ALIVE WITH CHRONIC ILLNESS
The Anthology
Our anthology seeks to capture what it means to live with and not in spite of chronic illness and disability.
We are looking for literature that fits the theme of living with and not 'in spite of chronic illness or disability. We seek to capture moments of joy, triumph, and growth, highlighting the resilience of the disabled community whilst acknowledging the struggles and challenges that come with living with chronic illness and disability.
We are looking for short pieces of literature, such as prose, poetry, and short stories (maximum 2,500 words), fiction or non-fiction.
NOW ACCEPTING SUBMISSIONS
ALIVE WITH CHRONIC ILLNESS
The Anthology:
Letters to today's disabled youth
As part of our upcoming anthology which seeks to capture what it means to live with and not in spite of chronic illness and disability. We are looking for short reflections (around 250 words), on what you would tell your younger self or a disabled child or young person. We recognise that many of us walked hallways filled with peers who didn't understand what it was like to live with a health condition, not knowing what the future would look like. Children and young people are still walking those same hallways we once did, and this is our contribution to the next generation. So if you have a moment and a few words to spare, consider writing a letter to your childhood self and to the children and young people of the future.
NOW ACCEPTING SUBMISSIONS
ALIVE WITH CHRONIC ILLNESS
The Anthology:
Parent and carers perspectives
As part of our upcoming anthology which seeks to capture what it means to live with and not in spite of chronic illness and disability. We are looking for written perspectives from parents and carers of disabled children, of up to 2,500 words.
We are looking for literature that fits the theme of living with and not 'in spite of chronic illness or disability. We seek to capture moments of joy, triumph, and growth, highlighting the resilience of the disabled community whilst acknowledging the struggles and challenges that come with living with chronic illness and disability.
NOW ACCEPTING SUBMISSIONS
#Chronicillness #invisibleillness #mecfs #ME/CFS #writing #Chronicpain
07.03.2026 11:12
π 1
π 1
π¬ 1
π 0
The House of Lords Digital & Communications Committee just published their report on AI, copyright & the creative industries, and their conclusions could not be clearer.
π§΅ 1/5
06.03.2026 08:53
π 1532
π 872
π¬ 11
π 130
Dressing through Pandemics: a special issue launch
Join us for a virtual celebration of fashion resilience during tough times at the 'Dressing through Pandemics' launch.
Morolake Dairo & Sharon Nunoo feature in Dressing Through Pandemics: a special issue launch for Intellect @intellectbooks.bsky.social - how clothing & dress became central technologies of care, identity, politics & resilience during a period of global disruption.
www.eventbrite.co.uk/e/dressing-t...
25.02.2026 20:00
π 2
π 3
π¬ 0
π 0
Speakers include Christopher Armstrong, Chris Ponting @cgatist.bsky.social , Oystein Fluge, David Putrino @putrinolab.bsky.social , Carmen Scheibenbogen @scheibenbogen.bsky.social , and many other ME/CFS experts.
#MEcfs #LongCovid
25.02.2026 18:09
π 25
π 15
π¬ 0
π 0
fabulous!
25.02.2026 19:43
π 1
π 0
π¬ 1
π 0
The spine of Moving Mountains - navy blue with rainbow writing between two other nature books.
First time I've seen the paperback of #MovingMountains in the wild! π @louisekenward.bsky.social
uk.bookshop.org/p/books/movi...
25.02.2026 18:39
π 20
π 4
π¬ 1
π 0
Poems that make things happen
Online poetry workshops designed to make you think, bring you joy, make you a better reader and writer AND fit in with your busy schedule.
Online poetry workshops with Helen Mort? Yes please!
Poems that make things happen. One off or book the whole series - 1 hour sessions of creativity.
@helenmort.bsky.social
www.eventbrite.co.uk/e/poems-that...
16.02.2026 16:14
π 6
π 5
π¬ 0
π 0
As poster says, ignore the seemingly homophobic heading, this is a good read, particularly on her disability and challenges of access to public spaces. I still think she was foolish, voting Tory at one point, but her convictions seem generally sound.
14.02.2026 10:45
π 5
π 2
π¬ 1
π 0
Email sent to NHS elearning enquiries on 12 January 2026.
Subject - Request for information.
Dear NHSE elearning hub,
I am making a freedom of information request (FOIA 2000) for the following data.
In 2024/5, the NHS England elfh e-learning hub introduced 3 new modules on ME/CFS:
1. An introduction to ME/CFS (May 2024).
2. ME/CFS: guidance for community-based healthcare practitioners (January 2025).
3. Managing Severe ME/CFS (September 2025).
Please can you tell me how many people have completed each module to date (from date of introduction), and what the breakdown is for logins by NHS staff (nhs.uk), and those in government (gov.uk), academic (ac.uk), and social care sectors (if available).
I am happy for your response to be sent to this email address.
Many thanks for your help,
Lucy B
About a month ago, I made a FOIA request to the NHS England Learning Hub about their new learning modules on ME/CFS...
π§΅ 1/n
09.02.2026 15:57
π 92
π 45
π¬ 7
π 7
Publications
Swimming the Seasons: A Freshwater Almanac (Saraband, 2026) COMING MAY 7TH 2026 A little book about swimming all year round in the lakes, rivers and tarns of the English Lake District, despite not β¦
I've updates my website with details of my TWO books - yes that's TWO books - out this year:
1. My 3rd poetry collection #EmergencyDream out with @serenbooks.bsky.social March 16th
2. #SwimmingTheSeasons: A freshwater Almanac, out with @saraband-books.bsky.social May 7th
#BookSky #BookNews
12.02.2026 12:36
π 22
π 5
π¬ 1
π 0
π
well this is good news!
12.02.2026 14:15
π 3
π 0
π¬ 1
π 0
This is brilliant Jake, and it looks beautiful!
Wonderful news to see its return this year...v exciting x
12.02.2026 14:14
π 0
π 0
π¬ 0
π 0
Say no to Palantir in the NHS
NHS England is rolling out software to run our health records from Palantir - fight back
The NHS is under pressure to adopt Palantir software.
Palantirβs founder openly despises the NHS.
You can push back β use our tool to see if your local trust is using the software, then send an email to say no to Palantir
https://goodlaw.social/658abc
26.12.2025 09:41
π 733
π 484
π¬ 33
π 30
The Independent Press Top 40 Bestsellers: Nonfiction
Here are this weekβs Independent Press Top 40 Bestsellers for fiction, based on sales in hundreds of independent bookstores nationwide, generously provided by the American Booksellers Association. β¦
Huge thanks to all the US indie booksellers who've taken #TheCompanyOfOwls to heart and to their shelves, meaning it's squeezed into the @lithub.com.web.brid.gy Indie Top 40 pre official pub date. My 1st time on a bestseller list other our own shop's. As a writer and bookseller it means so much.
02.02.2026 19:59
π 17
π 5
π¬ 1
π 0
Thank you Lea, it's lovely to be reminded of this - I loved writing and recording it!
30.01.2026 10:54
π 1
π 0
π¬ 1
π 1
The Essay - A Landscape for Recovery - Louise Kenward on the Ocean as Mirror at Bexhill-on-Sea - BBC Sounds
Writer, artist and psychologist Louise Kenward describes her relationship with the sea.
I also listened to a coastal themed essay by @louisekenward.bsky.social on BBC Sounds. Yes please, to have art accessible like this so I can enjoy it from home or wherever I might be β¨οΈ
www.bbc.co.uk/sounds/play/...
30.01.2026 10:03
π 8
π 3
π¬ 1
π 0
This in person (UK) and online!
A reading and discussion of Annah, Infinite, an experimental work of creative non-fiction that challenges #ArtHistory, confronts colonial #ableism, and reclaims a stolen spiritβ¦
the young girl in Annah la Javanaise (1893-94), Gauguinβs famous painting. #Lit #ArtSky
28.01.2026 13:52
π 15
π 9
π¬ 2
π 3
British Psychological Society MECFS Guidelines Update - Chronic Living Therapy
Brief update on work by a group of psychologists who are creating up-to-date guidelines on M.E. for the British Psychological Society.
And a great post from @chronicliving123.bsky.social I think I missed at the end of last year - an update on the BPS guidelines for psychologists working with #pwME - essential work that is being co-produced w @actionforme.bsky.social & @meassociation.org.uk
chroniclivingtherapy.com/bps-guidelin...
24.01.2026 10:01
π 8
π 7
π¬ 2
π 0
What a lovely list to be a part of, thank you Tom!
#BookSky #CreativitySky
24.01.2026 09:39
π 4
π 5
π¬ 0
π 0
Wild Women Writers. We will be talking about portals, edgelands, peatbogs & other marginal places. Here's the link for tickets:
www.eventbrite.co.uk/e/wild-women...
24.01.2026 18:39
π 15
π 4
π¬ 0
π 0
I'd be happy to write something/interview if you'd like sometime?
24.01.2026 10:16
π 1
π 0
π¬ 1
π 0
British Psychological Society MECFS Guidelines Update - Chronic Living Therapy
Brief update on work by a group of psychologists who are creating up-to-date guidelines on M.E. for the British Psychological Society.
And a great post from @chronicliving123.bsky.social I think I missed at the end of last year - an update on the BPS guidelines for psychologists working with #pwME - essential work that is being co-produced w @actionforme.bsky.social & @meassociation.org.uk
chroniclivingtherapy.com/bps-guidelin...
24.01.2026 10:01
π 8
π 7
π¬ 2
π 0
2/
- Jeremy Jeffs, Photography project @jeremy-jeffs.bsky.social
- βI would be there if I couldβ β Alison Larkmanβs Mirrorbox project
- Moving Mountains, edited by @louisekenward.bsky.social
- Crafting a Path Through Illness β by @germainehypher.bsky.social
#chroniclife #PwME #mirrorbox #CFS
23.01.2026 20:05
π 4
π 3
π¬ 2
π 0
What a lovely list to be a part of, thank you Tom!
#BookSky #CreativitySky
24.01.2026 09:39
π 4
π 5
π¬ 0
π 0
Image depicting the cover of the book, "Moving Mountains," for a Q&A in the SEJournal column, BookShelf "Between the Lines."
Writers w. #disabilities & chronic #illnesses explore perspectives on #nature & #environment in a unique anthology, βMoving Mountains.β Editor @louisekenward.bsky.social discusses the recent volume in a new #SEJournalBookShelf Q&A: www.sej.org/publications... @sejorg.bsky.social
18.01.2026 17:02
π 7
π 5
π¬ 0
π 0
While compelled to live at Netherne Hospital for thirty years, Gwyneth Rowlands created many hundreds of work on flints & other found objects retrieved from the surrounding fields.
Believing she had no imagination or aptitude for art, she was initially reluctant to attend the art therapy studio
16.01.2026 23:23
π 119
π 24
π¬ 3
π 0
β€οΈ
17.01.2026 10:12
π 0
π 0
π¬ 0
π 0
Between the Lines β Writing Nature Through Illness and Disability
Writers with disabilities and chronic illnesses explore perspectives on nature and environment in a unique anthology, βMoving Mountains.β Editor Louise Kenward discusses the recent volume with contrib...
Thrilled to see this in (virtual) print at last - many thanks to the wonderful Bill Allen & the Society of Environmental Journalism for this close attention to Moving Mountains.
#Disability #NatureWriting #EnvironmentSky #BookSky
@portyliterary.bsky.social
Read in full:
www.sej.org/publications...
15.01.2026 08:22
π 15
π 7
π¬ 0
π 0
Between the Lines β Writing Nature Through Illness and Disability
Writers with disabilities and chronic illnesses explore perspectives on nature and environment in a unique anthology, βMoving Mountains.β Editor Louise Kenward discusses the recent volume with contrib...
Thrilled to see this in (virtual) print at last - many thanks to the wonderful Bill Allen & the Society of Environmental Journalism for this close attention to Moving Mountains.
#Disability #NatureWriting #EnvironmentSky #BookSky
@portyliterary.bsky.social
Read in full:
www.sej.org/publications...
15.01.2026 08:22
π 15
π 7
π¬ 0
π 0