Taylor Sundby, MD 🧬🖥️ 🎗️

You can find your representative here: www.house.gov/representati...

The proposed Continuing Resolution bill, up for vote today, cuts the Congressionally Directed Medical Research Program (CDMRP) by 57%. CDMRP is one of our nation’s most important investments in med research including #cancer (pediatric, #nf ), #autism, #substanceabuse, #chronicpain

Wordsworth in Bogotá Check out Wordsworth in Bogotá - <p><strong>" ... a novel which defies pat categorization, at once operating as a story of literary and familial discovery, an account of illicit deals gone awry, and a...

My dad’s first fiction novel is out! A son, who shunned his family’s drug empire for a career in academia, is forced to use his literary talents to save the family business! Buy at bookshop.org/p/books/word... or your local bookstore & please review it on Goodreads or Amazon!

You’re part of an amazing community that is driving research forward! It’s clear that you’re already engaged. There may be other ways to participate in the near future. For instance, if you’re interested, we hope to have a mechanism to remotely participate in our blood biomarker study. Stay tuned!

Children’s Tumor Foundation and CureNFwithJack Announce Next Phase of the Groundbreaking Biomarker Project for NF1 Tumor Detection The Children's Tumor Foundation's mission is to drive research, expand knowledge, and advance care for the NF community.

Incredibly grateful to Children's Tumor Foundation and Cure NF with Jack's generous support of our @mayocliniccancer.bsky.social - NCI- WUSTL efforts to move our #NF1 #liquidbx #cfdna assay from research to the clinic!
Read more: tinyurl.com/4m8mr56h

Neurofibromatosis Type 1 (NF1) Tumor Spectrum Special Issue in journal Current Oncology: Neurofibromatosis Type 1 (NF1) Tumor Spectrum

By shedding light on the biology, clinical strategies, and cutting-edge treatments for these #NF tumor spectra, this collection aims to enhance understanding and advance the quest to #EndNF. Deadline: 11/30/25, Website: tiny.cc/NF1

The goal is to highlight basic, pre-clinical, and clinical research shedding light on the complex tumors (#GIST, #MPNST, #PN, #glioma, #OPG, etc!) associated with one of the the most common hereditary #cancer syndromes. Focuses: #biology, #diagnostics, #prognostic factors, #tx

Neurofibromatosis Type 1 (NF1) Tumor Spectrum Special Issue in journal Current Oncology: Neurofibromatosis Type 1 (NF1) Tumor Spectrum

Do you have 🔬 or a review on #NF1 in prep? Tell us about it!
Jay Pundavela, Kyle Williams & I are thrilled to Guest Edit
Current Oncology's Special issue on #NF1! Plz share and reach out re: potential submissions! tiny.cc/NF1

I am so thankful for the amazing #nuerofibromatosis community. Advancing care for rare diseases requires #collaboration and #openscience. The #NF community embraces this reality and @sagebio.bsky.social facilities the concatenation and repurposing of rare datasets.