theyโll asphyxiate. This is the Bsky way. Fuck content scrapers. Do not let that trash overwhelm this site, do not share their stolen content. You can block them all with two clicks by going to joaobaldwin.com/scrapers and on the top-right clicking on Subscribe > Block Accounts (I know, โSubscribeโ is an odd thing to name it, but thatโs how block lists work here). Use alt text to make images accessible. Helps for translations, readability, findability, and users with slow internet. Turn on Settings > Accessibility > Require alt text before posting Likes on reposts do not trigger notifications. If you only repost stuff, it might look super quiet even if people are liking what you repost. Mix in more regular posts or quotes! It takes time to rebuild, and that is fine, but the best tโฆ
Bluesky for Beginners
Very Basic Tips on Getting Going โ
by STEFFANI CAMERON
nomadnomore.substack.com/p/bluesky-fo...
I know medical misogyny is a huge part of it but are there other reasons why the medical establishment have overwhelmingly ignored conditions like fibromyalgia and ME?
Itโs bananas to me with how debilitating and widespread these conditions that research mostly ignores them. #NEISVoid
Done โบ๏ธ
Interesting. Thanks for the info ๐
Thanks โบ๏ธ
When you see someone riling up teachers and parents, blaming phones (or whatever) for children's academic and intellectual struggles, you can share this. I've updated it. I tried to be as thorough as possible:
www.okdoomer.io/covid-brain-...
๐ Great. Thanks!
I'd like to learn more about the pros and cons of that.
Black and white photograph of a group of older women standing outside wearing heavy, patterned, traditional Irish shawls
Photograph of an older woman wearing a traditional Irish shawl sitting on a low stone wall next to a young boy
Firmly believe Ireland lost its way as a nation when we stopped wearing shawls that doubled as cosy blankets, and would like to propose a return to the wearable bed
You're added ๐
Yes, you're gone.
Nothing more than to one day find work I'm physically capable of doing.
It's so hard because unless I can do something consistently enough to make it into a job it's not really safe for me to try (both for my healths sake & the fact that disability can get revoked & I still won't be able to work)
go.bsky.app/FbLo7qc I've also made one if it helps anyone find each other.
Hi could I be added please?
It was clear from the moment I got sick at eighteen years and started seeing doctors in 2012 that something very strange was happening around this disease, and it was bigger than me. When that Infectious Disease specialist gave me that creepy grin and told me I had to 'deal with my demons' - without offering any path to doing so - it was clear that my suffering was being profoundly dishonored, that I was getting fucked in some larger impersonal way.
Instead of being given an ME diagnosis & warned about overexerting, I was told by my doctor to journal about my โchildhood trauma.โ When I asked, โwhat childhood trauma?โ she double checked my chart & said โuhh, repressed trauma.โ
#GreatestMEdicalScandal
www.samuelkronen.com/p/greatest-m...
