Tara F, PhD, MPH

H5N1 U.S. Tracker

Lots of H5N1 about.

Source: www.ginkgobiosecurity.com/h5n1-us-trac...

Thanks so much for organizing this! Would love to be added.

You are so brave and quiet I forget you are suffering. Ernest Hemingway

This one hits too hard.

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Telehealth was something disabled people had spent years begging for. It’s a game changer when you have an energy limiting chronic illness.

It’s hard to imagine any legitimate reason to remove it - it will cause harm.

Let patients access care in the way that is safest for them.

“I like being autistic”: Assessing the benefit of autistic-led psychoeducation for autistic children Background Despite receiving autism diagnoses in early life, autistic children are not routinely supported to understand these diagnoses post-diagnostically ([1][1]). Consequently, they typically grow...

Today in Hell Yes, Research!

When autistic children learned about autism "in a neutral and non-stigmatizing manner," & from autistic people with lived experience, it improved their self-understanding, sense of belonging, and their communication/self-advocacy skills.

www.medrxiv.org/content/10.1...

Reminder: you don’t have to be good at something to enjoy it, you don’t have to get better at it, you don’t have to monetize it, and it doesn’t have to be useful.

Dr. Yellman is speaking next Friday 12/6/24, 1p Eastern US, to @renegaderesearch.bsky.social hosted by @isabelrb.bsky.social and Renegade Team. Free. Will be recorded + posted to Remission Biome channel on YouTube.

Advantage of attending live? The Q&A.
Register us06web.zoom.us/webinar/regi...

Big news! Every CA wastewater site monitored by #WastewaterScan has had a #H5N1 bird flu hit in the past 2 weeks. EVERY SINGLE ONE.

Our new study shows that SARS-CoV-2 spike protein accumulates & persists in the body for years after infection, especially in the skull-meninges-brain axis, potentially driving long COVID. mRNA vaccines help but cannot stop it🔬🧠🦠🧵Your weekend read👇
@cellpress.bsky.social
cell.com/cell-host-mi...

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Living with ME Nine people with ME reveal their unremitting struggles as they negotiate life with their illness, including their battles to be believed, diagnosed and supported.

Living w/ ME: Sadly, the longer it takes to get a diagnosis, the worse the condition can get, and before you know it, you’ve lost your job and your quality of life has taken a nosedive. The stigma surrounding ME is a massive barrier to getting the help we need. wellcomecollection.org/stories/livi...

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For anyone who needs a reminder tonight - your value is not tied to your ability to work or participate in capitalism.

In fact - being disabled IS work.

People have no idea how much work. They imagine it like a vacation - laying around all day doing whatever fun activities you most enjoy.
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I think we need to discuss morally questionable societal norms when we have ££ to invest on a full blown advertising campaign for MAID like it’s a free holiday, but aren’t investing the appropriate amount to ££ for research,treatment & support to improve lives of the chronically disabled community

Sir Keir Starmer says Britain ‘isn’t working’ as he announces jobs push The government plans include overhauling job centres, but reforms to benefits are delayed until next year.

“The number of people classed as economically inactive - not employed or actively looking for work - has jumped to more than 9 million. It surged during Covid but remains persistently high”

That’s what happens when you mass infect a population with SARS.

#LongCovid

www.bbc.com/news/article...

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You are invited to share your long COVID experiences for a research study Your long COVID story is important! You can participate in this study if you... • currently have long COVID, or had long COVID in the past • worked full-time before you got long COVID • are age 18 or older, and have an email address What is the purpose of this study? This study looks at challenges that people with long COVID experience at work or, if no longer able to work, when they apply for disability benefits. The goal is to help develop better workplace, Social Security, and policy solutions to benefit people with long COVID. What will I be asked to do? You will be asked to participate in an interview. You may choose to answer the questions in writing at your own pace, or in a 60-minute conversation with the researcher via Zoom/phone, or in a 40-minute conversation with the researcher and some questions in writing. Your participation is completely voluntary and confidential. Who is leading this study, and who is funding it? Deborah Lefkowitz, PhD, researcher at the University of California Riverside, is leading this study in collaboration with long COVID patient advocates and other stakeholder advisers. The study is funded by a fellowship from the Retirement and Disability Research Center and Institute for Research on Poverty at the University of Wisconsin, and supported by the Social Security Administration. If you would like to participate in this study To start the questions and receive the Study Information Sheet to learn more about the study, please click on this link: https://redcap.link/longcovid_disability or scan the QR code. If you have any questions, please contact Deborah Lefkowitz at deborahl@ucr.edu Approved | Protocol #30495 | Approved: Aug 22, 2024

#LongCOVID RESEARCH looking for participants!

Research opportunity on long COVID, employment, & disability benefits for recruitment. This research is led by Deborah Lefkowitz, PhD at the University of California, Riverside, with a fellowship supported by the Social Security Administration. (1/4) 🧵

Lots to process.

This will be my first Thanksgiving without my mom and I am not sure if or what our relationship might look like moving forward.

I’m recognizing a lifetime of carrying family dysfunction on my back and seeking ways to live in peace and speak my truth while not over-exerting. I’m certain that my family role/dynamics have set me up for disability and I’m just sitting in that reality without (much) judgment of myself.

Less than two weeks away from my 3-year long covid anniversary (almost 9 years of chronic illness) and we’re dealing with unexpected unemployment (both partner & me) and major extended family issues. Lots of thoughts and feelings, but mostly working extra hard on pacing with Thanksgiving coming.

At least 5 women have died due to abortion bans in Texas & Georgia—Candi Miller, Amber Thurman, Josseli Barnica, Nevaeh Crain; and now, Porsha Ngumezi.

3 victims were Black, one Latina. 2 were immigrants. One was just 18. All women are at risk—but women of color, immigrants and teens most of all.

Do you think you've had long-term GI problems since having Covid?

We are performing a study examining the characteristics of viruses, specifically persistent SARS-CoV-2 infections, in stool samples.

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⚠️ BREAKING:

Wastewater in Saint Petersburg, Florida has tested positive for H5 bird flu.

Florida has no known active outbreak of bird flu in dairy cows or poultry.

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Almost everything you might do for fun CAN be done while wearing a respirator. You can “live your life” while protecting yourself an others.

You can’t “live your life” the same way once you’re chronically ill.

Wearing a respirator will seem like a small sacrifice compared to losing your health.