A Chronic Voice

The calm life method — 5 habits of super calm people The one mental shift that makes life 10x easier (most people fear it)

“It sounds simple, but it’s an effective way to activate your body’s #relaxation response & reduce #stress. #DeepBreathing increases oxygen to your brain & stimulates the part of your #NervousSystem that promotes relaxation.”: buff.ly/tBSdnOF

by alltopstartups
#relax #calm

Thanks for sharing! 😊

They def don't talk enough about nutrition.

My Second Brush with Death: A Broken Heart (Literally) A mitral valve prolapse with severe regurgitation was the last thing I needed on my list of chronic diseases. It was a broken heart, literally.

"After the world around me had settled into sleep at night, I would press my knees against the cold marble floor of my bedroom. Obscured by the city lights, I would search amongst the few visible stars for a favourable sign.": buff.ly/W1oMl0Q

#death #NEisVoid #LifeExperiences #HeartDisease

A Deep Dive Into Why Joy is Essential, Who Feels It, and Why Joy—fleeting woo-hoo moments like "catching the perfect wave"—is felt by many diverse animals, and researchers want to know how they express it in various situations and why.

“ #Joy refers to rather different things in different contexts. To some, it’s a long-lasting, #transcendent state that frames many aspects of #life ..it’s sometimes associated with a sense of spiritual #fulfillment.”: buff.ly/JFpRWzl

via @psychologytoday.com
#MentalHealth

The science of sunscreen - Harvard Health Myths about sunscreen range from the belief that it's ineffective to the idea that it actually causes skin cancer, but these claims are not true....

“Orgs that have raised concerns about #oxybenzone typically cite studies done in rats, where the rats were actually fed oxybenzone. It would take an individual 277 years of #sunscreen use to achieve the equivalent systemic dose.": buff.ly/I9BvTms

from @Harvard.edu
#sunblock #SkinCare

Another B-Cell Drug for Lupus Hits the Mark Phase III results put obinutuzumab in line for approval

" #Obinutuzumab ( #Gazyva ) appears set to add systemic #lupus erythematosus ( #SLE ) to its list of approved indications, as results from a phase III trial showed it was significantly more effective than placebo, with no new safety concerns.": buff.ly/WWFikk5

via @medpagetoday.com
#BCell #MedSky

Where in the World are the Accessible Beauty Brands? This post is written by Disabled& guest contributor, Mariadeliz Santiago

"Getting ready in the morning shouldn’t be an obstacle, but for so many #disabled consumers, it is. From #packaging that requires two strong hands to shade ranges that exclude entire #communities, it can be easy to feel forgotten by the #beauty industry.": buff.ly/tHXO46P

by disabledand
#accessible

For some with mental illness, it’s not always good to talk | Psyche Ideas Well-meaning campaigns urge openness and conversation about mental health struggles. But there are those who cherish silence

“Contrary to the #assumption that #silence is intrinsically harmful, this #research has revealed that, for people with these #illnesses, being #silent – that is, literally not speaking – is a vital and often hard-won resource.”: buff.ly/Ks513QV

from @psyche.co
#MentalIllness #spoonie

What Stops You from Splitting Your Burdens Up? What stops you from splitting your burdens up, especially when you live with chronic pain and the load is heavier than the average person's?

"Most young people #overestimate their maturity or ability, and I was no exception. I was #proud and stubborn, and carried my pains and #health burdens alone as if suffering was honourable.": buff.ly/eddLM5J

#ChronicIllness #YoungAdults #ChronicPain #AskForHelp

Crucial Ways to Prep for Surgery Recovery Ahead of Time My surgery recovery earlier this year was the first I’ve had in 5 years I had several months to prepare for it, which made my overall recovery easier. Unfortunately, I am a surgery pro, which is why...

“Pay #bills ahead of time if possible..You don’t want to stress about paying bills, especially if something goes wrong and requires you to be #hospitalized longer than planned.": buff.ly/iN685Hx

by @katethealmostgreat.bsky.social
#ChronicIllness #disability #surgery

“If you cite an article from a predatory journal..that’s based on flawed #research ..The #misinformation spreads quickly, and it can be hard to tell what is truly accurate.”: buff.ly/nWcxV4P

via @APAstyle.bsky.social
#researchers #MedicalResearch #disinformation #MedSky #academic

Are You a Capable Person? What Does That Even Mean? a chronic voice .com

"I hope that in future we will be able to experience a wide assortment of ailments..A box of colourful pills: “pick one to mimic the effects of a #symptom for a day”..You will realise that sometimes, u are no match for your own body.": buff.ly/SngMIaD

#InvisibleIllness #ChronicPain #ChronicFatigue

“Starting around age 40, u begin losing about 1% of your #muscle mass every year & the rate increases in your 50s. This loss of muscle, called #sarcopenia, directly impacts your #strength, #balance, #metabolism & independence.”: buff.ly/MskX79x

from Stanford
#MiddleAged #fitness

Trauma & Shame: The Struggle is Real Trauma & Shame: The Struggle is Real

“When healthy #shame turns toxic, it’s purpose is to keep us small & silent so as to try to mitigate risk for repeated chronic, consistent #trauma & #abuse ..has to be addressed for #healing to happen.”: buff.ly/6KVaX8s

by @jenniferkindera.bsky.social
#MentalHealthMatters

😱😱😱 I kind of understand. My heart valve was prolapsing in Mongolia and I thought it was just the dusty desert air heh.

It's pre-recorded so I think you can sign up and listen after should the topics interest you 😊

Aww thank you so much for the support 😊💕💕

Webinar: Shared Journeys in Hemostasis: Connecting Patient Voices with Hot Topics in the Hemostasis Laboratory | Werfen North America LOG IN

There's still time to sign up for the #Werfen symposium on #Hemophilia & #AntiphospholipidSyndrome! It's free to do so & will cover the latest advances & guidelines on these 2 #BloodDisorders. I will also be 1 of 2 two patient speakers 😊 buff.ly/vtjPjQI

#ChronicPain #medicine #hematology #webinar

March 2018: Sorting My Medications & a Hike Up Little Adam's Peak Read as I share about my chronic illness life for March 2018 where I took a little hike up Adam's Peak in Sri Lanka, and sorted my medications.

"I think it's always a good idea to get away from our regular #routines every now and then, for a change in rhythm and perspective. Sometimes by breaking routines, I realise that I didn't actually like what I 'needed' to have in my #DailyLife previously.": buff.ly/6NJMtYL

#mindfulness #lupus

Fighting Chronic Fatigue: How to Handle Being Exhausted All the Time | The Health Sessions Feeling exhausted all the time? These physical, practical and psychological coping strategies will help you deal better with chronic fatigue that won't go away.

“It can be so frustrating to do everything right..and still wake up every morning feeling worn-out. And worse: you probably have to spend the little #energy u do have on boring #SelfCare tasks & managing your #symptoms.”: buff.ly/DZUruGx

by thehealthsessions
#ChronicPain #ChronicFatigue #NEisVoid

Atkinson Hyperlegible Font - Braille Institute Read easier with Atkinson Hyperlegible Font, crafted for low-vision readers. Download for free and enjoy clear letters and numbers on your computer!

"Our award-winning #font has made #reading easier for millions..of people & continues to change lives daily..it’s free for everyone—from personal use to all commercial applications. Start reading with ease today!": buff.ly/3SMc3fn

via @brailleinstitute.bsky.social
#design #disability #disabled

Surviving a Life Made of Crises - Beyond the Limits：不自由をデザインし、新しい生を共創するラボ The “Akan” Strategy: How I Clear the Game on Highest Di

“In #English, “ #GivingUp ” tastes like defeat..
In #Japanese, akirameru (to “ #GiveUp ”) has a hidden spine:
it carries the sense of clarifying..
To “give up,” in this sense, is not to drop yr life.
It is to stop feeding [it] to illusions.”: buff.ly/FlTAONo

by kenken02122000

"When I left Taiwan, I did not get the #goodbye I would have liked. I never imagine I’d leave under the cover of secrecy with no time to say #farewell to friends, special places, or the things that mattered to me.": buff.ly/MJwsC2M

by @carriekellenberger.bsky.social
#ChronicIllness #NEisVoid

Your Voice Gives Away Valuable Personal Information Your Voice Gives Away Valuable Personal Information: The risks of always-listening voice control systems—and how to protect against them.

"The new metric..can capture how much is revealed in any 1 #audio recording of a #voice. Bäckström says the #technology cld be used..to help people understand how much of their #privacy is at risk when they use certain #speech -recording technologies.": buff.ly/qgA0kfD

via @nautil.us

@stillrollingout.stillrollingoutdoors.com thanks for resharing 🌾

@xoelive.bsky.social thanks for resharing 🌾

😲 That must have horrifying!

Haha maybe overstrengthen? Bit like how our bodies attack itself enthusiastically lol.

Is My Doctor Right for Me? Is my doctor right for me? How do you differentiate between a good and bad doctor? How do you know if the diagnosis presented is accurate?

"How do you differentiate between a ‘good’ and ‘bad’ #doctor? How do you know if the #diagnosis presented is accurate, or if the #treatment options presented are the best ones? How do you know if your doctor or #surgeon suits your needs?": buff.ly/gpXaZk7

#ChronicIllness #disability #NEisVoid