@pspassociation
Helping people living with Progressive Supranuclear Palsy & Corticobasal Degeneration to live the best life they can #TeamPSPA🧠 Sign-up to our Pathway to Progress Challenge here: https://www.pspassociation.org.uk/pathway-to-progress/
#Physiotherapists: Want to learn more about PSP & CBD? 🧠 Download our guide for practical tips on assessment, intervention and symptom management. Share with colleagues to help raise awareness! ⬇️ ow.ly/SmYn50YkZ0u #PSP #CBD #Physiotherapy #Resources #Downloads #Guide #Neurology
🚨 Registration is OPEN for Neuro2026: The PSP & CBD International Research Symposium! 🚨
Join us & CurePSP on 5–6 Nov at Hilton Bankside, London, for the latest in PSP & CBD research. Connect with global experts! 🎟️ Book: give.curepsp.org/event/neuro2... #Neuro2026 #PSP #CBD #MedicalConference
PSPA has announced a schedule of four Masterclasses for the coming year. The first session of 2026, “The Impact of PSP & CBD on Cognition and Mental Health,” will take place on 25 March at 6.30pm in Glasgow.
Register here: www.pspassociation.org.uk/information-...
Thank you so much for sharing 💜🧡
Book your free tickets to our Cognition and Mental Health in PSP & CBD online Masterclass on Wednesday 25 March at 6:30pm. Our speaker is Dr Susan O'Connell Consultant Clinical Psychologist. Register here: ow.ly/K0Ys50YgHtb #masterclass #webinar #onlinelearning
Call for collaborators in AI and machine learning for multimodal precision brain health. Join an international DEMON Network review shaping methods for personalised interventions.
www.dementiaresearcher.nihr.ac.uk/call-for-col...
We’re proud to launch our 2026–2030 Research Strategy: Research for Impact! Built with input from people living with PSP & CBD, we’re focusing on Diagnosis, Treatment & Care. Watch why research matters: youtu.be/KQhNuOi-e8o #ResearchStrategy #PSPResearch #CBDResearch
We are sorry to hear of the passing of civil right leader, Jesse Jackson. He was diagnosed with Progressive Supranuclear Palsy (#PSP) last year. www.bbc.co.uk/news/live/c3...
🌟 BOOKING OPEN! 🌟 Don’t miss our FREE Masterclass: “Cognition & Mental Health in PSP & CBD” with Dr Susan O’Connell, Wed 25 March, 6:30pm. Learn about cognitive changes & mental health in PSP & CBD. Sign up: ow.ly/Pgw150YgWt3 #PSP #CBD #Cognition #Webinar #Neuropsychology #Zoom
Red background with white text that reads, "Have you been affected by Carer’s Allowance overpayments?" Below the text is the Carers UK logo.
Have you experienced a Carer's Allowance overpayment?
We're gathering insights from carers and advisers to build strong evidence for why the system needs to change and better meet carers' needs.
Share your experience https://carersuk.pulse.ly/oj025pjk7w
Discover strategies to support people with PSP & CBD. Specialist Physiotherapist Jade Donnelly covered clinical insights, mobility tips, and therapy approaches in our masterclass. Watch now: ow.ly/Sxqr50Y9c43 #PSP #CBD #webinar #healthcare
Health and social care professionals in Lincolnshire: Join our FREE PSP & CBD Awareness Event! 🧠
📅 Wed 25 Mar 2026, 1:30–4pm
📍 Petwood Hotel
Learn to spot signs, support those affected and connect with peers. Book: bit.ly/PSPALincs2026
#events #lincolnshire #healthcare
Are you a health or social care professional working with PSP or CBD? Our #free guides offer practical insights to help you provide the best care. Download and share with your colleagues to make a difference!
👉 ow.ly/WjWx50Y4W2a #PSP #CBD #Downloads #Guides
🌟 Health and social care professionals 🌟
Join our first in-person event of 2026 to learn about PSP & CBD, how to spot the signs, and ways to support your patients.
🗓️ Wed 25 March | 1:30–4:30pm Book FREE: ow.ly/wVWY50Y4KK7 #Healthcare #Events #MedicalProfessionals
Remember, the PSPA is here to #support you and your patients. Take a look at our helpful #poster that shows the different areas of support you can access for yourself and your patients. You can also find out more on our #Healthcare Professionals Hub: ow.ly/mZmX50Y09ix #resources
We are hosting a free event for healthcare professionals in #Lincoln on Wednesday 25 March, 1:15-4:30pm. The event will help you:
🔬Recognise early symptoms
🔬Understand disease progression
🔬Implement effective management strategies
Book your tickets here ow.ly/3Tzx50XZw #freeevent #healthcare
Rising costs and inconsistent funding have pushed hospices to breaking point. Without funding reform for hospices, vital end of life care could be cut, just as demand is rising.
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It is reassuring to hear this in today's Public Accounts Committee on the financial sustainability of adult hospices in England.
Hospices care for 270,000 people every year in England. Yet on average, they receive just 40% of the cost of care from statutory funding.
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"None of us believe that end of life care and the services to provide it is where we would like it to be... We are committed to making sure that reform happens in practise." - Samantha Jones, Permanent Secretary at the Department for Health and Social Care.
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🔬Announcement: We’re proud to fund Dr Michele Hu (University of Oxford) through the Aileen and David Heath Memorial Grant as she develops a smartphone + AI tool to help distinguish PSP from Parkinson’s earlier in the disease course.
#PSP #MovementDisorders #NeuroResearch #Research
🔬Announcement: We’re proud to fund @ProfMicheleHu (University of Oxford) through the Aileen and David Heath Memorial Grant as she develops a smartphone + AI tool to help distinguish PSP from Parkinson’s earlier in the disease course.
#PSP #MovementDisorders #NeuroResearch
Calling all #HCPs and specialists in PSP & CBD! 🧠
Help families understand their care options by joining our monthly online Support Groups. Share your insight and make a direct impact.
Interested? Contact Carol at: carol.amirghiasvand@pspassociation.org.uk 📩
🔬 New research alert! This month, Dr. Filipa Henderson Sousa @BowlesLab begins a vital @PSPA-funded study into the breakdown of proteostasis in #PSP. By exploring how tau mutations disrupt protein balance in neurons vs. astrocytes, we're one step closer to targeted therapies🧬
Have you read the latest edition of PSPA Matters yet? It’s another packed edition filled with research updates and personal stories. You can check out and download the new edition here: ow.ly/fXMx50XMX4g #magazine #charitynews #news
Thanks to kind donations to our Understood Appeal, we've awarded four Small #Research Grants.
One grant recipient is confirmed as Dr Dianne Lopez who has received 12 months funding to study cells in the brain called astrocytes, which are affected by PSP.
www.pspassociation.org.uk/introducing-...
Our CEO James Cusack shared a thank you on behalf of everyone at PSPA. We appreciate all the support, fundraising, volunteering and more that you have all done this year. You can watch his message here: www.pspassociation.org.uk/news/thank-y... #yearinreview #ceomessage
💡We're hiring!💡
Opportunity for a Research Assistant to join @soyonhonglab.bsky.social (UK DRI at UCL).
The Hong Lab investigates glia-immune mechanisms of synapse loss in age-related neurodegenerative diseases, including Alzheimer’s and Parkinson’s.
🗓️ Deadline: 7 Jan 2026
👉 lnkd.in/eQiEeipU
Read the latest edition of PSPA Matters now! It features more on our Understood Research Appeal, how our support grants help the quality of life of those with the conditions, and a review of our Pathway to Progress event. Download it here ow.ly/fLUC50XJw9O #magazine #news
This week’s #MondayMotivation is our very own Hampshire Support Group who recently held their annual festive celebrations! With a raffle and loads of festive fun, together they raised over £350 for PSPA! A huge thank you to everyone involved 💜🧡 #Hampshire #ChristmasFun
The recordings from our final #Research Information Day of the year are now available to watch on our YouTube! We had some fantastic speakers sharing the latest on their research projects. Watch them here: Session 1: www.youtube.com/watch?v=lK6M...
Session 2: www.youtube.com/watch?v=pr8f... #Webinar
